Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

advertisement

Quick Start Forum Video Tutorial

    Forum-Tutorial-Screenshot
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

Notice
All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

The main site has all the formal medical articles and videos for you to research on.
advertisement

Pain after ACDF C6-C7….Please somebody help me?

David-ItalyDDavid-Italy Posts: 10
edited 11/28/2014 - 4:47 AM in Back Surgery and Neck Surgery
Hi,
I'm new…And new to cervical spine surgery.
I had ACDF C6/7 4 weeks ago. The first two weeks I had no pain.
Now, going into week 3 and 4, pain is coming back.
No neck pain, but aching pain in the left shoulder, armpit, left arm…Just as before the operation, it really hurts if I cough.
But this "new" pain is hard to understand…

Is it because the nerves are waking up…? How long might this take…? It seems a little worse each day.
I take a walk every day, wear soft collar.

Please, can somebody enlighten me with their wisdom. After the first two weeks of being pain-free I thought "YES!"…But now I'm a little depressed and unsure what is going on. I can't see a NS for a good few weeks. I'm dependent on the Italian State Health system. I can't just pick up a phone and talk to someone…

So please, don't wanna sound pathetic but would really appreciate some good, honest feedback on this post-op pain.

Many thanks,
David
ACDF C6-C7
advertisement
1

Comments

  • Doug HellDoug Hell Posts: 332
    edited 11/25/2014 - 6:40 AM
    Don't sweat it... There will be ups and downs throughout your journey. This is all just part of it.... Give yourself some time...It isn't a bad idea to read up on the procedure you had. Knowledge is power! Good luck.
    Realize that FEAR is our worst enemy. Get up & get out in that stormy weather of the real world & kick fear in the teeth. Stare at it dead in the eyes & walk right through it into the storm; because once you're wet, you won’t fear the rain anymore
  • advertisement
  • Interesting surname!
    Thanks so much for writing.
    I hear what you say. It's a journey….
    I did a ton of research on the procedure before I went into hospital…And spent hours reading forum posts. Heard good and bad stories, but decided to go ahead.
    I didn't realize the psychological side of post-op recovery…I put all my trust and hope into the operation, hoping it would do the trick…and so when there are doubts, new pain, a lack of information etc…it can get to you.

    I just feel there is a great lack of information regarding the post-op pain, recovery etc…It's like, Ok, you've had the operation. I feel like there is a real "compassion fatigue" amongst doctors, even people I know. I understand it…It's just so frustrating and depressing at times. The pain is still there…People just don't understand that this pain is a constant companion….They don't see it, they don't want to see it, but it's there, it's personal…
    Just want my life back….

    Enough for now…
    D.
    ACDF C6-C7
  • My first 3 weeks following c5-6 were awesome. Week 4 starts tomorrow and I'm in a tremendous amount more pain and I dont know why. All I can do is try to move forward and think that we just need to give it time. I think mentally we need to have a positive attitude. I'm hoping in a week or 2 I will be feeling much better. Keep us posted on your recovery.
  • David-ItalyDDavid-Italy Posts: 10
    edited 12/09/2014 - 12:07 AM
    Thanks guys for responding…Sorry for the delay in writing.
    You sure put things into perspective Doug. I'm really hoping things improve for you…In all aspects of your life.
    Can I ask what exactly was your surgery?
    Hi yogarunski. How are you feeling now?? I'm pretty much the same, although I think the cold weather is not helping the muscles! I'm using my soft collar much less, and don't have any neck pain…It's just this weird shoulder and arm pain that persists…
    Someone said recovery should be measured not in days, or even weeks, but months. Perspective is everything I guess…

    Take care guys.
    ACDF C6-C7
  • advertisement
  • With every surgery comes every story under the sun... The procedure is the same, yet we all have our own unique set of circumstances, hence the recovery process is very different for each individual....

