I replied to a question 'Senate Bill 453 Pain patients Bill of Rights' was told the thread was old. I hope I'm reposting properly-Having a rough go of it at the moment. This is my current situation.
I have Ehlers-Danlos Syndrome, and have been maintained on 50mg Fentanyl for TEN years. The original scrip was written by an official pain clinic after failing more conservative treatments over a period of 15 years.
I was told to find a family physician near me that would write my scrip, which I did. Last Monday I went for a checkup/refill, and out of the blue was handed a paper with paragraphs put together from various sites: New Federal Law says take non-cancer chronic pain patients off narcotics, New Canadian studies show they aren't useful long-term.
I had a relatively normal life for ten years. I thought I had a good doctor/patient relationship. I asked him what 'long-term' meant; doesn't ten years qualify?
Came home, searched internet, made phonecalls. There is NO new law, NO new studies. Actually, there are studies showing the exact opposite. I feel betrayed, angry and anxious (which doesn't help my situation)
Doctor wrote scrip for 25mg patches, am to return Thursday for 12mg. After that, he will make a referral to a pain clinic for evaluation.I argue that it is backwards for a doctor who is not a pain specialist to think he can titrate my meds; that is the job of a pain clinic. I argued this with the office manager who still didn't get it.
I came home, went to State Medical Board site. After reviewing my right to adequate pain control "a doctor is required to continue current treatment until patient can be seen elsewhere" "a doctor who no longer wishes to treat a patient, must 'fire' the patient by U.S. mail, and provide 30 days of treatment in the interim". He didn't 'fire' me, as he says I can come to him for all other health concerns. Called Medical Board, talked to investigator, and was told I have a course of action against this doctor.
That is fine, but does not help me at the moment. The Pain Clinic (who btw wrote the original scrip ten years ago) is booked until end of Sept. I have called every doctor within 100 miles since Friday with no help in sight.
I began the 25mg Friday afternoon. Cannot sit long, fatigue, rebound pain at multiple sites, unable to use can opener, utensils, definitely can't drive. Trying to comply, because I have no choice.
Any and all suggestions welcome.