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just diagnoised. Not sure how to handle it.

GoldengramGGoldengram Posts: 1
edited 11/18/2015 - 3:07 AM in Chronic Pain
Ok im 35, work 2 jobs, and trying hard to live a decent life. Recently i have been in so much pain i can not move. I never smoked in my life, i do not drink, i work out, and have done all i can to lead a fairly healthy life style. I just moved into a new house and it seems thats when the issues started. I have only lived in this house for 3 months and have been hospitalized 6 times with phenomonia, and 2ce with bronchitis. After i got out of the hospital, my body literally felt like a train wreck. I have been in non stop pain every since. It feels like ive literally been beaten over and over. I will start sweating, and freezing at the same time, and then i can not move because it hurts so bad. Ive seen specialist and they have diagnosed me with fibromyalgea (bad spelling. Sorry) so im now started on lyrica. 50 Mg 3 times a day. But it seems to do nothing. Does anyone know how long it takes before it works? I have no friends because i work and come home and by that time i am so sore i cant move. It literally hurts to type this. I cant do nothing but cry. Any suggestions? I apologize for whinning but i am getting nowhere here and i feel kinda lost. If you took the time to read this, thank you. I pray for a reply. Take care.

Welcome to Spine-Health

One of the most important things that members can do is to provide the rest of the community with as much information about themselves as possible. It is so very difficult for anyone to respond when we do not have enough information to go on. This is not meant to indicate that you are doing anything wrong or violated any rule, we are just trying to be pro-active and get the information upfront so that people can start responding and your thread is more effective.

So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong, The fact that your test results are negative does not mean that you are fine and without any concerns. Many times it takes several diagnostic tests and procedures to isolate a specific condition.

Here are some questions that you should answer:
  • - When did this first start? . Year, Your age, etc
- Was it the result of an accident or trauma?
- Are there others in your family with similar medication conditions?
- What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)
  • . Which doctor did you start with? Ie Primary Care Physician . Who are you currently seeing?
- What Conservative treatments have you had? Which ones?
  • . Physical Therapy . Ultrasound / Tens unit . Spinal Injections . Acupuncture . Massage Therapy
- What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)
  • . Summarize the results, please do not post all details, we cannot analyze them . How many different tests have you had over the years? Similar results?
- What medications are you currently using? (details, dosage, frequency, etc)
  • . Name of Medication . How long have you been using this? . Results
- Has surgery been discussed as an option? (If so, what kind)
- Is there any nerve pain/damage associated?
- What is your doctor’s action plan for treating you?

Providing answers to questions like this will give the member community here a better understanding
of your situation and make it easier to respond.

Please take a look at our forum rules: Forum Rules

I also strongly suggest that you take a look at our FAQ (Frequently Asked Questions) which can be found at the top of the forum menu tab or by going to FAQ There you will find much information that will
  • - Help you better utilize the Spine-Health system- Provide pointers on how to make your threads / posts- Tips on how to create your avatar (your picture), posting images, etc- General pieces of valuable information

Please remember that no one at Spine-Health is a formally trained medical professional.
Everything that is posted here is based on personal experiences and perhaps additional research.
As such, no member is permitted to provide
  • - Analysis or interpretation of any diagnostic test (ie MRI, CTscan, Xray, etc)- Medical advice of any kind- Recommendations in terms of Medications, Treatments, Exercises, etc

What could be good for someone could spell disaster for another.
You should also consult your doctor to better understand your condition and the do’s and don’t’s.

It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have are

I’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?

Diagnosing spinal problems can be very difficult. In many ways it’s like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then it’s up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.

Specific comments :

Personal Opinion, not medical advice :

--- Ron DiLauro, Spine-Health System Moderator : 11/18/15 10:07 est



  • Hi and welcome to this forum. I do not have your condition so I cannot comment on that but I am on Lyrica due to nerve pain in my leg. I didn't really think it was working for me to start with ... until I forgot to take a dose and became very aware of how much it was helping!

    Beware of the false hunger feelings brought on by drug and at times I feel I need to spring clean my house ... something I know my back will not do and I will suffer!

