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new! need to learn how to live back 31 scared

Greetings all!

I am excited to be here. I definitly need support with coping with pain for my lower back. Ive had a discetomy , and now in about a month a disc replacement at one level and fusion at next. Last year i fell on my left knee, and its come to this. 2 discs were herniated into the nerve collum. I have degenerative disc disease and spinal stenoisis. I honestly am terrified.

Dealing with pain and trying to steady mental state everyday is honestly exhuasting. Pain meds have thier good and bad side. I can never do my dream job i had ever again. This has put a huge strain on life in general, my relationship with the boyfriend i live with, mental and emotional. I feel very alone alot, like no one can understand. Also, scared about the fututre.

I am hoping to learn from everyone i can here! Get and give support! I want to stay as positive as i can! Just joining, the feelinh that no one can understand has gone just a bit. :)


  • LizLiz Posts: 9,745


    please take the time to read this post and refer to it when you have questions

    i am sure that you will find your time on spine-health very rewarding. this site is a powerful and integrated system that is dynamic and growing.
    here are just some of the highlights that are available as tabs on the main spine-health menu bar

    spine-health main menu tabs

    conditions detailed medical libraries of articles and videos that address almost every spinal condition.
    treatment list of treatments to the conditions identified by spine-health.
    wellness section contains articles, tips and videos to help patients after surgery and also to help people avoid surgery.
    spine-health forums these are the forums you will be using
    find a doctor this provides with a method to search for doctors in various locations.
    doctor advice health center the resource tab, has many important features. you can browse various doctor advice on given spinal situations, you can browse clinical trials and view a comprehensive glossary..
    health videos index to all spine-health videos

    as a bonus, spine-health provides these patient forums. here you can meet thousands of people who understand and can relate to your situation. you will soon become part of the spiney family[/u] who provide comfort and the advantages of a support system. you are now part of this family that is approximately 27,00 international members and growing daily.


    - it is very important to understand the forum rules to make sure all of your posts[u] do not violate any of the rules.[/u]

    - all new members must read our faq in order to understand the layout of the forums, how to navigate through the forums, helpful terms, how to make effective threads and posts, plus a link index to many of the important medical forums and key medical articles on spine-health forum faq

    i am positive any member, new or old will find this chroinc pain - step by step thread very valuable.

    here are some links that all new members need to review to create effective threads and more

    read before you post
    understanding the rules

    all of this will help make your threads better and improve the times and quality of responses you will receive.

    you can also find spine-health on these social networks

    facebook www.facebook.com/spinehealth
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    if you have any questions or need assistance, you can use the private message facility to[u] contact any one of the spine-health moderators








    Veritas-Health Forum Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • mjd210mmjd210 Posts: 92
    edited 02/04/2014 - 8:51 AM
    I can totally understand your frustration . I was injured at work last July and have been dealing with the pain and discomfort you are probably experiencing. I am so frustrated because I have a three year old who wants to play with daddy. I suck up the pain as much as I can because I know I will never get these years back. My child is my life. I have decided to have my surgery (ALIF l4-S1 w/posterior screws) because in no way do I want to spend the rest of my life like this.

    The only advise I can give is to just hang in there. I have my good and bad days just like anyone else.
    alif l4-s1
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  • dilaurodilauro ConnecticutPosts: 13,527
    The most important ingredient you can have in helping with spinal problems is a positive outlook

    You can have the various surgeries to correct spinal problems, the doctors can prescribed various medications to help manage pain levels, muscular spasms, nerve pain and much more. Physical therapists can help you during any recovery and provide you with the tools you will need to manage everything.

    But your mind can do so much.

    With spinal problems, you will experience the roller coaster ride. That is the Ups and Downs along the way. You will have some good days and some bad days. At times, the bad days can really get to you. Isolating you if you let it. You need to be prepared for all of this. You are the only one that can pick yourself up when the times are down.

    Those with positive attitudes will always find ways to help with the situation. But a negative attitude and approach can take you down a notch, or several notches until you are in a downward spiral that is so difficult to stop.

    Dont let that happen.

    No one can tell you how to be positive or what it takes to do it, that is something that you alone will figure out. Having a support group is also so very important. Your loved ones need to understand your situation and be there for you.
    And when things get tough, you can always use the members here at Spine-Health. In many ways, we are a virtual support group. At times you will get the soft love and hugs from members, but there are times you will get the cold hard facts about what is going on. But we all do care.
    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences 
  • I understand your fears, but there are a couple of things, you might not know. If you are over the age of 18 or so, most every single person , if they had an MRI of their spine would show some amount of degenerative disc "disease". It is not considered in most cases to be a finding of any significance. It is considered to be a normal part of the aging process. All it really means is that the discs are drying out to some degree, which occurs as we get older because the discs do not have a rehydration "system" in place , so the discs dry out, but for most of us, it is not even something that causes pain. I wish that doctors would explain this to people so when they read this on reports, they don't automatically assume that they have something wrong with their discs and it is going to lead to life changing problems.......it doesn't mean that at all.
    Some, very few in fact, patients will have a problem related to their DDD, usually a compressed nerve or if they played sports, their ddd might be a bit more complex than for someone with a normal spine.
    Stenosis means that there is a narrowing- now how bad that narrowing is, can be very, very mild, to very severe, and it depends on where the stenosis is located in the spine- the nerve roots or foramina or in the central canal......either location, stenosis can be very mild, to severe, and there are lots of options to treat it, including but not limited to surgery, if it is even necessary.
    The most important thing that you need to remember is that how you choose to view your current problems, and the outcome for surgery if it is necessary are going to make a huge impact on how things turn out.....surgery is tough, no doubt about it, but going into surgery thinking the worst is setting yourself up for failure. There are many patients who have undergone far more extensive surgeries and are back doing the things that they love, and not posting on forums once they have recovered.
    Who told you you won't be able to do what you love? What is it that you are afraid of not being able to do?
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