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went thru trail scs

ILOVE2flyfishIILOVE2flyfish Posts: 3
edited 12/03/2015 - 2:35 AM in Spinal Cord Stimulation
hello i went thru the temp trail of implanted tens ! it stopped working 3 out of 7 days found some but not much relief but couldn't do whole trial due to a cyst that burst so had to have it taken out ! i've had two back surgery's and all it did was cause pain non stop and now have loads of hardware and fibro from getting shingles right after surgery ! i have to decide if to get it implanted im on all kinds of pain meds and pot for it have been in pain now for 4 years straight with no relive i blew out one disc 4 years ago and the next 3 years agoalso told i have degenerative bone diseaseto top it all off ! i'm at my wits end with this pain they want me to stop working and go out on ssi disability which afraid but that's another story ! i've tried oxy cotton and gabapenten now im on lyrica and oxy- morphine and med pot same as other stuff nada relief im getting about 3 hours of sleep thats it pain wakes me up ! im 57 feel like im 97 any one go thru with implant or pain pump going to ask about pump next week when i go see pain doc then heard about burning nerves !

welcome to spine-health

one of the most important things that members can do is to provide the rest of the community with as much information about themselves as possible. it is so very difficult for anyone to respond when we do not have enough information to go on. this is not meant to indicate that you are doing anything wrong or violated any rule, we are just trying to be pro-active and get the information upfront so that people can start responding and your thread is more effective.

so many times we read about members who have different tests and they all come back negative. the more clues and information you provide, the better chances in finding out what is wrong, the fact that your test results are negative does not mean that you are fine and without any concerns. many times it takes several diagnostic tests and procedures to isolate a specific condition.

here are some questions that you should answer:
  • - when did this first start? . year, your age, etc
- was it the result of an accident or trauma?
- are there others in your family with similar medication conditions?
- what doctors have you seen? (orthopedic, neurosurgeon, spine specialist, etc)
  • . which doctor did you start with? ie primary care physician . who are you currently seeing?
- what conservative treatments have you had? which ones?
  • . physical therapy . ultrasound / tens unit . spinal injections . acupuncture . massage therapy
- what diagnostic tests have you had? and their results (mri, ctscan, xray, emg, etc)
  • . summarize the results, please do not post all details, we cannot analyze them . how many different tests have you had over the years? similar results?
- what medications are you currently using? (details, dosage, frequency, etc)
  • . name of medication . how long have you been using this? . results
- has surgery been discussed as an option? (if so, what kind)
- is there any nerve pain/damage associated?
- what is your doctor’s action plan for treating you?

providing answers to questions like this will give the member community here a better understanding
of your situation and make it easier to respond.

please take a look at our forum rules: forum rules

i also strongly suggest that you take a look at our faq (frequently asked questions) which can be found at the top of the forum menu tab or by going to faq there you will find much information that will
  • - help you better utilize the spine-health system- provide pointers on how to make your threads / posts- tips on how to create your avatar (your picture), posting images, etc- general pieces of valuable information

please remember that no one at spine-health is a formally trained medical professional.
everything that is posted here is based on personal experiences and perhaps additional research.
as such, no member is permitted to provide
  • - analysis or interpretation of any diagnostic test (ie mri, ctscan, xray, etc)- medical advice of any kind- recommendations in terms of medications, treatments, exercises, etc

what could be good for someone could spell disaster for another.
you should also consult your doctor to better understand your condition and the do’s and don’t’s.

it is very important that new members (or even seasoned members) provide others with details about their condition(s). it is virtually impossible to help another member when all the details we have are

i’ve had this for years, it hurts, i cant move my shoulder – what could this be, what treatment should i get?

diagnosing spinal problems can be very difficult. in many ways it’s like a game of clue. especially, when the diagnostic tests come back negative – no trouble found! then it’s up to the patient and the doctor to start digging deeper. the doctor is like a detective. they need clues to help them move along. so, you as the patient need to provide the doctor with all sorts of clues. that is like it is here. without having information about a condition, its impossible for anyone here to try to help.

