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Please help me, lost and don't know what to do

WantMyLifeBackWWantMyLifeBack Posts: 4
edited 07/06/2015 - 12:02 AM in Neck Pain: Cervical
Hey everyone, 22 year old male here. Long story short, a couple years ago I passed out and took a fall and hit the back of my head. No concussion symptoms, but after a week I began having a myriad of symptoms including headache, stiff neck, muscle spasms, vision issues, etc etc..


Decided to go to the hospital, they took an MRI of my brain (not neck) and chalked it up to post concussion syndrome and told me to go home and wait 6 months.

Well here I am 2 years later and I am a fraction of the person I used to be. I have managed to have a few visits since then, but was without insurance for a while so couldn't get anything done. I really need help getting my life back on track. Nobody takes me serious. My parents think I'm overreacting and being a hypochondriac, but I promise this isn't all in my head.

Here are my symptoms, can anybody point me to possibilities of what this might be?

- First off, with every single movement of my neck (side to side rotation, forward, backward, nodding, etc) I have grinding and popping and crunching sounds. Right under the skull, by the base.

- VISION TROUBLE....I don't see life like I used to...I can't even explain the problem. It's like a mixture of blurry vision, flashes of light, black spots in vision, and just general unfocused vision. I miss how life used to look

- Sore/stiff neck, very painful to even turn it or nod or do anything really

-Dizziness, feeling like I am about to faint when I get up from a lying position or even sitting position

- Loss of balance when walking, I'll tip over to the side

- Crunching and popping in shoulders (this wasn't there at first, slowly began getting worse and worse)

- Headaches

-Heavy head

-Difficulty taking deep breaths

-Ear fullness, always pressure in ears, ALWAYS. Even something simple as swallowing my saliva will cause muffling sounds in my ears

-Tingling in fingers and pain radiating to arms


My quality of life is gone. I can't concentrate, I can't do anything. I used to be full of life, going out with friends, exercising, etc....now I ignore phone calls, and generally feel no joy from anything because I'm constantly worried about my neck and if I will ever perceive life like I used to. I'll have convos with people but be thinking about my neck, everyone around me will have fun and laugh and I yearn to one day feel that again. But how can I?

How can I when my parents and everyone around me think I am making this up? My parents even accused me of being on drugs or something because I simply have no desire to join them for a nice night out for dinner or something How can I when I have been thinking abut my health EVERYDAY for the last two years. Literally has not been a day I haven't tried to look it up. And I am no hypochondriac, I am just somebody trying to figure out what can be going on


THey tell me I am overreacting because somebody my age can't have ALL of these symptoms,

My coworkers accuse me of lying. I'm sick and tired of it all. I want to enjoy life again. I'm sitting here crying as I type this...


somebody please help me. I'm way too young to be feeling like this.


I'm very very picky with docs because the couple docs I have seen just chalk it up to some bullshit anxiety or something, I AM NOT ANXIOUS! I am in PAIN, and I have a ton of neurological symptoms to go with it..


So my questions are

1) What can this be? Is it possible for all these symptoms to be connected?
2) What steps should I take? What doctor should I see? I''m tired of being brushed off by docs just because they don't know what's bothering me.

So far I've thought about Barre Lieou syndrome, arnold chiari, etc...but maybe I'm wrong...maybe it has to do with the upper cervical, maybe not. Maybe I'm just going crazy


I guess I just need somebody to talk to me, somebody who understands


Please help me, because I have nobody on this planet who wants to do that right now.

Much appreciated, thank you

************************
Please remember that no one at Spine-Health is a formally trained medical professional.
Everything that is posted here is based on personal experiences and perhaps additional research.



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1

Comments

  • LizLiz Posts: 9,745
    please take the time to read this post and refer to it when you have questions

    i am sure that you will find your time on spine-health very rewarding. this site is a powerful and integrated system that is dynamic and growing.
    here are just some of the highlights that are available as tabs on the main spine-health menu bar

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    as a bonus, spine-health provides these patient forums. here you can meet thousands of people who understand and can relate to your situation. you will soon become part of the spiney family[/u] who provide comfort and the advantages of a support system. you are now part of this family that is approximately 27,00 international members and growing daily.

    important

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    Liz, 

    Veritas-Health Forum Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • im going crazy here...any help?
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  • NeckTingleHelpNNeckTingleHelp Posts: 2
    edited 07/08/2015 - 1:26 AM
    I know you probably don't want to hear this, but I think the only person that can help you is a doctor. I'm sorry your parents aren't that helpful, perhaps you could show them that the signs are physical? You mentioned crunching, for example. Try finding a physical therapist, or even a neurologist.

