I just had to vent here. I've got a rare congenital spine condition known as Bertolloti Syndrome (feel free to google it). Because of this
my pelvis pulls around my lower vertibrae when I walk, and puts pressure on it when I sit or lay down. It didn't cause me much trouble until I was 22 years old.
I am 27 now and re-injured my spine herniating l5-s1 disc. Horribly aggravated by Bertolloti. Newest MRI shows two rapidly degenerated discs, bone spurs, arthrosis, and some other things I cannot
pronounce. Have sciatica for the first time in my life. My leg goes numb, sharp pains in my toes, and both of my legs are really weak. Hobbling around like an idiot.
Going for my second epidural steroid next month, in physical therapy again and doing all that I possibly can to stay active and recover. It's hard to
use a cane, I get weird looks. I'm in shape and not hard on the eyes, so people are confused "you don't look sick or handicapped" glance.
Despite not being able to sleep for more than 3 hours a night, moving out of bed with my wife to the floor to prop my pelvis up with a pillow... I am still treated
like garbage by doctors.
It's like pulling teeth trying to get medicated, and I'm still not. I'm thinking of taking to the streets. I don't know how I'm going to function like this with zero rest and barely able to make it up the stairs in my 3 floor townhome and struggling
to even put on my shoes.
Right now I'm looking into the process of expatriating to a nation with a decent standard of living and medical care that will treat me with compassion instead of like a criminal. It should be easy considering I am a software engineer with a background in Botany. I will drain my savings to do it.
I hope you all find relief, I will find mine one way or another.