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Spina bifida & pain in coccyx

Mark47MMark47 Posts: 2
edited 10/04/2014 - 5:49 AM in Lower Back Pain
For many years I've been tracing my family history and over the last week or so I have been trying to locate the burial place of my auntie who died aged 13 days in 1948. The cause of her death was spina bifida and since I didn't really know what the condition was, I googled it and found this website. I was surprised to see a link between spina bifida and problems with the coccyx.

I mysef have suffered with quite severe but bearable pain for years. (I certainly remember not being able to sit crossed-legged for long in a sports class at school when I was 13 and that's over 30 years ago!) I have also read that spina bifida can run in families and wonder if I too could have the "occulta" form of the condition.

Two or three years ago I went to my doctor, having become tired of the pain in my coccyx. An x-ray was done but nothing in particular was found. I'm fairly sure he was looking at the condition from a point of view of arthritis. Is it possible he missed spina bifida occulta?

I would be very interested to hear from anyone who may have comments to share.

Many thanks in advance,




  • Xrays are only done to see if there are fractures, tumors in the bone, and to check alignment of the spine. They are not the best option to see if there is another abnormality in the spine. Your best option would be to consult with a board certified spine surgeon , discuss your family history and see if he thinks that your symptoms may be related to spina bifida occulta. If he does, then he can order the proper imaging studies to be done to determine whether it is the case or not.

  • Many thanks for your swift reply Sandi. The impression I got from my doctor was that I should grin and bear the pain. I'll think about going back.

    Best wishes,

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  • If your primary doctor dismisses your complaints and seems disinterested, then a board certified spine surgeon would be your next option.

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