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Mystery SI joint pain...feeling VERY frustrated and helpless

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2

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  • whtroze said:

    Hi all. I'm a F, 36yrs old with SI joint pain 30+ years...official diagnosis 4 yrs ago. Did tons of meds (painkillers), SI PT (aka core strengthening stuff), got an SI belt, etc. As issues continued to worse despite all that stuff, finally got an SI injection with steriod May 3rd. I had a glorious 3 weeks and my life back!!! Unfortunately that ended abruptly as soon as the drug wore off. Back to where I was before the shot. The shot was diagnostic that the SI joint is the source of the pain. My doc decided to do some testing to try to find cause. Tested for RA...negative. Tested for spondilitis...negative. TONS of Xrays...alignment...awesome. No fractures, spurs, other disease marks, good spacing, etc. So...basically have no idea why SI joint is causing pain!! By the looks of all the tests, there should be no pain at all. Yet every day I have mild pain as soon as I get up and often progresses to moderate pain throughout the day (basically I got out of bed). I have to take tons of Ibuprofen and 2-3 doses of Tramadol (100mgs/dose) just to get through a "normal" day. Oh, and god forbid a flare happens. Then getting out of bed just isn't an option and there doesn't appear to be a pain med that can even touch it.

    I do see a chiropractor once a month...she has helped to try keeping things ok and I've noticed with her help I only get bad flares every few months rather than the every few weeks before seeing her. However, this last time I saw her it was during a flare and she couldn't do a thing. It was so tight and inflammed she feared getting it madder. Plus, she tried adjusting and nothing would budge due to the tightness.

    So...now my doc is trying a new med...Meloxicam 15mg to see if we can get a handle on the inflammation. Also...another round of PT..this time with a kinesiologist. I must admit, I'm not feeling optimistic. Honestly if I hear I have to work on strengthening my core muscles I may go homicidal!! Those muscles are strong, trust me. In fact, that spiel they gave me was a double edge sword...yeah the muscles look great, but they also can give quite the powerful spasms now.

    I am so frustrated as I am in pain every day and there doesn't seem to be a way to find out why, therefore no effective treatment. The shot worked, but only for 3 weeks. I feel like I'm going to be like this forever. I can't do anything other than lay in bed without having pain. Sitting too long, standing too long, walking, etc...all tick my back off. In order to do anything "normal" I have to take tons of drugs...which of course then you have to deal with the icky affects like stomach, headache, etc just for that little amount of relief to function. This just is so not a quality of life. I admit...I'm getting depressed....but who wouldn't. My life is being ruled by my back with no relief in sight.

    Has anyone experienced this....SI joint pain with no cause per the tests?? Any advise?? Any feedback is GREATLY appreciated. Thank you!!!!

  • SavageSavage United StatesPosts: 7,385
    Hello suechef! and Welcome!
    It seems you have not been here in a while so I'm including link for ...Welcome and How to Get Started...
    since we have system change and many new things!

    Please click on link for helpful information!
    Sue
    Honorary Spine-Health Moderator
    -------------------------------------------------------------------------------------------------------------------------
    Please read my medical history at: Medical History

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  • Jaffrib said:

    To all who commented on PRP to SI joint , how has your progress been? I got mine 3 weeks ago, but my joint is fairly irritated. Hoping it gets better! Thank you

    Hi- do you have an update on your PRP injection?  I had one a week and a half ago-My Right side was the issue - but they did it in both joints as I am hypermobile- it was great for the first few days- I went for a walk and it has been inflamed in both joints.  Mostly I am having pins -needles and weakness in both ankles with radicular pain.  I am nervous but hopeful!  You would be a couple of months out now-  How is it?   Thanks!!
  • Cas0220CCas0220 Bluffton, INPosts: 1
    Hello WhtRoze,

    I am a 32 yr old male and for the past 3-4 years now I have been struggling with the exact same symptoms, to the T. I too have been through PT, have had 4 injections (unfortunately no help there but I believe the doctor that was giving me them gave me some bogus medicine that didnt help, like salene* or something?), have been prescribed some pain killers, although that in itself has been hard because I cant find a doctor who truly understands my pain, or believes me for that matter because the two MRI's that I had showed up basically normal. I forget if I had an X-Ray done, I don't think so, maybe I should? If it is what I think it is then an X-Ray probly won't show much? Anyway I take meloxicam and have for a long time, 15mg a day and it does seem to help the inflammation but my pain is getting worse, and it just isnt in my back, its the top of my butt, my hip, my leg, thigh, etc. It is absolutely terrible getting up in the mornings, and until I get some sort of medicine in my I just can't move. I had to quit my last job and now am just wondering what in the world to do...I have no quality of life. Its absolutely terrible. At the moment I'm just medicating but like I said it doesnt give me any quality of life, it doesnt take the pain away to the point I can get a normal job or do normal activities. I can't even stand for longer than 15 minutes without wanting to sit or lay, and I have to find that perfect sitting position before I can get comfortable at all. Advice from anyone would be great. The one specialist I saw read my MRI and saw some arthritis down there and wrote it off like it wasnt a big deal at all, that was a long time ago. I should probably try another specialist? Thx all.
  • I'm seeing a lot of posts on the SI joint that go back to 2013. Some are not realizing that the Diagnostic Injection is not meant to last.  It means that if you received relief from this injection or injections, chances are it IS the SI joint ITSELF  that is the pain generator.  This is what I was told by my neurosurgeon who did my minimally invasive sacroiliac joint fusion surgery.   It appears from my research that slowly,  insurance companies are now beginning to cover the procedure.

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  • SavageSavage United StatesPosts: 7,385
    Hello Atl !
    Welcome to Spine-Health
    Please click on link for helpful information!
    Sue
    Honorary Spine-Health Moderator
    -------------------------------------------------------------------------------------------------------------------------
    Please read my medical history at: Medical History

  • SavageSavage United StatesPosts: 7,385
    Hello Cas0220 !
    Welcome to Spine-Health
    Please click on link for helpful information!
    Sue
    Honorary Spine-Health Moderator
    -------------------------------------------------------------------------------------------------------------------------
    Please read my medical history at: Medical History

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