specific comments :

personal opinion, not medical advice :

--- ron dilauro, spine-health system moderator : 12/01/15 21:54 est



  • I noticed your name and I love to fly fish too. It sounds like you have been through a lot and still not getting any relief.
    I have never had surgery but did have a Doctor mention having a pain pump put in. I hope they can find something to give you some relief it is not the way a person should have to live.
    Do you have a good Doctor that works with you to control your pain? I currently am battling pain that has taken control of my life and I hate it but am still fighting to find some relief. I know a lot of others on here are struggling and so many can be helpful and are so great to listen when you need someone.
    Anyway lets pray we both get out and are able to fish cause there is nothing to me that brings me more happiness except my Grandchildren.
    Take care of yourself and keep us posted of how you are doing.
  • Hello
    I have a great pain doc and more like a person than a uppity Dr ! Which means a lot to a person going thru this ! I have to decide to go with implant by Weds 12/9/15 so I am in the time frame that my insurance pays the majority let alone dealing with the pain ! Im missing out on so much of life because of the pain ! And all the pain meds im sure are doing a major toll on me as well ! Just trying to find some one who has had implant put in to see if it at least they get some kind of relief from it ! Even if I can get 20 percent of relive its worth it at the rate im dealing with pain I get no relief no sleep and what I enjoy I cant do because of it ! I've had two surgery's all ready to replace disc's so this is a piece of cake getting implant just trying to figure out is it worth it !$52,000 for it to get done here in Conn.
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  • jtal19305jjtal19305 Posts: 33
    edited 01/15/2016 - 3:44 PM
    I understand your pain. After my botched surgery at t12 l1 the surgeon left me in chronic pain. My lower legs and feet burning in pain constantly. Also have calf fasiculations. Never had this pre surgery only was getting leg weakness and he operated due to a large disc bulge and osteophytes at T12 L1. Probably due to my adolescent scoliosis that degenerated that level over the years. I'm in my ate 40s only. My life has been altered. It's sad. I was told to wait and see if it improves. It's been over 6 months and only a little improvement. The current mri shows that the cord is still tight and the disc material was not removed. All the surgeon did was a posterior laminectomy and interbody fusion with instrumentation. He claims it was a success but I've learned now that the surgery should of been done through my side so all the disc could be removed. Maybe I'm lucky not to be paralyzed with this condition but the pain is an anchor.

    I've seen other docs and just about all advise against going back in now or in the future to further remove and redo the fusion. It could damage the cord and I could become worse. Some tell me I should trial a scs but bad experiences lack yours scare me away. I don't want more surgery unless I can address the root cause.

    So I understand your pain and suffering. I was very healthy happy and active prior to this surgery and now I'm in pain. Maybe I would of been better off to just avoid the Initial surgery and let my body react. Can't Un ring that bell. I like you and many others who relied on medical professionals did not end up too well. Spine surgery is risky business.

    I still will press ahead hoping to naturally get better. The pain meds provide little relief although I think without the lyrica my pain would be 10x worse as I went off it for a day or two and I felt extreme burning pain.

    I'm going to keep looking for help. I think there may be a surgeon out there confident enough to take my case and fix this issue. It is a matter of removing the disk and spurs behind the cord (which is in the dura sac) and placing a new interbody cage. It sounds straightforward. This time come in from the side and decompress fully. I hope I just get better but my body is screaming; the cord is pressured and I'm afraid what kind of long term damage will be done. So I may risk it with the right surgeons.

    Don't give up. Try the fentanyl patch for pain. Also the pain pump I hear may be better for you. I hope you find relief. No one should live like us; it's sad. My daughter doesn't understand what I'm going through and for me to not be my fullest for her is the worse part of this. If it weren't for her I would just say God only gave me this much time and maybe it's time to go. Yes that is a cheap way out which I will not chose but sometimes the pain and the guilt gets to a person. I feel guilty that I could of made better choices and been better prepared to avoid this outcome. They say don't beat yourself up over it, but how do they know how I feel. I can't live the life I dreamed of. Maybe I need to adjust still. God bless you.
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