Hello everyone! Please read my message and if anyone has input or advice I greatly appreciate it! I will try my best to summarize this quickly without writing a novel. I am 28 years old who was Diagnosed at age 12 with scoli. At age 20 I was diagnosed with lupus anticoagulant and antiphosphidlipid lipid antibody. Age 24 i tore both labrums in hips and had a bilateral labrum repair at 27, doctor said I was to young for total hip replacement. Now I have rehumatoid arthritis and my rehumie is trying to diagnose me with either ehlers danlos, Marfan syndrome due to my hypermobility that most likely caused my torn labrums because I'm not athletic. In June I had a mutli level spine fusion on T12 to L4 with instumentation to fix my scoli as it progressed to a 46 degree curve from 35 in less than 2 years. I'm still really really struggling with sharp constant pain in my my back after fusion at 6 months post op. I haven't had a CT or MRI yet but I don't know what's going on because it hurts badly. I did take Anti inflammatories before my 6 months because with constant horrible pain I didn't have much of an option with a 3 year old. My surgeon is anti pain pills so he dropped me to 5/325 a few months ago which really don't help. I did a year of PT. With little help but not much. Since my hips still hurt after labrum surgery it's hard to walk which I hear is the best thing for a fused spine. Can most of my pain be coming from muscle pain? I know muscle pain is dull achy but this is sharp and constant with little to no relief. I don't know what to do anymore. Anyone with hypermobility syndrome? Lupus or RA that had spine fusion that had good outcome?? I guess I just need to vent to as I'm sick of this pain at only 28 years old. No one understands except the certain few around me that have chronic diseases. It's frustrating that doctors don't understand the pain and want to just ship you off to the next doctor as well.
Any input would be great. 6 months post op? Normal for this much pain or something else?
28 F. Chicago. Fusion from t-12 l-4 from scoli in June 2013. Torn bilateral hip labrums. Arthroscopy to fix labrums January 2013 and march 2013. SI pain from hip surgery Lupus, RA, antiphosphidlipid antibody- hypermobility syndrome ( Marfan syndrome)