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SI Joint Pain

AnonymousUserAAnonymousUser Posts: 49,321
edited 06/11/2012 - 8:20 AM in Chronic Pain
I've been dealing with low back and si joint pain for over 2 and a half years now. I have seen 4 physical therapists, 1 occupational therapist and I am doing feldinkrais, massage therapy, and Pete Egoscue's Pain Free method. Each has made limited improvements. My present PT tells me that the pain will go away eventually - like in a year or so, now that the joint is back in place - though the joint hurts on a continuous basis and does not appear to be getting better. My DO doc is pill happy and keeps trying to get me to take pill that give me chest pains, raise my blood pressure, and my pulse rate. I am a male 45 who has always been very active. I have always been a cyclist, kayaker, skateboarder, scuba diver, as well as recreational weight lifter. My current PT has restricted me to walking only and only on level ground :( booooring. I find that I must really keep the pace slow (3 mph) or the si joint flares up.It has been very tough not riding my bike now for over 8 months. I've been on very light duty - 10 lbs from waist high - for almost a year now. How long is it reasonable to continue at such a low level of inactivity? I've lost over 25 lbs since being put on light duty. I have been diagnosed as pre-diabetic in the last 3 months and I believe that the lack of strenuous exercise is to blame.My doc wants me to see another specialist - this would be my third. Should I tough out the pain and trust my PT? Should I get another opinion even though the other two specialists basically told me that this is as good as it gets, and there is nothing else that I can do? I am getting tired of the docs and the PTs saying you are doing all the right things. My first PT at my first visit told me that I would be pain free in 6 weeks. I when to that PT for 6 months and there were still telling me just 6 more weeks. I am basically paying for all these treatments out of pocket because I have high deductible insurance, so in addition to the pain my finances are hitting rock bottom making it tough to justify going to see yet another expensive doctor. I am also considering prolo therapy but am finding it difficult to locate a doctor that is closer than 2 hours away from me and one that would do a good job.

Sorry for the ramble and thanks for any new ideas that my help me resolve this pain and get back on with living a life that is worth living.
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Comments

  • :) hi and welcome to the forum! i see this is your first post. we are here to offer you support and answer what questions we can. a third opinion could not hurt. having as much information as possible is always the way to go. i know this may be difficult to hear but you may be on limited activity for a Loooong time!!! it may take more than several months to get your pain under control. i wish you the best. check around the forum for some input on your condition. check "Chronic Pain." Jenny :)
  • Hi JR,

    It is nice to meet you. My name is John and It was my 1st post here as well. I really feel for you with your pain. I am young still and I have severe pain that prevents me from doing much of anything, and this has been going on for 3 yrs now. I had many surgeries and It came down to Nerve damage and there is nothing more they can do but give me Pain meds, which basically is pretty much the same the whole time Oxycodone. My body is too used to this already and does not help much at all anymore. I get very vicious stabbing pains(Spasms) and also reg. pain that goes with it. That is the pain that comes down alittle with the pain meds, but the spasms are always a 10.

    I am sorry if I keep rattling on here, but I am so sick of this pain that I feel so worthless alot. I guess you can still say that I am still depressed, but not as bad as what the 1st year brought on from going to know that I was going to loose my great job that I had. I was the only provider and still now also(If you would call disability your only income to your family) I also have 2 little boys which I love alot. My wife Does not give me any loving support for a long time now, and that really has me very down.

    I saw that you had liked to lift weights. So did I. I used to bodybuild and loved it. Now you would not really be able to tell that I did it. I was only ever natural. never went with the steroid thing. I care to much for myself not to ruin my health that way. So I am sorry that you cannot do all of the sport related things you used to do. It really is sad when someone is so active and then it only takes 1 thing to mess your life up. I hope you can one day get back into some of your hobbies. I know how much down you have to feel.

    Well it was nice to meet you and hope we can talk again.
    Take care JR

    John
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  • Thanks for the kind words. I appreciate the concerns and experiences that you all have shared. I think that I will get that 3rd opinion. After reading what some of you have done to get better I feel ashamed to be complaining about my problems.

    Thanks again

  • I am sorry to hear about your pain. I am glad to know I am not the only one going crazy from SI pain.

    I had lumbar fusion L5-S1 almost four years ago. In general, the surgery was a success and I am mechanically correct. I have had moderately high SI pain since surgery and it is making me crazy. I see a pain doc. I take Utram ER and 1-2 vicodin a day. The SI pain is very tough to knock out unless you step up the pain meds.

    I am still looking for answers and will keep going until I get better. I tell a similar story. I was 32 when I had surgery. I was very active with cycling, working out, etc. I have had to cut everything out. I walk 1-2 miles several times a week, but not too fast because it bothers the SIJ.