    Good luck, I hope things improve for you.
  • Two years is more than enough to confirm that something is wrong. Unfortunately you have too many issues that people don't relate to for them to empathize or be of help. In fact it sounds like they are being a hindrance.

    Put your head down and figure out what's going on. Complex cases aren't solved by a sole physician or a single office visit. They are solved through trial and error and a non-ending pursuit from the patient. And if it makes you feel any better I'm a 45-year-old man with a house and two children and I also wondered if I was going crazy.

    I don't know how you'll pay for it but you need an MRI of the cervical region and a new brain scan. Things change over time. You will also need a Neurosurgeon. If I had to guess I would say upper cervical or brain stem damage but what do I know?

    I know that being 22 you are still young enough to recover from nerve issues but you need to figure out what is going on. I also know that nerve issues that high can cause a myriad of problems.

    The symptoms can be confusing also. For instance there is no reason to have a heavy head if you haven't damaged muscular or tendon like tissue. I bet that it is pain stopping you from wanting to hold your head up.

    And in the off chance that it turns out you're crazy, well, just put that behind you also.

    Good luck
  • itsautonomicitsautonomic LouisianaPosts: 2,561
    I can't say it better than Wolfpack all I can add is I was crazy for 3 years until drs finally got to the bottom ofy problems. I would say on your worse days just use common sense and ask did I have any of this prior to the injury? If the answer is no I think that should give you the reassurance to keep pushing for answers. It's what I did with all the symptoms , the lack of support from family, doctors who said was axiety or didn't beleive me. I broke it down to the simplest terms of who I was before the injury and compared it to who I am now. I knew something was wrong and when I would think in simple terms I got the push I needed to find out what's wrong.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
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  • Betty65BBetty65 FloridaPosts: 83
    As the parent of a 22 year old, I would be dragging her to the nearest MRI machine and running the thing myself if need be! But seriously, as a young person you must be going through hell with this pain and accompanying stress. Please do all you can to get some diagnostic tests done. And let us know how you are doing.
    Betty65
  • I would start with another MRI especially one of the neck. You could have done some damage to your neck region and it has slowly gotten worse.
    Similar thing happened to me after being rear ended. Over 19 month period, just slowly deteriorated. Quality of life went down. I also had horrible headaches, tingling and pain in arm, and severe neck pain.
    Finally had surgery after trying every conservative measure out there. Turned out I had a torn ligament and a severly herniated disc in my neck.
    Please get an MRI of your neck to make sure nothing more is going on. It's hard to feel the way you do and seek help, but you have to be your strongest advocate. Especially if you aren't getting support from your family.
    Good luck.
  • saw my pcp and she sent me to a eye doctor. she said it has nothing to do with the neck. im about ready to give up. Are these doctors the ones who are actually sick in the head? and not me? Why does every doc i go to dismiss the neck? im going to go crazy. she said if its not from the eyes, its the brain...


    i told her my neck grinds and crunches and everything, she said thats normal for a lot of people. im just getting moe and more depressed. ready to give up.


    screw this.
  • wolfpacksvb said:
    the crunching is from tissue that is roughed up or and making noises when it rubs. no one your age should have that.

    my insurance allows me to forgo a pcp visit and just visit a specialist i choose...any recommendations? and will this ever be healed or am i doomed with feeling like this forever? i have been noticing a lot of similarities with this the more i read it...


    https://espn.go.com/nhl/story/_/id/7525255/sidney-crosby-pittsburgh-penguins-dealing-soft-tissue-injury-neck
  • WolfpackSVBWWolfpackSVB Posts: 216
    edited 07/11/2015 - 3:52 PM
    The crunching is from tissue that is roughed up or torn and making noises when it rubs. No one your age should have that.
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