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Help!!

Max_LeeMax_Lee New York, United StatesPosts: 389
So I've had this issue since early June, progressing to a peak in August, then tapering off except for pain.

June: Injured dropping, grabbing, then throwing equipment off the back of a truck. Told it was a sprain a week later, pain escalated.
July: fell out of one march, told to quit faking. Psych consult said I was clear for duty. End of the month, I was pulled from the final march after loosing the feeling in my hand (still haven't got all of it back)
August: Provider decided I may not be lying to skip training and gets a consult & an MRI. Told it was nothing serious (it was waayy more serious). Then it got 1000x worse. I couldn't feel my legs or walk for a week. Civilians say it makes sense, military providers (save like two I met) thought it was faking...I was terrified that I'd never walk again. You can't really fake that brand of fear. 
September: Fired. Moved home and pretty much drank every night for a month until I got the courage to see a specialist. Not good, but I was really, really messed up.
November: Spine specialist told me to come back if no improvement w/ PT/meds under PM. Tried 2 rounds of epidurals, bot failed. PT released me because they were just hurting me more.
January: Trigger point injections failed.
February: Finally began receiving treatment for PTSD
March: Scheduled appointment with spine specialist. Agreed to medial branch block (it failed).
I'm on 300mg 2x/day gabapentain & 600mg at night, 4mg zanaflex 3x/day, 2 500mg tylenol 3xday, 20mg prozac a day, 2mg prazosin/night, and either half an ambien or two benedryl to knock me out enough so I don't loose too much sleep and go off the deep end completely.
In the past couple weeks, I've been dropping stuff, usually little things like pens and glassware; having difficulty getting up/down one flight of stairs; increased pain from my norm; and getting pins and needles in all my extremities and the small of my back, not just my right hand anymore. I trip over my own feet on flat surfaces, anything. I am far from this clumsy.
I go to PMs NP tomorrow and the spine specialist next week...What do I say?
Kieran 
 "The loneliest people are the kindest. The saddest people smile the
brightest. The most damaged people are the wisest. All because they do
not wish to see anyone else suffer the way they do.''-Anonymous


My Story: https://www.spine-health.com/forum/discussion/90688/pain/neck-pain-cervical/help#latest


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13456

Comments

  • Sorry to hear you're going through this :( My experience has been MRI, neurologist, surgeon consultation, try to make a plan. It's important to diagnose the reason / level of neck problem, so you don't have a surgery and find yourself still in the same place.

    Lots of good info on this site. Where are you located? I've researched specialists in a couple of locations.
    Iskra
  • dilaurodilauro ConnecticutPosts: 13,584
    Mar,

    When you keep mentioning dropping of items (from your hands) I tend to go towards the cervial area as being the problem.   If in fact it is a cervical disc, they should be able to isolate the disc based on the finger/harnd you are haiving more problems with

    I know you dont complain, so, right now, you have to be pretty upset with the entire situation,

    Hopefully, when you meet with your doctor and you discuss your current symptoms, they will look into more tests to isolate where the problem really is.
    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences 
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  • I second Ron's comment about the cervical spine.  I have a herniation in c6/7, and I go through intermittent periods where the partial numbness in my hands equals me staying away from glassware for a bit!
    Kimmy72, Spine-health Moderator
    Firm believer in PMA!
  • itsautonomicitsautonomic LouisianaPosts: 2,561
    I agree, I was dropping alot after my cervical cord injury. A cup of water felt as if it weighed 100 lbs , i was noticing tripping alot, loss of proprioception ( where my legs are in space),  The pins and needles is a concern also, everything you are stating could be from cervical issues or even neurapathy, even a combination of the two. 
    As a side note, heavier things were easier for me to hold because with the nerve damage the doctors said they registered better with my body, the light things like cups, pens etc did not register as well with the damage that was why they always presented the more difficult thing to hold.  This for me got a lot better, but it took years and alot of work.  I don't remember exactly what the specialist found in your neck?
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • Max_LeeMax_Lee New York, United StatesPosts: 389
    They found C4/C5 & C5/C6 are protruding back in August, itsautonomic. Ortho did not want to do anything invasive because I'm only 20.
    It was also determined via EMG that I have reduced conductivity in the right hand at least in August.
    PM decided to let the orthopedic specialist decide what to do because he referred me there. I live near the US border (1/2 hour), nearest bigish American city Syracuse by an hour. Hopefully I can hold off with anything taking me out until I'm done with my certification in June.
    Kieran 
     "The loneliest people are the kindest. The saddest people smile the
    brightest. The most damaged people are the wisest. All because they do
    not wish to see anyone else suffer the way they do.''-Anonymous


