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25 y/o with chronic back pain for 15 yrs, help please

When I was 10 I began getting severe muscle spasms in my should blades. My mom took me to every doctor where I received every MRI, X-ray, Cat scan, EEG, you name it. Nothing ever showed aside from inflammation, spina biffida occulta, mild stenosis, scoliosis, but nothing that should be causing this much pain. One doctor diagnosed me with fibro at 10. Years later I have been on every muscle relaxer, pain killer, anti inflammatory, anti depressant for nerve pain, tried physical therapy, chiropractic, accupuncture, yoga, you name it. Nothing seems to work, I am at my wits end in unbearable pain between the muscle spasms, the aching throbbing of my spine and neck it is ruining my life. I am active and have tried everything. Pain relievers dull the pain temporarily and nothing seems to work. I need answers. Every doctor is intrigued by me initially and then slowly every test keeps coming back negative. I don't want to rely on pain medication anymore. Any one else experience anything like this? I've never met anyone my age (especially at 10 years old with this problem) 


  • SavageSavage United StatesPosts: 7,385
    Honorary Spine-Health Moderator
    Please read my medical history at: Medical History

  • SavageSavage United StatesPosts: 7,385
    edited 02/25/2016 - 8:47 AM
    Hello kaitlyn....
    Wow! All that started at age ten. 
    Unfortunately, the issues you describe can happen at a young age.
    You mentioned the tests you had as a youngster.

    Curious if you have seen a spine specialist as an adult?
    Curious if you have had testing since being an adult?
    Honorary Spine-Health Moderator
    Please read my medical history at: Medical History

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  • Sorry you've been in so much pain for so long.  I'm 39 years old and have dealt with severe back pain for 17 years.  Like you, I've tried everything, physical therapy, chiropractor, muscle relaxers, etc.  But in all my years of seeing doctors, no one mentioned spinal injections.  I only recently heard about them.  I went to a local clinic that dealt specifically with back pain.  I had to beg the doctor to let me try an injection, but he did schedule me. 

    I just had an injection a couple of days ago and (fingers crossed) so far so good.  On a scale of 1-10, the pain has gone from a 7 to a 2.  They have warned me there's no guarantee how long the pain will stay away, but after dealing with excruciating pain 24/7 for 17 years, two days of very little pain is wonderful!

    Of course, everyone's different, there's no guarantee that it will work for you, blah blah blah, but It's worth giving it a try.  At this point, what harm could it do?  It can't be any worse than what you've already gone through.  Google epidural steroid injections and see if there's some place near you that performs them. Good luck!
  • MarWinMarWin OhioPosts: 700
    You've been through it all. And you don't mention any surgeries. Amazing! I agree in that if you can get relief by way of meds/etc that at least gives you time to focus on correcting  your conditions. I hope both of you can keep the forum posted! 
  • itsautonomicitsautonomic LouisianaPosts: 2,561
    edited 03/01/2016 - 1:20 PM
    I am a broken record on this, but 15 years without a true diagnosis is ridiculous.  Have you even been to one of the large, well known teaching hospitals to be evaluated by a team of doctors that collaborate on what is happening ?  I highly recommend it is you have not, the money you have spent over those years I am positive is much more than a trip to one if you live far away.  Game changer for me and hard to diagnose issues.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
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  • i have never had any surgeries because anatomically i am fine. there are no discs out of place just overactive muscles constantly in a spasm. as an adult i have had numerous tests every year or so -- still nothing.  i have to drive with heating pads and i am constantly carrying icy hot with me to find mild relief. 

    no one can figure out why i've had spasms all these years. i do not know what to do anymore.

    what type of spinal injections did you get wkingmom ?
  • dilaurodilauro ConnecticutPosts: 13,531

    Your situation is something that so many folks, especially younger ones go through.  At first all the tests are done to identify the problem(s).  Then as the come back negative, the doctors start to think, there is nothing physically wrong with this person, perhaps its in their mind.

    That is always so wrong and unfortunate.  Because the tests come back negative does not mean that you are fine.  All that is saying is that the tests that have been done so far,  the results come back negative and nothing can be isolated.

    That just means more work needs to be done by the medical team.  Spinal problems can be very difficult to identify.  It is like the game of Clue.   Hints and clues are given, step by step tracing, looking at the total picture and much more.  As the patient, we can't see all of that, we just need to give the doctors as much information as possible.  At times maybe too much information.

    Its those medical professionals that now have all your tests, all your information that need to figure out what are the next steps in identifying your problem.    Doctors just can't say , No, we have not found any problem, so there fore.....

    At that point, we need to tell the Doctor, no, that is not acceptable.   I understand if you have not be able to isolate my situation, but please tell me other medical professionals and/or tests that go deeper

    I dont have any answers for you .  But I will say that do not take  We dont know, there is no problem for an answer.
    As long as you know the pain you are having is not normal and that there is something wrong, continue looking and fighting if necessary to get an answer.

    Now, when I have posted this type of message before, I will also add.... There are situations and individuals when all the tests have been done and still no problem can be identified.   At that time, if the medical doctor hasnt already suggested, we need to think outside of the physical pain..  Could some of this pain not be completely physical pain, but something behind it?   Many patients have good results after talking to a counselor about all of this.  Not any counselor, but some person that deals and understand the overall impacts of chronic pain.

    Dont give up and stay positive!

    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences 
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