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I'm only 17 and I've been suffering for a long time tried many options and out of hope

some17kidssome17kid Posts: 2
edited 02/09/2015 - 6:05 PM in Chronic Pain
ok so let me just start with saying its 11:04 pm while writing this post from bed therefore i may forget a few things and if any questions are asked to grasp a better understanding on my condition please let me know and i'll give my best knowledgable answer.

i don't want to blame a previous accident but i think it's important that i mention when i was about 12-13 i got in a bike accident and dislocated my right elbow.

so let me start by explaining what's really going on in the basics then i'll post what i've tried to attempt to fix this issue.

so for whatever number of years i've lost track i've had an issue with the backside of my neck stretching to my right shoulder. i'm being vague because i honestly cannot pinpoint the pain ever because i've been enduring it so long. my best description is: sometimes i think it hurts right along my scapula and most of the time it feel like it's to the right side almost as if under my spine. the pain doesn't travel to the left side of my back ever. i almost just want to dig right under the spine because it feels a little better compressing with my fingers in certain locations there. i would also like to point out that when laying the pain is slightly worse and is at the worst point the morning getting out of bed then it settles a bit after a shower but never reaches a non-painful point

neck: my movements aren't too great. i can bend left, right, turn left right(little tougher to left but no issue) bending back will sometimes hurt and usually "cracks" and that part hurts like crazy. i can hardly bend my neck forward then i get pain about like the 6-9th vertebrae (can't really pinpoint) i do have like 3-5 bulged vertebrae that kinda stick out in that location. rotating my neck will also give me horrible cracking/grinding and hurt most of the time.

shoulder: my right shoulder has an issue (this is why i pointed out my bike accident) where it pops if brought lower and moved forward. pops about 3 times i can feel it against my front rib and after excessive online research i want to say it's snapping scapula syndrome. (not positive)

the thing with this issue is all the help i've tried to get as well as i, myself can't figure out where the pain is coming from and how to fix it. is it mostly my shoulder? my spine? is the shoulder tissue effecting my spine? is it my collarbone? ok whatever i will now mention everything we have tried to do and spent thousands of dollars getting nowhere and i'm still in pain and depressed.

1. a couple years ago we first started with a chiropractor. he took x-rays and said i had minor scholiosis(spell check can't save me) he put me on his regular routine and his "adjustment" lasted me one neck bend down or sometimes half then it's gone. left after about 12 adjustments.

2. family doctor, i scheduled it as back pain and he put me into 4 weeks of physical therapy which was extended into 6 weeks. therapist tried everything and really wanted to help me but with no luck. the focus in therapy was neck movement so i suppose muscle focused also a bit towards the area between my shoulder blade/spine. when i think i somewhat found a bit of pain when she pointed at vertebrae she said maybe its a pinched nerve? so i had an mri done(back only not sure if focused to shoulder) and there were no results.



here i am all hope is given up plenty of money spent not much progress. im upset and in pain, parents are upset that i'm not fixed.

i might give something else a shot if highly suggested i suppose. no clue what to do at this point...

*********************************************************************************************************
welcome to spine-health


it would be very helpful if you could provide us with more details. so many times we read about members who have different tests and they all come back negative. isolating spinal problems can almost be like the game of clue. the more clues and information you provide, the better chances in finding out what is wrong,
here are some questions that you should answer:
  • - when did this first start?- was it the result of an accident or trauma?- what doctors have you seen? (orthopedic, neurosurgeon, spine specialist, etc)- what conservative treatments have you had? which ones?- what diagnostic tests have you had? and their results (mri, ctscan, xray, emg, etc)- what medications are you currently using? (details, dosage, frequency, etc)- has surgery been discussed as an option? (if so, what kind)- is there any nerve pain/damage associated?- what is your doctor’s action plan for treating you?

providing answers to questions like this will give the member community here a better understanding
of your situation and make it easier to respond.

please take a look at our forum rules: forum rules

please remember that no one at spine-health is a formally trained medical professional.
everything that is posted here is based on personal experiences and perhaps additional research.
as such, no member is permitted to provide
  • - analysis or interpretation of any diagnostic test (ie mri, ctscan, xray, etc)- medical advice of any kind- recommendations in terms of medications, treatments, exercises, etc

what could be good for someone could spell disaster for another.
you should also consult your doctor to better understand your condition and the do’s and don’t’s.


