First time using forums, so struggling to navigate to the right place
Basically looking for people with similar cases to mine who could offer up a little advice or just your story of how your diagnosis/treatment was/is handled as I feels little let down so far.
also a little explanation on what my diagnosis means as I don't understand what the medical terms even mean.
So here it is....
I'm 18 , 19 next monththat according to my doctors changes a lot of my options, as I'm too young for most of the help he could offer
Although my lifestyle has been drastically changed due to too much pain to be as active as I used to be and now most of the social activity I was a part of, eg. Bmx and mountain bike enthusiast, now impossible, leading to considerable isolation and depression, they don't seem to care ,,
Anyway here's my medial history
-fell down the stairs at my home in September 2013,
Was in terrible pain but didn't not go to hospital due to bad bruising I gave it the old see how I go attitude
-3 months later the bruising had disappeared but was still in pain everyday but was bearable
- 4 months after the incident I went to see my GP regarding the bad I was having in my lower back and buttocks, was simply told that I most likely had bruising to my bones and May last upto 6 months was sent away with some low strength paracetamol.
-After 8 months since incident I was still in terrible pain that just got worse and worse, so my GP reluctantly referred me to the hospital for some x-Rays yet when I called the hospital to arrange my appointment I was refused, the radiologist said I was too young for such unnecessary X-rays, he said that it would emit me to radiation that he didn't believe I needed as no matter what the results there was no pain management options for tailbone problems, with this information my GP refused to refer me to anyone else for 2nd opinions
-Then August 2014 whilst playing lightly on a in ground trampoline with my little brother I was knocked over and with it only dug far enough into the ground for a child to bounce, my weight caused me to hit the ground under the trampoline and of course I fell on my buttocks/ lower back
I was taken by ambulance to a&e as I could not walk or stand without the support of 2 people, I was taken by stretcher
, upon arriving at a&e I was given priority and high doses of some painkiller, I went numb and could not feel any pain but still could not stand I had X-Rays but was told it wasn't possible to X-ray the tailbone area and there was no damage on the higher bit of my back that was xrayed I was then simply sent home still unabl to walk unaided
After this incident I began to have terrible pains in my thighs too mainly my left leg hurt and I could only sit whilst leaning to my right side or I get a unbearable shooting pain up my spine and down my legs
I also occasionally probably once a month have what seems to me to be heavy bleeding from my back passage when passing stool, I'm finally having a flexible sigmoidoscopy tomorrow for this,
I have had one MRI in November 2014 that I was then told in December that I have bilateral L5 PARS defect
Coccyx fracture l4/s1 minimal displacemed height reduction causing foraminal narrowing and lysis At l5 grade 1 listhesis, none of which I understand
Also been told I have sciatica and have been prescribed gabapentin
Oh also before my MRI was done whilst I was waiting they checked my so called clear X-rays from my trip to A&E back in August and found two very clear fractures and did not understand how my A&E doctor missed them!
When my MRI results came back I was told that the problem had got worse.
A pelvic and axial mass was also found on my MRI but my consultants would not discuss this as it needed inverstagating as over the 3cm safe size yet I have had no test although I have followed this up, I do not know if it's connected to my back problems,
Have been now told by spinal specialist after I requested a 2nd opinion that some sort of epidural injections into my lower back could be the best treatment for me but against although I've chased it up and made numerous calls to both hospital and GP still nothing has been set in motion to help me,
Sorry that I have rambled and I understand I can get no guaranteed medical help here,
It would just be nice to be directed to someone in similar circumstances as I feel as I'm personally being mistreated by my health professionals but maybe they are doing what they can
I also just need more explanation as to what my diagnosis means as I do not understand 90% of the medical jargbon that they tell me via letters of consultations
Again sorry to take your time but thank you for reading,
I'm also still being told by my GP that it will heal in its own time with no intervention, and he has refused to give me any stronger painkillers as I am "too young" even though I'm struggling more on a daily basis to do even the simplest things such as get out of the bath ( I do have to helped 70% of the time) or out of bed now have an extra mattress just to make it easier so I don't have to bend as much,
Thank you for taking the time to read and any help is greatly appreciated