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Your Doctor - How much do you trust them or not



  • itsautonomicitsautonomic LouisianaPosts: 2,561
    Its happened many times to me also:

    1. did that last injection work - even though we already had follow up and stated that it had failed
    2. did you ever get that MRI - yes its in your file
    3. it shows here the herniation has healed and shrunk - nope read the addendum

    and many more forgetful things, but I always gave benefit of doubt in these cases cause its human nature and I realize there is pressure to make money for the clinic by number of visits. But i can say without being your own advocate I do not see how a person can survive this chronic life. I personally bet many of the deaths due to malpractice could be prevented by patient knowing condition in and out. Its not something i want to do , but its became a neccessity for anyone with tough diagnosis or rare disorder.
    I saw a vascular doctor the other day to rule out and vascular issues(drs advice), and he let medical student examine me , walked in said there is nothing we can do for you its not vascular. I said cool, i figured that its neurological issues. Then he went on to say some things that really took me back. He said "yea I could run a bunch of testing to rule it out that way, but I am not going to " and then he said there is a disorder called reynauds , but I am sure you have already read about that. And then he walked out. It took about 3 minutes and I am still a bit confused, why tell someone its not vascular then state I could run a bunch of testing but I am not going to. I'm baffled if he was trying to be nice or arrogant or whatever.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • Hope3HHope3 Posts: 1,337
    edited 09/27/2015 - 4:32 PM
    I just wanted to make a quick note of the last apt. I walked out of. This is my stomach Doc. who I had to wait two weeks to see his assistant if I wanted to see him it takes two months.
    It took one hour to get into the exam room, waiting (in my severe other pain) for another 15 minutes then the nurse comes in and takes my vitals and asks why I am there. I told her I wanted the Doctor to go over the results of the CT scan. She goes alright she will be right in and then the door opens and it is the nurse again. Where did you get the CT scan I told her and she says alright I will look it up and be right back.
    I hear her talking to the assistant "she is here to review her CT scan) the assistant says (what the CT scan from 2012)? So guess what back in the room she comes and says (where did you get this done) I was boiling by then I told her again where it was taken. She said I cannot find it and yells out to another nurse "do you know where ----- is?" That nurse goes "yes it is -----".
    By that time I had enough and on my way out I said to her " this happens time and time again coming in here enough is enough tell the her to call me at home". She starts to say I am sorry but it was no use.
    The thing that gets me is by their desk is a sign that states "pay $100. if you don't give 24 hrs notice or don't show".
    I have had apts. with the Doctor who has four offices now where he spent 15 minutes trying to charge his phone with his nurses help and him taking two phone calls. He spent a total of ten minutes that apt. with me.
    I had intentions after this apt of reviewing my CT scan to never go back and this made it final.
    Sorry that got long ramble.
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  • I feel if a person has done everything and used all the tools out there no matter what the tests say they should be treated with respect and listened to.
    I get frustrated by:
    1: Not able to get apts. for months or weeks with the Doctor but you can see the assistant who my experience has been they are not qualified.
    2: Waiting for over half hour is unacceptable except once inawhile.
    3: Taking phone calls while discussing your health.
    4: Staring at the computer while discussing your health.
    5: Charts never up-dated and you have to bring them up to speed.
    6: Never returning phone calls and I don't call often but expect a call when it is important.
    7: Never looking outside the box or not even looking at the information you have put together.
    8: Pushing meds onto you without even looking at your medical history and not having any other thoughts or ideas.
    9: Medical records I found were too many times incorrect.
    10: Not following up on critical issues or even telling you of things out there that help.
    11: Cut you off and don't listen and just brush away your list of questions. I have had them even say "oh we will address them later unless important".
    12: Doing unnecessary and too many tests of the wrong kind
    13: Doing or saying something and later saying they never said it.
    Enough I have met some great Doctors in my life but not with these health issues now. Two Doctor's I really have a lot of respect for was the one that did my last injections he spent time going over everything in detail, even getting into infections that can cause back problems etc. He wanted to know my whole life of Chronic pain from day one what happened, treatments on and on. My heart Doctor is the same way he gets into all aspects of my health and how they may be effecting my current problems. I have never felt less than and felt like they wanted to help me.
  • itsautonomicitsautonomic LouisianaPosts: 2,561
    edited 09/30/2015 - 12:09 PM
    Hope3, i always wonder what the criteria in the clinic is for a doctor seeing a patient. Do they have an alloted minimal time, are they supposed to address patient concerns , etc. If I knew that I would challange the 5 min appointment walkiing in and walking out leaving patient shell shocked, but we will never know.
    Gladly, I am pretty happy with my medical team now and the new doctors I am seeing are really good people who really seem to want to help. I am pretty lucky with my team at the moment, not a one of them makes me feel like its in my head, but the records and testing are there so that may persuade them that my issues are legitamite. I lost trust in the medical field cause they could have prevented me from suffering the way I had and slowed progression if they just listened with open mind , but I am slowly getting it back with the team I have now. I am in good hands and its really nice to not have to worry about that.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • dilaurodilauro ConnecticutPosts: 13,526
    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences 
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  • Aaron
    I have read all your posts and the hell you went through getting to where you are today. I am looking for that place a Doctor who will help me get to the bottom of this. I struggle to keep fighting on but then I read what others struggle with or have and it gives me a push.
    Yeah I am not sure their time they allot for visits and I don't mind if they take more time once in awhile that means the person before me got what they needed hopefully. But it seems to be the trend in the Doctors I see and part of it is they take too many patients. I am getting to the point now that I won't tolerate it more than a few times.
    I hope you continue to have success with your team and she your Neurologist does sound great I wish for that.
    I do all of that to the extreme I try hard to follow the guidelines with the Doctors I go to. I won't accept any responsibility for the failures between me and the Doctors I have talked about. I put forth so much effort to make it work and have gotten to the point I almost have give up with finding a decent Doctor period. I appreciate your suggestions always and use them for the most part. I have got copies of some really great ideas on the internet for how to make your relationships work with Doctors.
    Like you I have several friends who are Doctors trouble is several of them live in other countries from my work years. They are shocked at some of the stories I tell them. Don't get me wrong I have known a lot of wonderful Doctors in my life. I think those that are able to make those relationships are so fortunate and I will find mine to get to the bottom of this pain.
    Thanks Sherrie
  • L5S1 karmaLL5S1 karma Posts: 30
    edited 01/12/2016 - 11:42 PM
    To perform the job he was hured to do. What i am frustrated with him is his optimist. After my first microsdicectomy 2 years ago, i recovered pretty quick with no issues at all in 2 weeks. At the 3 month follow up visit, i specifically asked him what are my limitations from now on. Oooh none.. You can do what you please.. And i did.. And i had a revision 1 month ago and now showing nerve damage. He still call me downer. I wish he eould have put the fear of God on me and i would have taken this condition a lot seriouly back than. If i recover, or better when i recover, i am surely not fall for that again....

    Please read the original thread -- Ron DiLauro, Spine-Health System Moderator
  • gfishggfish Pittsburgh PAPosts: 240
    I trust my NS with my life. We sat down and he explain everything, in detail. We went over the mri and ct scans. He was very honest with me, saying I cant fix you, no one can. But I will stabilize you from further damage.  I can call him anytime with a question and he will return my phone call. Not right away, But the same day. I am not saying i got lucky. I did research a lot of doctors. I spent hours reading about him and who he was and what he has done. I had a large surgery. And I was very scared to trust anyone. So I had to build a relationship with him first. I just didnt want this to be a job he did. Or be a file number.  
    Greg fisher
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