Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!


Quick Start Forum Video Tutorial

Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

The main site has all the formal medical articles and videos for you to research on.

tethered spine syndrome



  • I am new to the site. My 23 year old daughter was diagnosed with a tethered spinal cord a year ago. She was diagnosed with scoliosis in middle school but was not diagnosed with tethered spine syndrome until a year ago. She has not seen a neurosurgeon at this time. She is in her last semester of grad school and is under a lot of stress. She is also in a lot of pain from her back issues. She recently said that she is feeling some tingling on her upper left shoulder and mid back. I would appreciate some feedback regarding ways to address the pain, articles or literature to read to educate us both. Her orthopedic surgeon that she was seeing for the scoliosis referred her to pediatric neurosurgeon who specializes in tethered spinal cord syndrome for children. She and I both are concerned that she needs to see an adult neurosurgeon. Any input or feedback on this condition would be helpful. I have not been able to find very much data or research related to adult tethered spine syndrome. Thank you.
  • LizLiz Posts: 9,710
    please take the time to read this post and refer to it when you have questions

    i am sure that you will find your time on spine-health very rewarding. this site is a powerful and integrated system that is dynamic and growing.
    here are just some of the highlights that are available as tabs on the main spine-health menu bar

    spine-health main menu tabs

    conditions detailed medical libraries of articles and videos that address almost every spinal condition.
    treatment list of treatments to the conditions identified by spine-health.
    wellness section contains articles, tips and videos to help patients after surgery and also to help people avoid surgery.
    spine-health forums these are the forums you will be using
    find a doctor this provides with a method to search for doctors in various locations.
    doctor advice health center the resource tab, has many important features. you can browse various doctor advice on given spinal situations, you can browse clinical trials and view a comprehensive glossary..
    health videos index to all spine-health videos

    as a bonus, spine-health provides these patient forums. here you can meet thousands of people who understand and can relate to your situation. you will soon become part of the spiney family[/u] who provide comfort and the advantages of a support system. you are now part of this family that is approximately 27,00 international members and growing daily.


    - it is very important to understand the forum rules to make sure all of your posts[u] do not violate any of the rules.[/u]

    - all new members must read our faq in order to understand the layout of the forums, how to navigate through the forums, helpful terms, how to make effective threads and posts, plus a link index to many of the important medical forums and key medical articles on spine-health forum faq

    i am positive any member, new or old will find this chroinc pain - step by step thread very valuable.

    here are some links that all new members need to review to create effective threads and more

    read before you post
    understanding the rules

    all of this will help make your threads better and improve the times and quality of responses you will receive.

    you can also find spine-health on these social networks

    facebook www.facebook.com/spinehealth
    pinterest https://pinterest.com/spinehealth/boards/
    twitter https://twitter.com/spinehealth

    if you have any questions or need assistance, you can use the private message facility to[u] contact any one of the spine-health moderators







    Veritas-Health Forum Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • advertisement
  • thoracic spine painthoracic spine pain Posts: 566
    edited 02/10/2014 - 2:16 AM
    I have just googled the web for information on this condition. There are pages and pages of information and I also found information from another health site where parents discussed symptoms. I have also typed tethered spinal cord syndrome into the search box on the top of the page in this forum and have found quite a lot of posts about it.

    That is the easiest way to see if is discussed here. Type tethered spinal cord syndrome in to the search field and everything on the site will come up. If you find a post you can Personally message (PM) the person who has experience and find how they coped and the outcome.

    I have an extremely uncommon injury and found I had to do most of the research myself.
  • Hi, I am a 57 yr old female w Spina Bifida who was only diagnosed w tethered cord syndrome last yr after a lumbar MRI..I experience severe lower back pain radiating down legs and numbness.....Had 2 surgical consults..One surgeon told me that if I didn't have the surgery I wld end up in a wheelchair within 5 yrs.....The other surgeon was impressed w how well I am able to get around w all of my problems and said to just keep going and I will know when I need to have something done...I am taking Neurontin 300mg/3x a day and also see a chiropractor once a week for pallative therapy...Am wondering if at my age I shld even consider having the surgery since there are many complications that could arise from the surgery...I do feel like the weakness and pain has increased over the past few months..Any comments or suggestions wld be apprrciated...Thanks...
  • If the symptoms are increasing then it is time to revisit the surgeon for followup and re-evaluation.
    I have tethering of the spinal cord on many of my MRI reports as well.
    Perhaps a return to the neurosurgeon you saw, along with consults with at least two others would help you decide what to do regarding surgery.

  • advertisement
Sign In or Register to comment.