Hello to everyone. I have been a member of spine-health since 2006, and was a regular here up until a couple of years ago. I haven't logged in for so long that I had to request a new login! So first, I want to say hello to all of my old friends, and that I will be around again for a while to visit with newer members.
I have been on this journey for about 9 years now. You know the saying "time flies when you are having fun." Well, it has been a long 9 years, but I have learned to make the best of my life and live with the post surgery issues that will last a lifetime.
I currently have a Medtronics pain pump, using Prialt infused into my spinal fluid. This has had its ups and downs. It has made my pain somewhat bearable, along with oral medications. Thankfully I haven't gotten into the heavy opiates yet, but I can see that coming if things don't improve.
Today we added bupivacaine to the Prialt. It will take 4 days before the new meds make it through all the tubing, so I won't know for a bit if it works, but I sure hope so!
I was once a moderator here, and enjoyed helping people just beginning with their neck injuries. I left for a while because I felt that I needed to focus on other parts of my life. But I just couldn't stay away. There is something about living with chronic pain day in and day out that just doesn't let us forget it! If I can help others with their journey through neck issues, perhaps that is why I had to go through all of this.
A "brief" history
2006 ACDF C5 to T1, resulted in partial paralysis, damage to cord, Browns Sequard Syndrome, loss of bladder and bowel (now resolved), and a whole slug of other issues, Severe burning and chronic pain in neck, arms, legs, feet from that point on
2006 5 or 6 weeks post op I developed DVT and PE (that is what paralysis will do if you can't move those legs, ha ha)
2008 Revision to previous surgery. After all that I went through, I didn't fuse. Removed everything, front and back, neck now consists of solid cage in the center from C5-T1, plate and screws in the front, rods and pins in the back. Yes, I am a TITANIUM woman.
Neck Pain worse after this surgery, but at least everything is solid.
2011 Discovered I have a cervical tethered cord from where the cord damage happened during surgery the first time
2013 Medtronics Pain Pump implanted using Prialt (snail juice). I guess that is why I am so slow now, lol
2013-2015 Titrated up and down at different times with the Prialt. Finally tapered it way down because it was making me crazy
9-2015 Added Bupivacaine with Prialt
Currently--in a whole lot of pain but walking well now, and trying really hard to remember the positives.
Surviving chronic pain one day at a time, praying for a reprieve because living another 40 years like this doesn't sound too fun!