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NO RESPITE FOR US BACK/NECK PAIN SUFFERERS

EVEN AT CHRISTMAS
I don't know about you guys but I see people scurrying around like mad men rushing around spend spend spend .! all for one day .for me and millions like myself .Christmas offer little in the way of relief .in fact we are probably going to suffer even more than normal ..with the stress of being dragged out to family members that you don't want to see .maybe having to do more work than normal .even finding that gift for your loved one ..its all so much harder for us .I used to love this time of year .but now .I dread it ..I even have the luxury of a holiday for 2 weeks in the new year but to be honest with you as much as I want to go I know how much pain I will be in ..I will have to put a brave face on as its my wifes 50th birthday present to herself !
anyway people in pain try to enjoy this time of year .I wish everyone a happy time and just wish that I could take your pain away
all the best from the uk
tony x
1997 laminectomy
2007 repeat laminectomy and discectomy L4/L5
2011 ALIF {L4/L5/S1}
2012 ? bowel problems .still under investigation
2014 bladder operation may 19th 2014
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13

Comments

  • I can't cook big dinner anymore. Can't shop but little at the time, so takes a few trips on good days. Can't be out long cause I'm only good for about 4 hours before I have to lay down.

    I am learning the hard way to be selective with my time. I'm exhausted so quick. Learning to plan way ahead....

    Been up all blessed night with my back. Pain pills just kept me more awake. Did too much yesturdaytrying get caught up...
  • I remember the 4 hour window where I was just about able to do something ..I know it sound daft but enjoy that time you have because my 4 hour window dropped to 2 hours and now I don't have ANY PAIN FREE DOWNTIME I did not think it was possible to get any worse but I did ..and at only 47 it worries me ..
    happy Christmas
    tony x
    1997 laminectomy
    2007 repeat laminectomy and discectomy L4/L5
    2011 ALIF {L4/L5/S1}
    2012 ? bowel problems .still under investigation
    2014 bladder operation may 19th 2014
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  • I was at my first appointment for SI joint dysfuction PT today. The therapist asked me when was the last time I wasn't in pain. I honestly cannot remember when. I am only 33 years old and that worries me. So I know how you feel. It's very depressing to me when I sit and think about how much my life has changed since I had my first back surgery. If I feel this way now I wonder why I am going to be like when I am 60. Since I am looking at a SI joint fusion in my future, I guess I will eventually end up in wheel chair. Trying not to be a debbie downer, but your post got me to thinking about that. I hope everyone has a Merry Christmas and a good new year.

    Jennifer
    Discectomies 05/08 and 04/11, fusions L4-5 Feb 9,2012 and L3-L4 June 28,2012, Staph infection washout 3/2/2012, Bulged L5-S1. SCS trial on January 17th, 2014, which was a success! Permanent SCS on February 20th.
  • this SI joint thing ?? it looks like my consultant is thinking I may have a fault there too or adjacent disk problems from the ALIF .you know how major the S1 fusion is ?? don't go for it unless you have no other choice ,..what I like about this site is that the people on it are all going through similar events ..I am 17 years down the pain ladder and I know so much more now that I did then ..but knowledge has not helped much in fact the more I know the more it worries me !!
    anyway try to enjoy the festive season
    tony{UK}
    1997 laminectomy
    2007 repeat laminectomy and discectomy L4/L5
    2011 ALIF {L4/L5/S1}
    2012 ? bowel problems .still under investigation
    2014 bladder operation may 19th 2014
  • I'm going to try every conservative treatment they have before I make a decision on that surgery. I also have adjacent disc disease, right after my L4-5 fusion, my L3-4 disc herniated. It was fine before the fusion. Now my L5-S1 is bulged. I too, enjoy having people that I can relate with on my spine issues as well. Makes it just a little easier knowing that I am not alone going through this.

