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In terrible pain. Have been diagnose with Fibromyalgia

thomasgumtthomasgum Posts: 1
edited 03/22/2015 - 7:05 AM in Fibromyalgia
Dear Sir/Madam

I have pain along my spine. It is a throbbing pain. I cannot sit up for too long or stand for too long. I need to lie down constantly throughout the day to have relief. I have a constant pain at the back of my head, this pain may get out of hand throughout the day and it gets to the point of me having to take naps throughout the day, this pain is unbearable. When I walk my knees jerk and it feels heavy to move. I have done an MRI for the spine last year as well as a nerve test, they cannot find what is wrong. However, I did a posture test and the chiropractic doctor told me that there was a shift in my neck and spine. I have seen an orthopedic doctor who made me go through the nuclear medicine bone test. The orthopedic said there was nothing wrong and he said he does not know what is going on. The orthopedic told me before the test that if that if I am 21 who will I survive when i become 40. He told me that I should go and get a new life.

I have seen the rheumatology doctor, the nerve doctor , and the brain doctor, they have all pointed to the pain management doctor. I have also gotten a psychologist input at an mental institute. She cleared me from any psychological illness, she asked why was I there and that there is nothing wrong with my mind. I am currently seeing a acupuncturer who told me to do a an MRI again to make sure that there is no tumor. I feel like crying every night as my pain does not allow me to function throughout the day. The pain behind my head does makes it difficult to read and concentrate for long periods.

If anyone could shed some light on this, I would be very grateful. I thank you again for viewing my post.

Welcome to Spine-Health

It would be very helpful if you could provide us with more details. So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong,

Here are some questions that you should answer:
  • - When did this first start?- Was it the result of an accident or trauma?- What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)- What Conservative treatments have you had? Which ones?- What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)- What medications are you currently using? (details, dosage, frequency, etc)- Has surgery been discussed as an option? (If so, what kind)- Is there any nerve pain/damage associated?- What is your doctor’s action plan for treating you?

Providing answers to questions like this will give the member community here a better understanding
of your situation and make it easier to respond.

Please take a look at our forum rules: Forum Rules

Please remember that no one at Spine-Health is a formally trained medical professional.
Everything that is posted here is based on personal experiences and perhaps additional research.
As such, no member is permitted to provide
  • - Analysis or interpretation of any diagnostic test (ie MRI, CTscan, Xray, etc)- Medical advice of any kind- Recommendations in terms of Medications, Treatments, Exercises, etc

What could be good for someone could spell disaster for another.
You should also consult your doctor to better understand your condition and the do’s and don’t’s.

It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have are
I’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?

Diagnosing spinal problems can be very difficult. In many ways its like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then its up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.

Specific comments :
Since all of your tests have come back negative and no one can find a problem, I would take all of your results and see another spinal specialist

Personal Opinion, not medical advice :
When all tests prove negative, it is very difficult for any medical professional to come up with a diagnosis and then an action plan. Having pain itself, is not
a diagnosis, even though you are suffering.

--- Ron DiLauro, Spine-Health System Moderator : 03/22/15 14:03 est


  • itsautonomicitsautonomic LouisianaPosts: 2,561
    How long have you had these symptoms? How were you diagnosed with fibro, by the tender points or the new criteria? Fibro is usually a diagnosis of exclusion, and in lamen's terms there are many things that mimic it and all those need to be ruled out first. The unfortunate problem is with medical testing, you are only as good as the doctor you are seeing, what I mean by that is if they are not trained in every single thing that could mimic fibro you are subject to a fibro diagnosis based on the level of thier diagnosing skills, their training and exposure. See a fibro specialist, good move seeing physc and eliminating that. Doctors in my exp say fibro when they reach the end of their skills at diagnosing. It absolutly could be fibro , but their is a better chance its something else underlying and quantifiable causing it.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • i have bad lower back pain and constant menstrual like cramps... i think i have fibro, but in google searches have found no correlation of the two?
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