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upcoming surgery

so I am new here, and my ortho surgeon tells me I have ddd, thus needing a disk replacement as well as a fusion from l5 to s1. after two years of huge leg pain and weight loss(25 lbs) they find this out. he tells me I will be in hospital for 4 or 5 days after. here is my dilemma : upon relase from hospital I have no one at home to see to my care and from what I read about this and wht surgeon says I will be recovering for up to 12 weeks. Now I also read that this type of thing often fixes itself, altho I am doubtful of that because of the time already, any input into this is greatly appreciated thanks


  • LizLiz Posts: 8,835
    edited 09/23/2014 - 8:26 PM

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • The problem is the phrase Degenerative Disc Disease covers a 'multitude of sins'. Some don't even feel anything & others are crippled with herniations & nerve compression. If you have a surgeon saying its severe enough to require surgery I'd ask what the dangers of delaying surgery are & if he thinks it could be treated with conservative measures. I think it's good to get 2nd & 3rd opinions so you can put your mind at ease that you're making the right choice for you. The longer a nerve if impinged the longer it takes to recover, if at all. Severe nerve compression often requires surgery, it won't fix itself with time. You need a specialist to examine you, study your diagnostic test results & possibly perform some more.

    Although I have my husband & my little kids I'm very isolated. I know how terrifying it is trying to cope alone. If surgery needs to be done you really don't have a lot of choice. There's some great advise here on preparing your home for post surgery recovery. Do you have anyone who could stay with you for the first week or so just so you can get settled in?
    Osteoarthritis & DDD.
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  • I can retaliate to you!!
    I m 32y old female and have 2 small kids (1,5y old and 3y) and 13y old.
    I have my mom, who takes care of my kids since I m not able to do anything and god only knows when I can do anything.
    I d not mind to take care of myself but I m not able to take care of my kids for moths after my surgery.
    Also my bf was supportive but after my surgery not helpful at all..and only causing more stress.
    36y old female, s1-L5 micro discetomy 18th of September 2014
  • sandisandi Posts: 6,269
    edited 09/29/2014 - 3:14 PM
    You can hire a mommy's helper........contact your local high school and ask for the child care teacher.....they can recommend a few students, to come and assist you after school with the baby, taking care of things that you can't do. It is alot cheaper than a nanny, and most teens who are in the child care programs are very, very good with children.
    You will be able to lift your child, sooner than a year, but you do need to be careful when you do, once your surgeon clears you to do so.
    You will need to learn proper lifting techniques, and use them religiously to prevent further damage, but it is not as gloomy as you think........once the disc heals, and scars over, you will be able to resume most of the things you did before the surgery.
  • When my daughter was only 9 months old she could toddle over to me & sort of wiggle herself up onto me on the sofa. I'd kind of hitch her up with one arm. People thought it was so cool. They loved out little routine...it broke my heart! My kids have never known what it's like to have a 'normal' Mum. My son turned 8 in July. When he was a baby I forced myself through the pain. He was 10lbs when he was born & I hate to think of the further damage I caused myself. The worst invention ever for a spiney are those 'travel systems' (car seats you put into the push chair then lift into the car) I ended-up collapsing in floods of tears by the car before I dragged myself into the drivers seat on several occasions.
    By the time my daughter was born 4 years ago my spine degeneration was in full swing & all that was impossible no matter how hard I tried. You will find a way, your own routines for doing things. Wrestling with a headstrong toddler can be a living nightmare. It does get easier...that's what I keep telling myself! It's been incredibly hard but it's all worth it. It really is. The space behind my legs when I lay on my side on the sofa is called 'The Snuggle Spot' & it's the most prized position in our house! We have a lot of picnics because I can't sit without excruciating agony...the kids don't know the reason. They just think we do fun things!
    You will find ways to make your life work for you. When you can, get out & join the local 'Moms Club'. The women will be so supportive & helpful. My only advise is don't feel guilty & over do it & don't allow yourself to become too isolated. If you have a bad day try not to dwell on it. Promise yourself you will do better tomorrow!
    I have to drag myself out of bed no matter how I feel & 'fake it' for my kids. I have mega pity parties occasionally but in hindsight it's been good for me. Fake perky & happy has a way of becoming real more often than not as time goes on. You have to become a fighter if you're not already. You & your kids deserve it. I'm not saying its sunshine & roses all the time in our house. I hate my pain but I love my life & I love my kids more than words can express.
    Osteoarthritis & DDD.
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    36y old female, s1-L5 micro discetomy 18th of September 2014
  • AprilAApril Posts: 41
    edited 10/01/2014 - 4:54 PM
    Thank you of the support. I do have a full time help from my mom as I d mess up my new operation if I was wrestling with 1,5y old or even 3y old when she on her wild mood. However I ll need to hire a live in one now. Since she tired...
    36y old female, s1-L5 micro discetomy 18th of September 2014
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