it is very important that new members (or even seasoned members) provide others with details about their condition(s). it is virtually impossible to help another member when all the details we have are

i’ve had this for years, it hurts, i cant move my shoulder – what could this be, what treatment should i get?

diagnosing spinal problems can be very difficult. in many ways its like a game of clue. especially, when the diagnostic tests come back negative – no trouble found! then its up to the patient and the doctor to start digging deeper. the doctor is like a detective. they need clues to help them move along. so, you as the patient need to provide the doctor with all sorts of clues. that is like it is here. without having information about a condition, its impossible for anyone here to try to help.

if you suspect any real spinal problem, than i would stay away from any chiropractor. most of them are not properly trained to deal with the discs and the spinal cord. treatments by them can potentially cause you harm.
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--- ron dilauro, spine-health system moderator : 02/10/15 00:02
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1

Comments

  • dilaurodilauro ConnecticutPosts: 13,434
    edited 02/10/2015 - 7:05 AM
    with caution..

    As in any professional, there are good doctors and then there are those that are not so good. You do want to surround yourself with the better doctors. The doctors who are detectives and go beyond the normal set of diagnostic tools. There are so many out there and that is what they should be doing.

    The internet is great, you can find anything. But many times people start to search and they search diagnose themselves. They read about a symptom on Monday, thats it they have it, its an autoimmune problem, then on Tuesday, they read another symptom, migraine headaches, thats it , I have it. and so on and son on. It gets to the point where the lay person already has identified their problem and knows more than the skilled doctors know. VERY VERY Dangerous.

    But when taken carefully, doing your research is important. You want to understand the most about a given problem.
    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences 
  • itsautonomicitsautonomic LouisianaPosts: 2,561
    First off tests often are not representative of what is actually going on, they miss things many times. Second so do doctors, I have seen enough to know many are not detectives they go off scans/tests and when they are negative you are not in pain or they cant help you. They are no different than any occupation in the world, some are great, some are good and others are average or below average. Unless the doctor went through a detailed history with you, used their hands to find your pain areas , worked to eliminate other issues that may be causing pain and above all if you did not leave that appt thinking this doctor is like a detective then most likely they are not. It is that obvious.
    Begin to research your symptoms and explore online, its amazing what is out there and can help you and it never hurts to speak to the doctor if something matches your symptoms exactly ( using common sense that its online and many symptoms overlap many conditions). You gave the doctors you saw time to find issue and they have not, now you need to take things in your own hands. Find the top teaching hospital close by or top doctors and seek them out or ask your doctor for a referral . Proper diagnosis equals proper treatment , vise versa. So many times its as simple as getting to one of the great doctors and everything changes.
    Get your parents on your side and find out whats going on, may be something easily fixed. Your doctor is not going to be depressed and lose sleep if they cannot find answers, thats why you need to advocate for yourself. You know your body best and that is the single biggest clue in finding a diagnosis.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
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  • itsautonomicitsautonomic LouisianaPosts: 2,561
    I agree, but I do firmly believe search diagnosing is many times a product of helplessness when doctor cannot find whats the issue causing so much pain, depression etc. No one wants to have to resort to that, but it does give you back some form of control and not sitting on sideline even if you never find anything that sounds like what you have. It is a fine line though not to bite on everything that sounds like what you have. I personally feel the information online for me has been nothing but beneficial medically for speeding along diagnosis, doctors, treatments. The things I learned have been invaluable, but very overwhelming in sheer amount.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • dilaurodilauro ConnecticutPosts: 13,434
    edited 02/10/2015 - 7:49 AM
    that may be true in your case.
    The information as the super internet highway.

    But, you do have to remember, so many people believe everything they read, want to hear everything they read is what they want to hear. People who think they are depressed, read a few articles online and they they are convinced they are depressed. Now that is depressing!

    AGAIN LETS STOP....
    This is a thread about the OP, not the merits of anything else
    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences 
  • dilaurodilauro ConnecticutPosts: 13,434
    Many times, doctors will look at the younger members at being so much stronger than the older folks. And for the most part that is so very true. What is fact is that the younger folks can rebound and recovery quicker and stronger than older folks.

    I always think of the conservative routes at your age. No need to go into all the expensive diagnostic testing UNLESS your doctor feels it is warranted. So far, there hasnt been anything that can identify the situation you are in right now.

