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Please help me, lost and don't know what to do



  • Mother GooseMMother Goose Posts: 87
    edited 07/12/2015 - 9:24 AM
    It is so hard to find a good doctor who believes you. I recently saw my doctor due to the bad headaches, (again) and they x-rayed my neck and found more problems. While looking through all my paperwork, (I get copies of everything) I discovered that I was put in a mental hospital back in the mid 80's for my headaches. I spend 20-25 years trying to get someone to take me seriously. The thing is that there is material out there for professionals that state that pain is caused by depression, (and anxiety) but the truth is that 99% of the time it's the other way around. We are depressed and anxious because of the pain we are dealing with and the lack of support from family and friends and most of all from not being believed by the doctors.

    BTW if you are in the US and this affects your ability to work there are lots of resources out there, the biggest one being the dept of Vocational Rehabilitation. They helped me go back to school so that I could change careers.
  • WantMyLifeBack said:
    Hey everyone, 22 year old male here. Long story short, a couple years ago I passed out and took a fall and hit the back of my head. No concussion symptoms, but after a week I began having a myriad of symptoms including headache, stiff neck, muscle spasms, vision issues, etc etc..

    Decided to go to the hospital, they took an MRI of my brain (not neck) and chalked it up to post concussion syndrome and told me to go home and wait 6 months.

    Well here I am 2 years later and I am a fraction of the person I used to be. I have managed to have a few visits since then, but was without insurance for a while so couldn't get anything done. I really need help getting my life back on track. Nobody takes me serious. My parents think I'm overreacting and being a hypochondriac, but I promise this isn't all in my head.

    Here are my symptoms, can anybody point me to possibilities of what this might be?

    - First off, with every single movement of my neck (side to side rotation, forward, backward, nodding, etc) I have grinding and popping and crunching sounds. Right under the skull, by the base.

    - VISION TROUBLE....I don't see life like I used to...I can't even explain the problem. It's like a mixture of blurry vision, flashes of light, black spots in vision, and just general unfocused vision. I miss how life used to look

    - Sore/stiff neck, very painful to even turn it or nod or do anything really

    -Dizziness, feeling like I am about to faint when I get up from a lying position or even sitting position

    - Loss of balance when walking, I'll tip over to the side

    - Crunching and popping in shoulders (this wasn't there at first, slowly began getting worse and worse)

    - Headaches

    -Heavy head

    -Difficulty taking deep breaths

    -Ear fullness, always pressure in ears, ALWAYS. Even something simple as swallowing my saliva will cause muffling sounds in my ears

    -Tingling in fingers and pain radiating to arms

    My quality of life is gone. I can't concentrate, I can't do anything. I used to be full of life, going out with friends, exercising, etc....now I ignore phone calls, and generally feel no joy from anything because I'm constantly worried about my neck and if I will ever perceive life like I used to. I'll have convos with people but be thinking about my neck, everyone around me will have fun and laugh and I yearn to one day feel that again. But how can I?

    How can I when my parents and everyone around me think I am making this up? My parents even accused me of being on drugs or something because I simply have no desire to join them for a nice night out for dinner or something How can I when I have been thinking abut my health EVERYDAY for the last two years. Literally has not been a day I haven't tried to look it up. And I am no hypochondriac, I am just somebody trying to figure out what can be going on

    THey tell me I am overreacting because somebody my age can't have ALL of these symptoms,

    My coworkers accuse me of lying. I'm sick and tired of it all. I want to enjoy life again. I'm sitting here crying as I type this...

    somebody please help me. I'm way too young to be feeling like this.

    I'm very very picky with docs because the couple docs I have seen just chalk it up to some bullshit anxiety or something, I AM NOT ANXIOUS! I am in PAIN, and I have a ton of neurological symptoms to go with it..

    So my questions are

    1) What can this be? Is it possible for all these symptoms to be connected?
    2) What steps should I take? What doctor should I see? I''m tired of being brushed off by docs just because they don't know what's bothering me.

    So far I've thought about Barre Lieou syndrome, arnold chiari, etc...but maybe I'm wrong...maybe it has to do with the upper cervical, maybe not. Maybe I'm just going crazy

    I guess I just need somebody to talk to me, somebody who understands

    Please help me, because I have nobody on this planet who wants to do that right now.

    Much appreciated, thank you

    Please remember that no one at Spine-Health is a formally trained medical professional.
    Everything that is posted here is based on personal experiences and perhaps additional research.

    If I was you I would start by demanding an MRI.of the neck and cervical spine. I have every symptom you have. I have been diagnosed with having a syrinx, which.is a cyst in the spinal cord. It can be caused by chiari, trauma, multiple things. Mine is idiopathic. Anyone can be born with it and never know until symptoms arrive and an MRI done. I hope this may help you.
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  • dilaurodilauro ConnecticutPosts: 13,521
    Demand a MRI , diagnostic test, medication from a doctor.

    Discuss your situation with your doctor and ask if there is anyway to identify your proem.

    You will gain a lot more trust from your doctor this bs demanding anything
    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences 
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