    My Story: https://www.spine-health.com/forum/discussion/90688/pain/neck-pain-cervical/help#latest


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  • Max_LeeMax_Lee New York, United StatesPosts: 389
    Going to spine specialist today...fingers crossed for answers.
    Kieran 
     "The loneliest people are the kindest. The saddest people smile the
    brightest. The most damaged people are the wisest. All because they do
    not wish to see anyone else suffer the way they do.''-Anonymous


    My Story: https://www.spine-health.com/forum/discussion/90688/pain/neck-pain-cervical/help#latest


  • Max_LeeMax_Lee New York, United StatesPosts: 389
    The only answer I got was 'I don't want to do anything because of your age, I'm sorry you're in pain' pretty much word-for-word. I was told I was more than welcome to see someone else, but that hit me pretty low. I'm too upset to even cry. I have tried everything I was told to try. I can't take more for the pain. I'm hardly functioning as it is, I have been having to drag myself to class, out of bed, because I'm in worsening pain. This isn't funny anymore, I want to wake up from this horror film. 
    He's basing this off my age. I get he's been to school longer than me. That's hardly fair, though, to say I'm not going to do anything because of your age.
    Kieran 
     "The loneliest people are the kindest. The saddest people smile the
    brightest. The most damaged people are the wisest. All because they do
    not wish to see anyone else suffer the way they do.''-Anonymous


    My Story: https://www.spine-health.com/forum/discussion/90688/pain/neck-pain-cervical/help#latest


  • itsautonomicitsautonomic LouisianaPosts: 2,561
    Yea that's really tough to hear.  I am sorry.  I hate that statement also , at least elaborate on it don't just make a blanket statement to a patient. 
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • Max_LeeMax_Lee New York, United StatesPosts: 389
    I wouldn't be likely to make a blanket statement to a patient, so why in
    the name of mike would someone go do that to me? It's not fair to say that to a patient, you should be honest but tell them what is happening/why it's happening without just making a blanket statement, sugar-coating, or lying. It's gonna be a loonng night. My family wasn't much help either. I hate the fact that my father manages to pry every little thing out of me.
    All I said was 'He says I'm too young to help' and he went off on his spiel again. I am getting another opinion and I am finished with my father. He can be whatever he chooses and do what he wants. However, he's got to understand that I am finished tolerating his behavior. I'm going to live here until I can afford to move out, heck I may even speak to the man on occasion, but I'm done. I am living this horror movie, not him. I've said it before, I'll say it again: I. Am. TWENTY. Most 20 year olds don't stay in their room the majority of the day trying to fight this off. I have tried a lot of different things to try and fix it, I am still here for a reason; however, I can't live like this.
    Google some names+phone around in a couple days+go to friend's place to lie down/cool down from that, ahem, disagreement  before I say something I regret+call cousin who knows some people (because he used to be a surgeon).
    I just want it to even just ease up a little bit, it's not funny when you can't wake up because you are awake.


    Kieran 
     "The loneliest people are the kindest. The saddest people smile the
    brightest. The most damaged people are the wisest. All because they do
    not wish to see anyone else suffer the way they do.''-Anonymous


    My Story: https://www.spine-health.com/forum/discussion/90688/pain/neck-pain-cervical/help#latest


  • joggerspiritjoggerspirit NJPosts: 166
    edited 06/09/2016 - 12:59 AM

    Hi Max_Lee,

       Sorry to hear your in such pain and without any help in sight ! I see your in NY area, have you tried the Hospital [EDIT]? They have quiet a process in which you have to send all your results/ test and history to them. They go over everything with a fine tooth comb and if they feel you are a candidate you then get the appointment. The good thing is they aren't there to waste anyone's time. I am seeing Dr. [EDIT]  and I really thought this doctor made a good diagnosis, as well as hearing my concerns. He was the only doctor that really went back to the beginning of my issues. I have had ADCF C5/6 w/o hardware and ACDF C6/7 with implant. Two other Doctors consider it a failed fusion but Hughes felt the second surgery didn't address all my complaints. The C5/6 has a huge bone spur pressing on my spine, it was there all along but my surgeon refused to listen because he did the first surgery. Stating no way could there be anything wrong. Needless to say I have been in pain for approx. 2 years !

     I know what you are going through ! Stay the course and hang in there ...things will get better !

    Tracy~
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