    Time can heal so many problems, especially if they are not serious.
    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences 
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  • dilauro said:
    Many times, doctors will look at the younger members at being so much stronger than the older folks. And for the most part that is so very true. What is fact is that the younger folks can rebound and recovery quicker and stronger than older folks.

    I always think of the conservative routes at your age. No need to go into all the expensive diagnostic testing UNLESS your doctor feels it is warranted. So far, there hasnt been anything that can identify the situation you are in right now.

    Time can heal so many problems, especially if they are not serious.
    Thanks for your reply. I've had this issue for about 4-5 years and it's never improved. The biggest question I really have is what kind of doctor should I pursue and with what main focus? (Neck or shoulder area). Having this issue so long clearly means it's not going to disappear and maybe even worsened. I've gotten really tolerant to pain but it's still killin' me.
  • I'm 16 and live with chronic pain too. My pain started when I was 14 after a spinal fusion and now 3 spinal fusions later I am still in pain. Have you seen an orthopedist? I have heard that sports medicine doctors can be great too, maybe in your case this would be helpful. With doctors I have learned that you need to show them your concern as a whole. What I mean by this is you bring them your symptoms, tell them about the biking accident, and ask whether that could be the contributing factor of the problem. Also don't look at the Internet! Many times the Internet can be helpful but more often than not it begins to give you a whirlwind of chaos and confusion. I personally try acupuncture and massage and find that to be helpful. Tests may or may not be helpful and it matters who is reading those tests. For example, before my last surgery I was having major problems with my neck and severe pain with new symptoms popping up. I went to the ER and the radiologist there said my XRays looked perfect, my neurosurgeon didn't agree though and asked the neuro radiologist to take a look at it and he diagnosed me with loosening of my Cervical fusion screws which were placing pressure on my spinal cord. Does your doctor know you're in pain? I have had doctors who I have told I was in pain but they didn't pay attention until I finally explained how much it is impacting my life. Your strong! You can always PM me if you need support :)
  • So sad about your story. With regards to the pain you are experiencing , it always best to have a specialist doctor with several years of experience to provide you the right treatment. Pain medicines can provide your relief but it can be addicting too.
    PAIN can CHANGE you, but NEVER let it DEFINE you.
    Treat arthritis pain
  • Doug HellDoug Hell Posts: 332
    edited 02/12/2015 - 1:40 AM
    Start with a Neurosurgeon and/or an Orthopedic Surgeon. It is time for you, my Friend, to take the next step. This is your life. TAKE CONTROL. Do NOT take NO for an answer.

    Best of luck. keep us posted.

    -Hell
    Realize that FEAR is our worst enemy. Get up & get out in that stormy weather of the real world & kick fear in the teeth. Stare at it dead in the eyes & walk right through it into the storm; because once you're wet, you won’t fear the rain anymore
  • LC84LLC84 Posts: 599
    edited 02/12/2015 - 5:16 AM
    Did you happen to get a copy of the report from your MRI? I always get copies. It's good to educate yourself only to the point where you can ask your Dr valid questions. If you're concerned about it possibly being your shoulder, I would seek out the opinion of an orthopedic surgeon to view your MRI and make recommendations of what to do next. An orthopedic specialist can look at both your spine and shoulder. Just because you see a surgeon doesn't mean that you need surgery, it's having a specialist in that field look at your MRI and evaluate your neck/shoulder through a thorough physical exam. It sounds like you have yet to be referred to a specialist. I would talk to your family Dr about a referral to get another opinion. I would start keeping a pain journal so you can better identify the pain. You may also see patterns of when the pain gets better or worse, where exactly it's located, how severe the pain is etc. The more details you can give your Dr the better. History and physical exam are two major components in diagnosing the problem, or at least giving the Dr a direction to go in. How long ago was your MRI and have your symptoms worsened since? Are you currently receiving any treatments or recommendations at this time? You need to be persistent if the pain is that bad. Make sure your Dr knows just how much pain you're in. If treatments didn't work for me, I would always asked my Dr "what's next?" Don't give up on finding out what's possibly going on, especially if it's affecting your quality of life.

    I wish you the best.
    LC
    Progressive DDD
    Osteoarthritis
    Chronic S1 Radiculopathy
    Discectomy L5-S1 2002
    Discectomy, Laminotomy/Foraminotomy L3-S1 January 2014
    Bilateral SI Joint Fusion and 2 level spinal Fusion October 2014
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