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SPINAL CORD STIMULATOR ADVICE PLEASE

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Comments

  • I have had my Medtronics rechargeable unit since December 3, 2007. I have to second the comments about getting some of our lives back. Mine has given me a second lease on life and I am now able to do things I haven't been able to do in over 13 years. It is my little miracle machine.

    I hope this is so for you, too. Best of luck to you.

    Amy :)
  • hi love the tattoo!!.is it yours?..i am glad that you are having less pain and can do things that you have not done for years..due to your pain..i am goint to see about having a scs within the next 12 weeks.i just hope that i am a suitable paitiant for one ..as i am in a right state at the moment .i am unable to do the most simplest of things with out being in teribal pain..i feel very old!!.all i do is lay in my recliner and take pain killers..not much of a life for a 42 year old married man..sorry to here about your husband{my wife lost her father by suicide 7 years ago so we know a little about that kind of pain too}..thanks for the advice you can always email me if you want a private conversation tony.beer1@googlemail.com..godbless tony
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  • Hi Straker, I have a very best friend that has had the spinal cord stimulator for 3 years now, and according to her the amount of pain relief she is getting from having it is AMAZING :O She says she will never give it up. But she also still has to continue pain medication but not nearly as much as she did before the SCT. Also, you need to be aware that there is a box (size of cig. pack)that is in your back just under the skin that will be there permenant, or as long as you have stimulater. also, the battery in the box has to be changed every 5 yrs.(for her)which is a small surgery to take box out,but it's fast, but none the less it's a surgery. The box can also be uncomfortable to lay on at night,or even how you sit can be uncomfortable as well. When driving it's hard to turn your head and look over your shoulder,or to twist in that motion, all due to this box. So that takes some adjusting to get use to. You also have a small remote control box you keep with you all the time,in pocket,etc;; and thats how you control the pain through the stimulator. The surgeon sets it at a certain level that will control your pain and as you go along and you feel uncomfortable or maybe a worse pain day than others, then you can turn the remote differant levels until you feel relief. Also, If your real thin then this box that stays under the skin will be very uncomfortable on a daily basis,until you really get use to it or as much as you can anyway. Thats the most complaint my friend still has about hers is finding a comfortable position to sit or lay in when she is trying to relax or sleep.Where theres a will Theres a way :) I guess. I hope this info. has been helpful to you, and I wish you the best of health and luck with this. smallfrie
  • I'm really surprised your friend has such a large implant. Are you sure it's a SCS implant? A pack of cigarettes is HUGE compared to the size of implants on the market, even 3 years ago.

    I have the Medtronic implant and it's only about 1 1/2 inches tall, 2 1/3 inches wide, and 1/3 of an inch thick. It's about the size of a pocket watch and much, much smaller than a pack of cigarettes.

    I've only had my implant a couple of months and now that the incision pain has gone away, I hardly notice the box. In fact, I have to struggle a little bit to find the box and get my charger lined up when I need to recharge it.

    The way you describe your friend's implant, I don't know that I would have gone through with it, even with as much relief as I get from it! My trial stimulator was about the size of a pack of cigarettes and I can't imagine having that implanted permanently. :?

  • Yes.... she (the tat) is mine. She is on my left upper arm and I love her!! I love the old time pin-up girls and she represents me. She's tough but sexy and cool.... ready to take on anyone or anything. All of my tats have a deep meaning for me so you won't find any silly little cartoon characters on my bum or anything... lol.

    On my right arm I have alot more art. I am working on finishing it as a short sleeve. I have Kanji symbols for the rat and the dragon (my kids zodiac signs) next to the signs for son and dtr. Then there is a large Koi fish with a lotus flower below that... it's huge and also a fav. In Japanese fables, Koi fish eventually become dragons. It represents my strength and constant changing. The Koi starts slightly below my upper arm and ends above my elbow. It's hard to get a picture of it since it is my whole upper arm but I will try to and then upload that pic too.

    As far as the stim goes, I hope and pray that you are able to receive one as well. It really is a miracle in a small box. Thank God for the technology.

    Thanks again,

    Amy (~the Buns~)
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  • i posted a link to another thread about scs...i know c personally , she is one of my best friends and she is doing great with hers...better than she even thought she would do. anyway , i thought that maybe you could hook up with c to ask questions , she is great at helping others out. i hope this helps....please keep us posted as to what you decide to do and how you are doing.....take care....miki


    https://www.spine-health.com/forum/pain-management/those-scs-do-you-ever-feel-youre-cheating
  • I'm in London and was told yesterday that after epidural injections and pulsed radio frequency that didn't work that my options were either a third surgery or a spinal cord stimulator. My consultant told me that it wasn't curative that it may help for a short term but I'm sent to another surgeon for a review to decide what's best.

    The thoughts of either scares me and I just don't know if I like the idea of a SCS but I really don't want a third op either. I've been on different meds which haven't really worked and have left me feeling crap.

    Are you having a SCS?

    Cx
  • it looks like you and i are at the same point in time regarding scs..i too have had 2 ops both failed .the last one has made me a cripple! the pain from my lower back is hell and before the op i only had pain in one leg now i have pain in boths legs!.on the 19 aug 08 i am having an epidural ..never had one before hope it works because i carnt go on as i am .i am waiting for an appt to see weather i would be suitable for an scs.i an having second thought though because my pain is a 50/50spilt back/leg i have been told that a scs wil not do anything for back ache.some ppl say they have a flare up regarding pain ..i dont! i have pain 24/7 it never goes away.only the oxycodone takes the top of it.but i am taking so many of them at the moment.just to stay on top of the pain..i dont know what to do .i have never been so ill in all my life.i spend all day on my recliner not because i am lazy its because i am in so much pain..i hate it!! i will shut up now and try to get my 3 hours sleep before the pain team stick me in the back with a bloody big needle!!.good luck to me STRAKER
  • Before I had my second Fusion at L5/S1 I went to see a Chronic Pain Physician about this device and he suggested this to me . I later found out I had fractured the First Fusion and set about getting it fixed . The Sciatic Pain however has not eased and I am in a lot of Pain . I am very sensitive to any medication and this makes my positoion very delicate. I was given all the information , including a video on this device and I only read a little and did not watch the Video . Can't find it , looked everywhere. You have helped me understand what this device is all about and I hope soon that this opportunity comes my way again . This Pain is so hard to endure . Good luck and I hope anyone who is about to have one installed the greatest of success. It sounds awesome !
  • I know that the stimulator is quite expensive, but, a little relief from agonizing pain is better than no relief from agonizing pain. I have had my scs since March and it has helped me in more ways than I even realize. My dad had to have bypass surgery in June and I spent 2 weeks at the hospital with him, after driving 6 hrs to be there, and slept on these chairs that pulled out into a cot. I NEVER would have been able to do this BEFORE I had got the scs. I wouldn't have even been able to make the drive. Does it take all my pain away? NO, but it does ease it enough to allow me to do things that I wasn't getting to do. I have sciatica and back pain too. The scs helps with the sciatica A LOT, the back pain- not as much. I was afraid that my doc would stop treating me with meds after I got the scs, but he didn't. He realizes that I'm still in a lot of pain and he wants to help as much as possible, Thank Goodness!
    Good luck with your next treatment and with your decision about the scs. Oh yeah, I don't know where it's posted on this site (ask a moderator) but I watched a video that someone had posted about the implant surgery. If you can find it, watch it. I thought it was VERY helpful!
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