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Desperate for hopeful stories ...

Hey there, first time on this board--looking for glimmers of hope in my wife's situation. She's been diagnosed with SI-joint disfunction and periformis syndrome, and scans have turned up a number of bulging lumbar discs, plus a small partial disc tear at T-12. She's been extremely athletic all her adult life (43 now), probably did all this damage by training too hard after two pregnancies, not listening to warning signs. Running was the first to go two years ago; then cycling; then rowing; then vigorous swimming. About a month ago she had to abandon even slow/gentle swimming. For the past few weeks it's gotten so bad she can't walk around the block without triggering SI and hip pain. Doctors aren't recommending surgery. She's trying PT protocols but they seem to aggravate everything. Anybody been here and come back from it, back to being active? Or know of anybody who has? Her GP told her that people don't recover from SI disfunction once it becomes chronic.


  • LizLiz Posts: 9,765
    please take the time to read this post and refer to it when you have questions

    i am sure that you will find your time on spine-health very rewarding. this site is a powerful and integrated system that is dynamic and growing.
    here are just some of the highlights that are available as tabs on the main spine-health menu bar

    spine-health main menu tabs

    conditions detailed medical libraries of articles and videos that address almost every spinal condition.
    treatment list of treatments to the conditions identified by spine-health.
    wellness section contains articles, tips and videos to help patients after surgery and also to help people avoid surgery.
    spine-health forums these are the forums you will be using
    find a doctor this provides with a method to search for doctors in various locations.
    doctor advice health center the resource tab, has many important features. you can browse various doctor advice on given spinal situations, you can browse clinical trials and view a comprehensive glossary..
    health videos index to all spine-health videos

    as a bonus, spine-health provides these patient forums. here you can meet thousands of people who understand and can relate to your situation. you will soon become part of the spiney family[/u] who provide comfort and the advantages of a support system. you are now part of this family that is approximately 27,00 international members and growing daily.


    - it is very important to understand the forum rules to make sure all of your posts[u] do not violate any of the rules.[/u]

    - all new members must read our faq in order to understand the layout of the forums, how to navigate through the forums, helpful terms, how to make effective threads and posts, plus a link index to many of the important medical forums and key medical articles on spine-health forum faq

    i am positive any member, new or old will find this chroinc pain - step by step thread very valuable.

    here are some links that all new members need to review to create effective threads and more

    read before you post
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    all of this will help make your threads better and improve the times and quality of responses you will receive.

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    Veritas-Health Forum Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • dilaurodilauro ConnecticutPosts: 13,584
    edited 12/18/2013 - 1:57 PM
    involved it is so much easy to regain the status you had before the problems began.

    Even after surgery, there are many things a person can do to attempt to regain much of what they had before.

    We have so many success stories here. We had a problem with several herniated discs and surgery. He overcame them, he was a professional hockey official before surgery and he continued to referee after surgery

    But you will read more about folks that continue to have problems. Those that made it, often leave the site to continue with the normal life....
    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences 
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  • stenosisRosesstenosisRose Posts: 489
    edited 12/18/2013 - 3:16 PM
    I am now 18 weeks post op from major lumbar surgery, still having problems but also improvements!!!!

    Improvents as big or small as they are are rays of hope and success mini stories along the road to recovery!

    I had severe foot drop and tripped over my own toes almost everyday, but since the surgery, the numbness is decreasing and I have only tripped a few times in 4 months. These are successes for me.
    I dont have to worry any longer about becoming paralyzed in my leg and foot as my feeling is returning gradually.

    Do I feel great or normal? NO!
    But my surgery was a success in that my numbness and weakness has been stopped from progressing.
    My cauda equina syndrome has been cured or at least treated with a good outcome.

    Do I have a long way to go if I ever get there? Yes
    But my spine was a mess before surgery and is still a messy severe case, but I see improvements and they are successes.

    So have hope, healing will come at whatever level your body can achieve.
    A positive attitude really helps and patience.

    Postitive attitude I have, but patience is something I need to work on LOL

    Praying for your healing and recovery
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