I am sorry for this enormous post this is going to be. I have had weird symptoms for about 1.5 years now and I just keep getting dismissed from Doctors. Then I go to the next one and the story goes on. Anyways I am going to see an ENT now in a week and maybe get more answers. The last place I want to get medical "advice" ideas and such would be the net, but maybe someone will have a similar story and shed more light for me.
About 1.5 years ago everything started from a weird lump feeling in the lower part of my throat after I would drink coffee. It didn't happen all the time, but after a while it progressively happened more often. It only happened after I drank coffee.
About a month of that one night I was laying in bed and my right arm started to tingle (freaked me out) about 10 minutes later my left arm began to tingle as well in the lower half of my arm. I went to the ER thinking I was going to die LOL and I had EKG, Blood Work and everything came back fine.
The lump feeling in my throat would still come off and on as well as consistent tingle in my arm. I ended up going to the ER 3 other times in a panic because my symptoms seemed to get stronger (especially the tingling), everytime everything was normal except for whatever reason an ER doctor wanted to take an Xray of my neck. The test came back showing that I had a slight compression of T3,T4 & T5. He suggested the chiropractor. Off I went...
I started to see a chiropractor (first time ever) to adjust me. Without saying anything to him he was able to tell my neck was really bad. I was seeing him for a few months and I remember sometime during that I started to get what felt like a muscle strain in the right part of my neck. Just underneath the jaw I could feel what felt like a tight pulled muscle. I didn't feel like my neck was straining, but it was tight. Shortly after seeing him the tingling in my arms went away...I was very excited. But the strain in my neck issue turned into a pain that felt like it was on the back of my throat on the right side as well. Like I could pin point the area (base of throat) in the back on the outside. Not in my throat at all. Weird
I excused it as pain from a pulled muscle I probably got from the chiropractor, problem is that it never went away (even to this day)
The pain was not even pain. It was more like a slight irritation. VERY SLOWLY this irritation has gotten stronger (still not pain, just irritation in the back outside part of my throat.
Shortly after the irritation in my neck started, I started to have the scariest symptom. I started to feel pins and needles in my veins...yeah I said veins. The only reason I know this is because whenever I felt it, I could point right to a vein. (I am thin and my veins are visible, which is why I could point to them) The pins and needles primarily happen in my face, arms and chest. Along with that I started to get abdominal pain/burning in the upper part of my stomach. It also basically moved all around my stomach area. (I know...I'm getting weird at this point
) Then I started to get a pain in the right side of my stomach after I ate something....off to the Gastro doctor I go
The Gastro doctor ordered 20 vials of blood work. He wanted to check EVERYTHING. So I did that. As well he gave me an Upper and Lower GI. Everything came back normal, slight inflammation in stomach but that was it. Doscovered 2 things from the Gastro Doctor.
1. My PTH level was high (75 - normal is 65), calcium levels came back normal (9.6)
2. My gallbladder was functioning at 18% (Sestimebi Scan determined that)
I had my gallbladder removed, hoping that was causing all my issues. The Gastro doctor sent me to a Endo Doctor because of my PTH levels...off to the Endo I Go
Side Note Reminder: The pins and needles in my veins and neck irritation and lump feeling in my throat continue through out this whole time and ALL HAVE INCREASED IN LEVEL OF FEELING
Endo Doctor does a bunch of hyper parathyroid testing on me since because of my elevated PTH levels he was suspecting that. During this time I also correlated with Dr. in Florida who is a world renowned Doctor in hyper parathyroid. All my blood work came back with the same results. Even during a period of 3 months
1. PTH = 75
2. Calcium = 9.6
3. Vitamin D = 22 (Low)
The Endo and Dr. both came to the conclusion that my elevated PTH was due to my deficiency in Vitamin D. I am not surprised because I constantly avoid the sun (That has changed now and I take Vitamin D3 2000ui daily to take care of that. During my time with the Endo my neck irritation has now increased more to the point that it is in my throat now, and it is a slight pain (like a soar throat), Pins and Needles in my veins have increased to a consistent state and lump feeling in throat is constant. I have NO VISIBLE SIGNS of a lump in my throat. He ordered me and ultra sound of my neck and found nothing. Not even swelling..which I don't understand because I totally feel like it is swollen, visibly it is not. This was about 1 month ago
So now we are caught up to date. I am off to see and ENT because whatever is happening in my neck has now entered my throat. I have to clear it constantly and sometimes my ears feel some irritation.
I am so confused, I have no idea what is wrong with me. All the doctors feel like everything they dealt with was unrelated to the other. But I was totally fine and healthy and then in one shot all this happens at the same time....
I have to be honest that I am so freaked out that I have cancer. The reasons are
1. I used to smoke
2. The irritation grew so slowly (still not even painful, but very irritated)
3. If you Google Pins and Needles in veins everything points to cancer.
I try and not freak myself out. I have tried to think of everything that my issues could be and I am going to list my logic and findings now.
1. Everything started with that lump feeling in my throat. Let me remind you that it ONLY happened after I drank coffee. Back then I drank about 1.5 pots a day (I know I know, I quit already) recently I started to drink literally about 2 inches in a cup worth of coffee in the entire day. I notice that after I drink it, I get the pins and needles feeling really bad. Then after a while it goes away.
Could I be allergic to caffeine? Could that be causing my issues?
2. Remember my T3, T4 and T5 are compressed in my neck. This is the exact location of the irritation in my neck/throat. The nerves out of that area of the spine effect the head, neck, shoulders, arms and upper chest. All the areas of where my symptoms are.
Could all this be from a pinched nerve? Because of the wide variety of symptoms it could possibly be this.
I will keep you guys posted on my progress...