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Leg pain, but only when I lay down

I know a gazillion of us have leg pain. My seems to be a little different & I'm just wondering if anyone has something similar to mine.

It actually started before my back went "bananas", but was not an every day thing. It only happens when I lay down on one side or the other. Mostly my left side where I have bursitis, but the right side too.

Here's what I found strange; I'm far from a size 0, so it would seem that the side I'm lying on, which is the side bearing the brunt of my weight would be the side that hurts. Nope, it's the opposite, it's the side that's not bearing weight that hurts. The pain is a deep ache that can be in different parts of my leg, or all the way down the leg. Sometimes, in the front of my calf, I swear the pain is deep within my bone.

They only thing that makes the pain go away is if I lay flat on my back. Even when I tried epidurals & got good (but very short) pain relief it did nothing for the leg pain. Neurontin, as well as any & all PM has never touched this leg pain.

I already know it's caused by something in the back pushing on a nerve that's causing it. It just seems so different than what I've heard you all describe. It often wakes me in the middle of the night when I've rolled onto one side or another, but it goes away when I roll onto my back. Thank God, because if it didn't, I don't know what I would do, because the pain is intense & unbearable.

So I'm really _______because I can't sit, stand, or walk more than a few minutes without my back hurting, & when I lay down, there goes my legs.

Just wondering if anybody else has this type of leg pain, & if you found anything that works for it.
We can't always control the cards we are dealt in life, but we can control how we play the hand


  • That since my back & hip went "bananas" 2 years ago, the leg pain is every single day.

    The first time I got this pain was shortly after I had 12 bloodclots in my lungs, & I thought I was having a DVT. Went to ER, & all that was ruled out long ago.
    We can't always control the cards we are dealt in life, but we can control how we play the hand
  • What does your dr say about this? Have you ever tried the injections for bursitis?
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  • And it never did any good. My bursitus has finally improved some, because after my fall in October, I finally did what the dr had told me to do for 1 1/2 years, which is to stay off of it. But with a full time job, kids, dance competitions, that was never possible. The dr wanted me off work at least a month, but I had already been out for extended periods of times for previous surgeries, & was afraid to take any more time off, you know how that goes....

    Anyway, I fell at work in October, & it royally messed everything in my back up more. The only good thing about that mess is that I was finally able to be off my feet, the bursitus has improved some.