    I have been to PT 3 times and going for the 4th this week. I just finished the 6th of 12 prolo therapy shots. I can't see a difference yet. I will reserve judgment until I have had at least 10. I have read at least 10 books on back/SI pain and tried many exercises. I have found almost nothing helps. The best help comes from the DonTigny exercises. He seems to have a good handle on the SIJ.

    What drives me crazy is that you can't escape the pain. Laying down certainly helps, but it is not enough. I really want to get back to some of the things I enjoyed. I am thinking about Radiofrequency Neurotomy after the prolo shots. I can't believe there are not more answers for this pain. Nothing seems to help other than the cortisone injections. I get good relief from the injections, but they only last 2-3 weeks. I don't like the drunk feeling from the meds. I will keep looking and trying for solutions and pass on anything that helps.

    Mark

  • I may have missed something in another post but have you seen spine specialists (e.g. orthopedic or neuro surgeons) and had a recent MRI of your spine done? The first step in pain relief should be to accurately diagnose the problem. Lower back pain can be caused by many things. And, if you have had previous surgeries, factors such as scar tissue could be causing new problems.

    Many of us here firmly believe in getting second or even third opinions, but you need to do some research and find a good specialist in your area worth getting an opinion from. jr_really, if you have just been seeing Physical Therapists and Occupational Therapists it's probably about time to seek out a good spine specialist. Don't be put off about the title 'surgeon' - all good ortho or neuro spine surgeons worth their salt will explore all conservative treatment options first, before even thinking surgery, which should always be a last resort.

    (I had bad SIJ pain after my L5-S1 fusion but fortunately it came right after several sessions with my physical therapist and lots of stretching and mobilisation exercises at home - seems that SIJ issues after lumbar fusions go hand in hand).

    All the best... Bruce
    Keep positive!

    Bruce

    ...an old timer here and ex-moderator

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  • I've had SIJ pain for many, many years. Just recently two rheumatologists dismissed the possibility of some kind of spondylitis, but a third rheumatologist did an extremely extensive (and intensive!) assessment of me, pieced together all the discreet little symptoms over the years and started me on an NSAID called Froban or Flurbiprofen. I had approximately 60% relief immediately, and am now just waiting for another trial drug to help with the continual spasms and soft tissue pain.

    Bruce is right; hopefully you've had a recent MRI and the chance to see a specialist. If the SIJ stuff carries on, it might be worth looking into a rheumatologist. There are several types of arthritis that play havoc with the SI joints, such as ankylosing spondylitis.

    Good luck, and keep searching - hopefully you'll get some relief. I had three rhizotomies and steroid injections into my SI joints which helped temporarily, but never long enough.

    Tracy
  • EDITED

    Standards agreement and posting rules
    Please note that Spine-Health reserves the right to edit any messages posted or submitted or e-mailed to the Company and use them for content on the website or in other company materials. No e-mail solicitation or advertising of other companies, products, services, or web sites is permitted in the Spine-Health.com forums.


    Post Edited by Moderator haglandc
  • Even the brightest of stars on the basketball court can be dimmed by chronic joint pain in the knee. Joint pain is often associated with aging or with specific illnesses such as arthritis. These associations may lead sufferers to feel as though there is no hope for joint relief. However, understanding how the knee functions may help alleviate that hopelessness. Knee joint pain can be caused by many factors and even joint pain that is caused by aging or illness may be easily treated by diet, exercise or even supplements that support joint relief such as EDITED

    Standards agreement and posting rules
    Please note that Spine-Health reserves the right to edit any messages posted or submitted or e-mailed to the Company and use them for content on the website or in other company materials. No e-mail solicitation or advertising of other companies, products, services, or web sites is permitted in the Spine-Health.com forums.


    Post Edited by Moderator haglandc

    The knee joint is formed where the thigh bone meets the shin bone. It is comprised of the inner and outer medial, the kneecap and is surrounded by ligaments that work to create stability and strength to the joint. Joint pain in the knee is most commonly caused by a softening of cartilage below the kneecap. This breakdown causes the kneecap to rub against the thigh bone when you move your knee.

    The breakdown of cartilage in the knee can be a result of trauma, age, or a disease such as arthritis. The good news is that joint relief is possible. Joint pain in your knee is highly treatable and while you should consult a physician before embarking on any treatment plan, there are many things you can do on your own to find joint relief.

    For more severe cases of knee joint pain, ice packs and immobilization may be helpful. Additionally, there are a variety of dietary supplements that offer joint relief. Studies have shown that some, such as Flexoplex, are highly effective at helping repair cartilage damage using Natural Eggshell Membrane. For most cases of chronic joint pain in the knee a combination of these treatments will be most effective.
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