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Scheuermann's Kyphosis


I am a 22 year old girl and have been suffering from Scheuermann's (Scheuermann's disease, or Scheuermann's kyphosis, is a condition in which the normal roundback in the upper spine (called a kyphosis) is increased. Most people with Scheuermann's disease will have an increased roundback (e.g. a hunch back or hump back)) for most of my life.

I was officially diagnosed when I was 17 but knew I had it before then because my brother had been diagnosed a few years before me. The degree of my curve was around 75* (can't remember exactly) but it was enough to qualify for surgery. I have had terrible back pain daily that has gotten significantly worse over the past few years. I have been considering surgery for some time now and had started the process of seeing a doctor and finding out my options when I was 18 but my dad didn't want me to have the surgery so I backed out. I am now going to see a doctor and find out my options at this time. I was told before by the doctor that since I was done growing, wearing a brace wouldn't do me any good. As I'm sure anyone could imagine, the emotional pain I have felt growing up with this problem is almost worse than the physical pain I am feeling. I want more than anything to have my back look "normal".

What I'd really like is to hear from others who have had a spinal correctional surgery. For this disease or similar others. I want to know the pros and cons, if it was worth it, if it gave them the results they were desiring, and what my recovery might be like. I need to find out as much info as possible as I realize how serious and major this type of surgery would be.

Any thought, experiences and opinions are welcome. Thank you!



  • LizLiz Posts: 9,759
    i am sure that you will find your time on spine-health very rewarding. this site is a powerful and integrated system that is dynamic and continues to grow.
    here are just some of the highlights:

    - detailed medical libraries of articles and videos that address almost every spinal conditions and treatment

    - the wellness section contains articles, tips and videos to help patients after surgery and also to help people avoid surgery.

    - under the resource tab, there is a section doctor advice health center which can be invaluable.

    - as a bonus, spine-health provides these patient forums. here is where you can meet thousands of other people who understand and can relate to your situation. you will soon become part of the spiney family who provide comfort and the advantages of a support system. you are now part of this family that is approximately 20,600 international members and growing daily.

    - it is very important to understand the forum rules to make sure all of your posts do not violate any of the rules.

    - as a new member, it is helpful to understand the 'makeup' of these forums, how to make posts, tips on adding images and much more. you should read forum faq

    here are some you should take a look at:
    read before you post
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    all of this will help make your threads better and improve the times and quality of responses you will receive.

    if you have any questions or need assistance, you can use the private message facility to contact any one of the moderators on my team:







    Veritas-Health Forum Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • Hi, wanted to welcome you to the site. I had kyphosis, but also scoliosis, so that's a little different. I think going to get 2 or 3 opinions from good spine surgeons is a good thing. I'd ask them specifically if they'd expect pain to get worse over the years, etc. In my opinion (and only mine) if surgery is in your future, might as well get it over with while younger simply because you'll have better healing, and over all more time with less pain once you've healed. Plus, if you are wanting kids in your future, you probably want this over and healed by then. That isn't to say you should dive into surgery, speaking from experience, these are some pretty brutal surgeries. Best of luck to you. Feel free to PM me.
    33yo mom of two. My surgical history...preadolescence scoliosis, kyphosis, and a hot mess.... 5 spine surgeries and lots of items added I wasn't born with (titanium, peek, surgical steel). Guess cremation is out. TSA loves me.
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  • I have a curvature in my thoracic spine as well. I have always had it plus a sway back. I have not had surgery but do have issues caused by the curve such as bulging discs.

    To be honest, my entire spine from the neck down has issues.

    My heart goes out to you, you are so young and I know that you just want to feel good and be a normal teen.

    I would suggest that you find the best pediatric spine specialists in your area or even outside of your area for a consultation. I was once a nurse and we would refer patients to specialists all over the U.S. who could then help coordinate care with a specialist in our area.

    At your age you have stopped growing so I see no reason to delay the surgery. If you are ready then it is time to start looking for a specialist.

    I am very sorry you have to deal with a medical issue so young. Good luck to you!
    Synovial cysts L-5 causing mass effect 5mm and 7 mm in size
    Severe lumbar facet disease
    Bulging discs
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