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Necrotic Sacral Bone Infarct

I'm new to this forum as of today after several weeks reading many of your educated postings. I have a Bone Infarct of the left sacrum at S1-S2 4.2cm x 2.6cm which is necrotic and has been deemed inoperable by two reputable neuro's. I have exhausted every option that I can think of along with guidance from my PCP and pain management. The pain has grown to the point that the morphine and the oxycodone does nothing and i'm constantly in the ER for Dilaudid injections (Which the ER staff thinks I'm a drug seeker - Note: all of MRI's and records are at that hospital and still they believe that) and begging them to admit me with no success. I'm beginning to go threw my monthly meds faster than prescribed in an attempt to get a handle on the pain, In Florida this presents a MAJOR problem since the crack down of narcotic prescription abuse.

I would be great full to anyone that could add some light on this subject and possibly share their own experiences and or course of treatment that was successful or may be helpful.

Thanks for reading and I look forward to your responses.




  • LizLiz Posts: 9,745
    please take the time to read this post and refer to it when you have questions

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    Veritas-Health Forum Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • I'm sorry you are having such a hard time right now. I don't mean to preach to you and please don't take it that way. You are on some very strong meds and to take more than prescribed is very dangerous. You could easily overdose!! When your pain levels are way up do you try other methods of relief before you reach for another pill, such as hot baths, hot showers, heat/ice, try deep breathing, try to find a more comfortable position?? I find some relief in taking a long hot bath in epsoms salt (lavender sold at Wal-Mart) mixed with baking soda, it does help. You should try it. And and ice pack has become a very close friend of mine. Do you have a Tens-unit? U can numb yourself up by applying a Tens for about 30 minutes followed by 30 minutes of ice. Any physical therapy? If you have had physical therapy do you still continue to do the exercises and stretches at home?? Also, constantly going to the ER isn't a good idea, you already said they think you are drug seeking. They know you already take very strong meds and going there asking for more just adds to their suspicions. Just try other ways of relief, you will be surprised that other things do help--nothing is going to nor is supposed to take away all your pain. Success is just getting your pain to a manageable level so you can function. Also, if your PM dr finds out that you are taking up your meds faster than prescribed he/she can dismiss you for being non-compliant. Have you talked to your dr and told them that your pain is not being controlled?? What have they said? Do you tell your PM dr that you have to go to the ER often? Again, I'm not preaching to you--just being honest with you. Hope you feel better soon, Robert. Take care
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