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Hello,, glad I found this place

elsieeelsie Posts: 2
edited 01/23/2016 - 8:18 PM in New Member Introductions
Hi everyone.

I got a final diagnosis yesterday after three months of moderate to severe pain in my hip. I have a benign tumor in my ileum call the fibrous dysplasia . That tumor calcified back in October, and caused hairline fractures in the bone. Right next to my SI joint. Some of the pain was from the fracturing, which has now healed. But, I am still in a pretty decent amount of pain. They say it is from osteoarthritis which was caused by injury of the fracturing by my S I joint.

At first my orthopedic oncologist was talking about doing an SI joint fusion surgery. But now that I've had an SI joint injection, and they've done a new MRI, she said that procedure is really a last resort. They want me to do eight weeks of PT and see how it goes . And everyone from my orthopedist to the oncology department to my acupuncturist is telling me that from here on out forever I will probably have some pain in my hip. I really am not happy about that idea.

So I am here looking for information and to hear others' experiences. I haven't found a single person who is had this kind of tumor that I have. Mostly I'm just hoping to either figure out a way to get rid of my pain, or be able to somehow change my lifestyle so that I don't put myself in pain all the time. I have a very demanding job… 50 to 60 hours a week normally, and I just can't do it anymore. Not sure what I am going to do.


Fibrous dysplasia tumor left iliac bone
S I joint osteoarthritis


  • LizLiz Posts: 8,835
    Please take the time to read this post and refer to it when you have questions

    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and growing.
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    As a bonus, Spine-Health provides these patient forums. Here you can meet thousands of people who understand and can relate to your situation. You will soon become part of the Spiney family[/u] who provide comfort and the advantages of a support system. You are now part of this family that is approximately 27,00 international members and growing daily.


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    Liz, Spine-health Moderator

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • SavageSavage United StatesPosts: 7,385
    I may have missed it, but curious if you are working with pain management doctor for your chronic pain?

    You are working 50-60 hours a week! Wow!
    Even when I was healthy, that is a difficult schedule to maintain as a steady diet.

    I haven't any experience with your concerns.
    I look forward to reading the replies to your post.

    In the meantime, you may find it helpful to use the search on this site, upper right on page.
    Typing in your concerns may lead you to current or older posts.
    And may lead you to the medical side with articles and videos.

    Often times when I search, I find I have more questions that I jot down for my doctor visit.
    Honorary Spine-Health Moderator
    Please read my medical history at: Medical History

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