    Jennifer
    Discectomies 05/08 and 04/11, fusions L4-5 Feb 9,2012 and L3-L4 June 28,2012, Staph infection washout 3/2/2012, Bulged L5-S1. SCS trial on January 17th, 2014, which was a success! Permanent SCS on February 20th.
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  • DogLover247DDogLover247 Posts: 32
    edited 12/25/2013 - 1:28 AM
    because I have taken the conservative approach for 30 years. I ran from two Orthopedic surgeons, one suggested a cage fusion L4, L5 another suggested rods and screws. The hardware looked like something I would buy at a hardware store. As an avid trail walker and hound walker I found out that a dog is my best motivator to get moving.
    My DDD (L1-L5) bulges, protrusions, foraminal stenosis and practically nothing between L5-S1 with endplate changes. I was encouraged to come off my pain medication in order to have my pain controlled during a total hip replacement, October 2013. Hip surgeon put me on hydrocodone so I could survive PT to rehab my hip. I got myself a fresh Lumbar MRI to make certain my back could take the surgery (hammering) and the PT for hip. I have recovered from my hip surgery however, still under the hip surgeon's care my PM doc says let him manage your pain. PT started me on leg presses. After only two sets of 100 my lumbar feels like I has been hit with a baseball bat and I feel like someone has kicked me in the scrotum. My new years resolution is to find a back specialist that will listen. Merry Christmas all!
    Dogwalker
  • backache99backache99 Posts: 1,313
    edited 12/28/2013 - 1:39 AM
    I used to walk my dog in all weathers and everyday for miles and miles ,,after he died we thought ..due to my health ..best not get another dog ..that lasted about 6 weeks ! and another cocker spaniel was in our home ,at first I managed to walk him but no where near as much as I once did .sadly now after two years I hardly ever go out and the dog has to rely on my already overstretched wife to walk him and she cant take him out as much as he and I would like ..I feel very guilty but he is a very good dog and is happy just to be with us ..I still wish I could help him and go out more ,but today is Christmas and just as I thought ..I am here on my own ..my wife has gone to the grand kids ..I tried to enjoy breakfast with her this morning but when it came to me fixing up a present for my wife .that involved me bending down around the tv {its a home cinema system } I was unable to install it due to bloody back pain .so here I am again on my recliner ..same old same old !
    tony{UK}
    1997 laminectomy
    2007 repeat laminectomy and discectomy L4/L5
    2011 ALIF {L4/L5/S1}
    2012 ? bowel problems .still under investigation
    2014 bladder operation may 19th 2014
  • My entire life I have worked. Its been a BIG adjustment to slow down. I keep making things worse doing too much here at home.

    But on the other hand now that I can't work not pushing so hard thinking I can still do things, I've noticed how sweet it is to sit in the sunshine. How wonderful a crisp cool breeze is. That sort of thing that I never had time to notice when I was working.

    I have learned to appreciate things I've missed all this time. And occasionally my pain seems smaller.
  • Somerset JohnSSomerset John Posts: 30
    edited 12/30/2013 - 10:40 AM
    Coming to terms with the realisation that all the things you used to be able to do you now cannot do. The constant pain is debilitating enough, that in itself is tremendously depressing. In two years I have gone from being fairly active in a normal non sporting way to a more or less totally crippled old man. All the normal everyday things have changed. You know you are in trouble when you can't put your own underwear on and going to the local library on your own is a thing of the past. You have to be helped in case you fall again, and anything more than a few paces needs the wheelchair.
    A real effort has to be made to pull yourself back from an even more depressed state and try and find the 'bright side' that everyone says we should be looking on.
  • I'm not doing that bad this year. I shop in short trips and try to spread it out. My wife is recovering from cancer surgery so most of the holiday fell on me. I had people over to help on Xmas eve and on Xmas day so it was tolerable. I've been off work from the 24th on and that's a help, I do things at my own pace.

    LT
    Diagnosis: Thoracic facet syndrome & cervical and thoracic radiculopathy from car accident trauma.
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