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3 and 1/2 years of back pain, extending to foot, with shoulder pain. Help!

If there is anyone out there with similar issues, I would love some advice. For 3 and a 1/2 years I have been in agony. I have lower back pain the burns/hurts all the way down my right leg (front and back) and to my foot. I also have right shoulder pain radiating down my arm. I cannot sit or lay down. I can walk, but cannot over do it. I cannot stand in one place without moving. I have done the following:
I have seen tons of doctors, specialists, Neurologist,Rheumatologist, Vascular, Chiropractors, Acupuncturist, Physical Therapists, Pain Management, Neurosurgeon, the list goes on... NONE have helped me.
I have had about 6 MRI, 2 CatScans, E-Rays, I have had 4 spinal injections, and 3 si injections. I also had a discectomy L4/L5 done in 2011.

I did not have an accident, or at least I don't remember doing anything to hurt myself, I woke up one morning and the pain was there...

The first thing the docs noticed was my very tender si joints. So the very 1st procedure I had was injections there. But this did not stop the pain, so from there they began to look at my spine. My L4/L5 had a bulge, so they figured this was leaning on the nerve, after all treatments failed I tried the surgery (biggest mistake of my life) My one night stay in the hospital turned into, 5 days. I had muscle spasms so bad.. and the leg pain only left me for about a week (but now that I think back, it was probably just masked by all the pain meds they fed me) The so called 2 month recovery turned into about 8 months of hell.

Anti-Inflammatory's do nothing for me. I have tried Neuroten, and Lyrica, both gave me NASTY side effects and did nothing for my pain.

I still have tenderness in my si joint area, but the pain extends up my whole right side, on the side of spine above an below my surgery incision, and around to my hip, and down to the base of my spine, and of course down my entire right leg. On occasion about once or twice a month, the pain will flip to my left side for anywhere from 2 to 6 hours but returning back tot the right. And the shoulder pain seems to increase when the leg pain does??

I had one PT that told me she could not believe how easily my right si joint would pop in and out.. this keeps standing out in my head. Could this all be from an unstable, out of place si joint????

I am now being sent to a big University hospital in the city since I cannot get any answers locally. I don't want to go though with another failed surgery.

Any advice from anyone would be greatly appreciated...


  • LizLiz Posts: 9,745
    i am sure that you will find your time on spine-health very rewarding. this site is a powerful and integrated system that is dynamic and continues to grow.
    here are just some of the highlights:

    - detailed medical libraries of articles and videos that address almost every spinal conditions and treatment

    - the wellness section contains articles, tips and videos to help patients after surgery and also to help people avoid surgery.

    - under the resource tab, there is a section doctor advice health center which can be invaluable.

    - as a bonus, spine-health provides these patient forums. here is where you can meet thousands of other people who understand and can relate to your situation. you will soon become part of the spiney family who provide comfort and the advantages of a support system. you are now part of this family that is approximately 20,600 international members and growing daily.

    - it is very important to understand the forum rules to make sure all of your posts do not violate any of the rules.

    - as a new member, it is helpful to understand the 'makeup' of these forums, how to make posts, tips on adding images and much more. you should read forum faq

    here are some you should take a look at:
    read before you post
    tips for newcomers
    understanding the rules

    all of this will help make your threads better and improve the times and quality of responses you will receive.

    if you have any questions or need assistance, you can use the private message facility to contact any one of the moderators on my team:







    Veritas-Health Forum Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • TomiTTomi Posts: 1
    edited 08/11/2013 - 10:16 AM
    I wish I had some answers for you unfortunately I do not. I did want to tell you that everything you wrote was as if I had written it! I'm going through horrendous sciatic pain along with throbbing and at times unrelenting right shoulder pain. If it were not for my religious beliefs and the love of my family I would want to die. I can't sleep. I can't move or go anywhere. I cannot drive. I am not fun to be around. I've tried everything.....shots, drugs, pt, steroids. Have had both hips replaced and of course I'm on antidepressants. You are not alone and I so feel for you.
    This is my first time on any sort of forum and I'm glad I found this site. I was beginning to feel all alone with this condition. I will keep checking in as perhaps someday I will get some new info that may help. Good luck to you!
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