    The dr says it's from something in my back pushing on a nerve, which is consistent with what I've read from a lot of people about nerve pain. I've just never heard anyone describe leg pain like mine, so was just curious if anybody had this type of pain.
    We can't always control the cards we are dealt in life, but we can control how we play the hand
  • I have been suffering with something similar for the past week. Mine is in the back of my thigh just below my butt. Intense pain around 3am. I'm starting PT in two days for my SI problem. Hopefully they can help me. I need some sleep!
    Artificial disc at L5S1 for 10 years. Had 3 Level lumbar fusion and Laminectomy on Sept 27, 2013. It was an OLIF (Oblique Lumbar Interbody Fusion) with cages, BMP, rods & screws. Norco, Plaquenil
  • LC84LLC84 Posts: 599
    edited 04/08/2014 - 2:32 AM
    Is your pain accompanied by any numbness? Is it only in your legs, or do you feel it in your buttocks too? For me it's hard to differentiate between deep muscle pain, joint pain and nerve pain. I only have one side affected but the pain is constant no matter what I do. I can feel a deep ache, sharp and shooting, numbness, tingles, throbbing, etc. It happens a lot while lying down, even if the affecting side is up. It could be related to the positioning of your spine when you lay that way? You've probably already heard about laying with a pillow between your legs. Sometimes the surrounding muscles and joints can be affected when you have spinal problems, or walk incorrectly, or not enough. Did you have an MRI showing nerve compression? Are you in PT? Your DR thinks this specific pain is nerve related? Sometimes nerve pain can take many forms, at least in my experience. There is always somewhat of a sharp/shooting pain present, but it can be accompanied by those other pains I mentioned, along with severe spasms. Before my surgery sometimes I would get a little more relief by laying on the affected side. For some reason the pressure felt better then when the affected side was up. I'm not sure why.
    Progressive DDD
    Chronic S1 Radiculopathy
    Discectomy L5-S1 2002
    Discectomy, Laminotomy/Foraminotomy L3-S1 January 2014
    Bilateral SI Joint Fusion and 2 level spinal Fusion October 2014
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  • Wow! I'm so glad I found your post!, I didn't know how to explain it to anyone and you explained it perfectly. I have the same exact symptoms to the "T" I'm 36 and been having spine issues since I was 30 but it was only in the past two years my pain increase to where it affteted my daily life. I have had a survey in November of 2013 cause I couldn't take the sciatica pain so they did a shaving to release the presure off my nerves and that work that took care of the sciatica but my lower back was and still is in pain daily every morning my whole Spain pain is stiff to the point that I have to relay on strong mess to get me out of the bed in the morn, I'm able to function with the help of my meds but now I recently got another m.r. i and I have another disc below that is bulging again and im gonna need another surgery, something about a fusion this time because my bones are touching , the cartilage is thining at a rapid rate. Now in the past two weeks I notice the deep muscle pain in my legs when I lay on my side after a lil while of laying on either side I would get a deep muscle pain almost to the bone and the only relief I get is from laying on my back . Sorry for such a long post but this is the first time I'm able to get this of my chest and I guess I'm purging ..lol but I was just wondering if you ever found out is this something that means things are getting worse. I haven't had a chance to tell my doctor about these new symtoms yet but I'm going to see her in two weeks so I going to tell her than. What did your doctor say it was besides the obvious ( your back) if you don't mind me asking?
  • ChopperCChopper Posts: 7
    edited 05/29/2015 - 10:51 AM
    My husband has the same pain . He had a spinal fusion L4/L5 in Feb this year for back pain and sciatica. Immediately after the operation the back pain was gone but he experienced intense leg pain.
    He said it was like a vice on his legs and was sometimes the whole leg and sometimes just the calves or shins and feels like it can be deep deep inside sometimes radiating from his hip down his whole leg.
    Getting up and walking around helped so he was ok during the day but in agony at night and the pain meds barely helped.
    As the first 4-6 weeks passed the pain eventually subsided and we put it down to a random post op thing. But now it is back - with a vengeance. Last few days and nights have been relentless and he cannot get relief and you have to start wondering how many pills you can take.
    We don't know for sure what has triggered it but any advice or thoughts would be appreciated. This is emotionally and physically draining for me trying to help him so I cannot begin to fathom how mentally and physically and emotionally exhausted he must be. It is heartbreaking to watch and so cruel that as soon as he tries to rest that's when it hits!!
  • patrain17ppatrain17 Ottawa area, CanadaPosts: 106
    I've been experiencing pretty much the same here, but mainly on my right side. I sleep mostly on my side and it's my leg laying over. I have the same when on my back but I don't sleep much that way. It wakes me up at night and making it difficult to fall asleep again. I will have an MRI for my lower back soon but my neuro doesn't seem worried. On my part, I find it hard because it makes me tired all the time. I am tired of always being tired. I envy people who have tons of energy and don't know what to do with it.

    By the way, I am fused from occiput to c4 and because of the condition for which I had surgery, the rest of back is pretty banged up. I have a very narrow canal for my nerve to travel.

    Hoping for some kind of solution soon.
  • I thought I was losing my mind until I read these post. I have pain in my legs when I lay down and it is always the side that iam not laying on. I spend my nights tossing and turning and have become so worn out . I just tried laying on my back and sure enough the pain eased......But I know I will not be able to sleep on my back all night. I am going to go see a doctor now that I know iam not crazy and knowing others have the same problem gives me confident to go see a doctor now. I thank you all for the advice of laying flat maybe I can get some sleep until I get this problem solved. good luck and God Bless all of you on here

  • SavageSavage United StatesPosts: 7,385
    edited 12/27/2015 - 2:02 PM
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