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Intro about me and my chronic pain....

KathleenEdsMomKKathleenEdsMom Posts: 3
edited 10/26/2015 - 1:40 PM in New Member Introductions
Hello fellow space travelers, my name is Kathleen and I finally decided to join here as I have a hard time finding someone to talk to as they do not understand chronic pain. I have one friend who has cp but she has moved away to Vegas.
I have many problems but in a nut shell I have DDD, DJD, spinal stenosis, bulging discs, sciatica, severe neck and lumbar pain. If I looked at my MRI reports I'm sure I could add a few more things.
I have had only 2 wonderful doctors who have treated my cp and now the last one has retired and I am forced to see a doctor that is treating me like crap. The hardest thing here in MI is to find someone to keep writing the scripts for my meds. I feel like I have 2 heads when they find out what it is I need. I am discriminated against because I am on heavy medications, but they let me have a wonderful quality of life. Well, used to anyway. have had this pain and been on meds for 20+ years. This new doc does nothing but take away a little of my meds every time. Says he is a pain doc but he is not. He treats me like an addict and says I don't have all the pain I say I do. When I am having an exacerbation of neck or lumbar pain he does not want to see me he tells me to go to urgent care. He has not read my MRI's and does not understand them or he would not treat me as he does. It is very hard to find a compassionate doc to see me and take care of my meds. I am so down having to see this doctor and have never felt so bad due to the pain. He does not write for the therapeutic dose. He tells me that if I don't go to therapy I cannot get him to order an MRI of my neck and he will start backing me off my meds. So I go to therapy, again, and he takes the meds anyway. BTW my insurance will cover an MRI anytime therapy is not required. I found a wonderful doc but she does not do the pain meds. The pain clinics here want me to have all these new and old treatments, ie epidurals, which I have had with no results in helping the pain. The last one I had he hit the nerve for my arm! Like a bolt of lightening going down my arm through my baby and ring fingers.
How do I find a doc to care for me and have it not look like I am doctor shopping? Which I am in a way, but not to get the drugs and sell them on the street. I'm lost. I am 61 and supposed to be enjoying the last part of my life and I have been in tears since January when I began seeing this so called doctor. He is so mean to me and does not care or believe I have the pain I say I do. I take care and have blood work done every 3 months. His office wants to do it once a year! No, I am fond of my liver and kidneys every 3 months will be good. I want my caring doctors back. Living this life in pain is just not cutting it. Thanks for listening........"First, do no harm...." My doctor has that all wrong. Kathleen

Welcome to Spine-Health

One of the most important things that members can do is to provide the rest of the community with as much information about themselves as possible. It is so very difficult for anyone to respond when we do not have enough information to go on. This is not meant to indicate that you are doing anything wrong or violated any rule, we are just trying to be pro-active and get the information upfront so that people can start responding and your thread is more effective.

So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong, The fact that your test results are negative does not mean that you are fine and without any concerns. Many times it takes several diagnostic tests and procedures to isolate a specific condition.

Here are some questions that you should answer:
  • - When did this first start? . Year, Your age, etc
- Was it the result of an accident or trauma?
- Are there others in your family with similar medication conditions?
- What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)
  • . Which doctor did you start with? Ie Primary Care Physician . Who are you currently seeing?
- What Conservative treatments have you had? Which ones?
  • . Physical Therapy . Ultrasound / Tens unit . Spinal Injections . Acupuncture . Massage Therapy
- What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)
  • . Summarize the results, please do not post all details, we cannot analyze them . How many different tests have you had over the years? Similar results?
- What medications are you currently using? (details, dosage, frequency, etc)
  • . Name of Medication . How long have you been using this? . Results
- Has surgery been discussed as an option? (If so, what kind)
- Is there any nerve pain/damage associated?
- What is your doctor’s action plan for treating you?

Providing answers to questions like this will give the member community here a better understanding
of your situation and make it easier to respond.

Please take a look at our forum rules: Forum Rules

I also strongly suggest that you take a look at our FAQ (Frequently Asked Questions) which can be found at the top of the forum menu tab or by going to FAQ There you will find much information that will
  • - Help you better utilize the Spine-Health system- Provide pointers on how to make your threads / posts- Tips on how to create your avatar (your picture), posting images, etc- General pieces of valuable information

Please remember that no one at Spine-Health is a formally trained medical professional.
Everything that is posted here is based on personal experiences and perhaps additional research.
As such, no member is permitted to provide
  • - Analysis or interpretation of any diagnostic test (ie MRI, CTscan, Xray, etc)- Medical advice of any kind- Recommendations in terms of Medications, Treatments, Exercises, etc

What could be good for someone could spell disaster for another.
You should also consult your doctor to better understand your condition and the do’s and don’t’s.

It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have are

I’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?

Diagnosing spinal problems can be very difficult. In many ways it’s like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then it’s up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.

Specific comments :

Personal Opinion, not medical advice :

--- Ron DiLauro, Spine-Health System Moderator : 10/26/15 20:40st

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