    I hope you get some replies from people with your condition. Sometimes it is just good to share chronic pain desperation with anybody. It can be very isolating and people who have not suffered really have no idea how much it affects every part of your life.

    Good luck with finding lots of information on here and meeting new friends who really do understand :-) x
    Spine-Health Moderator

    L5/S1 herniation Apr 2013
    nerve root injections Oct 2013
    L5/S1 discectomy Jan 2014
    L5/S1 nerve roo &, facet joint injections & edpidural Jan 2015
    L5/S1 revised discectomy, L4/L5 discectomy & Wallis Inswing Stabilisation L4/L5 May 1st 2015
    L4-S1 TLIF with decompression June 2017
  • SavageSavage United StatesPosts: 7,385
    On this site there is a forum for fibromyalgia, that you may find helpful.
    You will read of others' experiences and may feel comfortable to join in.

    There is also a search on this site, upper right on page. Type in your concerns and you may be led to current or past posts, articles and or videos.

    I especially like the videos with the visuals matching explanations.

    Sometimes when I search, it leads me to have specific questions that I jot down for my doctor.

    Re meds and relief, please keep your doctor posted. My experience that it can take time for medication to work, and or it may need increase from doctor, and or a change in medications.
    It's very trial and try again!

    It is so good you have specialist! Sounds like you in good hands and keep good communication with doctor.

    Please keep us posted!
    Honorary Spine-Health Moderator
    Please read my medical history at: Medical History

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  • I am really sorry to hear of your situation. I don't know if your house is new construction or older, but I had a very similar situation. It turned out part of my problem was from Lead paint that was used when my home was built almost 90 years ago. It causes a chronic fatigue type illness . Also Mold can do this particularly causing respiratory issues as you have. Please see your internet for some testing for heavy metal exposure or mold issue. It may be yor work place too ?? Just a thought. Good luck to you.
  • SavageSavage United StatesPosts: 7,385
    edited 11/18/2015 - 11:08 PM
    Welcome to Spine-Health
    Please click on link for helpful information!
    Honorary Spine-Health Moderator
    Please read my medical history at: Medical History

  • SavageSavage United StatesPosts: 7,385
    ChiMom has a good point about the house itself possible source.

    I just remembered a friend of mine had similar respiratory issues after moving into her newly constructed house.
    She had to get out of it to heal and then complained and then sold.

    She had no known allergies, so it took awhile for her and doctors to piece together that source was her house.

    Sounds weird, but has happened.
    Honorary Spine-Health Moderator
    Please read my medical history at: Medical History

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  • Deeanna LittleDDeeanna Little Posts: 3
    edited 11/19/2015 - 6:17 PM
    Im married a mother of 3 boys two I gave birth to, my other is my stepson (I claim him as mine anyway). Im 42, and a bit overweight, lost twenty pounds and at the moment do not invite moving around to much to exercise or much less clean my house. Forgive me I have just joined this site and I am not sure exactly how to get around on this site just yet. Bare with me.

    For helpful information please click on link
    Welcome to Spine-Health
    Liz -Spine-health Moderator

  • Jerome001Jerome001 Cocoa Beach, FloridaPosts: 118
    edited 11/20/2015 - 5:37 AM
    I was on lyrica 150 MG 3x a day for over a year and it did not help me manage my pain
  • I also have been prescribed lyrica but did not begin taking it because of what I read on the internet. Just be careful with the stuff. I tried it once and it gave me a similar affect on pain as weed just for 3x as long (a couple days).
  • I certainly can sympathize with you. Back in 2000 when I turned 40 years old I had a terrible fight with fibromyalgia . I know what your going through. The pain just want to make you cry not only because of the terrible pain from the soldiers but not being able to even hug a loved ones. I had to take hydrocodone at the time because lyrica was not even out at that time. That was a terrible time for me but I hope your outcome works like mine. After about Suffering for 3 years the fibromyalgia just went away as it arrived so there is hope. I remember looking at both soldiers and I could see purple spider webs/ begins all over my shoulders. It is my prayer that this leave you as it did me because it is so very painful . God bless!
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