    I understand the mental aspect that goes along with the physical pain. We all understand that here, so we need to band together and support one another through our hour of need..... It still "gets to me" 11 months later! I too just want my life back, yet my GP and my NS just advised me recently that I'm not ready to return to work physically or mentally... So here I am with a young family trying to make ends meet....

    Your surgery is relatively new, my Friend. This is the acute phase, with much healing to still to come so hang in there....In a week or two, things will more likely than not change yet again. My journey has been a Roller Coaster ride to say the least. You are still healing from your surgery and it is just way too soon to fall into that hopeless mind frame. When you are feeling this way, deflect. Force yourself to think and/or do something else and you will find that it works. Find an outlet and utilize it.

    Don't put your trust in people that haven't gone through it and/or are not going through it. They just don't understand it and you really can't hold them accountable for it either. If you don't expect anything, you will never be disappointed, so expect nothing! What you need to do is focus on getting better. FOCUS on YOU. Give your mind a break and give your body some time to heal!

    If you need to talk, I'm a private message away. Wishing you all the best in your recovery.

    _D_

    Realize that FEAR is our worst enemy. Get up & get out in that stormy weather of the real world & kick fear in the teeth. Stare at it dead in the eyes & walk right through it into the storm; because once you're wet, you won’t fear the rain anymore
  • Hi David

    I'm glad I could put SOME things into perspective for you, but at the end of the day, remember it is up to YOU. I don't care what kind of support system you have. YOU call the shots and YOU make it happen or not happen. YOU can be miserable or YOU can push to enjoy the things that are still enjoyable. Hanging onto yesterday is a losing battle. Your quality of life hangs in the balance. Hold those reigns and fight to enjoy life! Wishing everyone the best as always....

    -D-



    MY SURGERY:

    4 level posterior instrumented fusion w/ radiculopathy + compression (C5 - T2). Essentially, I broke my neck and my back. I had fractures, a burst fracture and dislocations....
    Realize that FEAR is our worst enemy. Get up & get out in that stormy weather of the real world & kick fear in the teeth. Stare at it dead in the eyes & walk right through it into the storm; because once you're wet, you won’t fear the rain anymore
  • David -

    I am 4 weeks post-op for C6-C7 ACDF too. My first week was obviously painful, but the next two weeks were much better (except for fatigue). I was off of work for three weeks and now am back (computer work). Ever since returning to sitting at a computer all day, I have burning/aching at the base of my neck and right side upper back. My left arm pain is gone, but now I have painful muscles. I'm worried too that this will just be the way it is from now on. I also get the sympathy fatigue. My coworkers and family were supportive of my struggles pre op, but now I feel like I can't really mention that I'm still in pain. I just grin and bare it and watch the clock until I can get home, take some meds and rest. I know this is going to be a long journey and that 4 weeks is still early in recovery...I was just caught off guard that I felt so good and now I'm back to pain...different pain than before :(
  • Hi Sarahk.

    Administrative and/or "computer" work is probably one of the worst things for someone with a fusion PERIOD. It will absolutely cause increased pain along with potential for future problems. It doesn't surprise me in the least that you are suffering significantly with the symptoms you have explained. Think about a fusion and then think about bending your head up and down all day long while in a seated position. My recommendation would be to sit down with your NS and clearly ask him what he thinks about it.
    Realize that FEAR is our worst enemy. Get up & get out in that stormy weather of the real world & kick fear in the teeth. Stare at it dead in the eyes & walk right through it into the storm; because once you're wet, you won’t fear the rain anymore
  • Hi Sarahk,
    First, thanks for replying. It's kinda cool to know there is another person having has the same op at the same time. We must must must compare notes..!
    But I'm in agreement with Doug there. I'm still at home 6 weeks post op. The thought of sitting at a computer all day just 4 weeks after the fusion.... Man.. I take my hat off to you, and I'm sure you had the "ok" from your doctor...
    ACDF C6-C7
advertisement
Sign In or Register to comment.