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Im in excruciating pain with severe headaches that wont go away everyday but MRI shows nothing why



  • neckhellnneckhell vancouverPosts: 10
    edited 07/14/2016 - 1:58 AM
    Thanks for comments, I went for the video imaging I have not got the detailed report but wrote down diagnosis of Atlanto Axel Instabilty. I have been trying to find information on it but there is not much so I am not sure what it means.

    The chiropractor that did the video xray is very kind however it cost me over 1000$ to get this diagnosis. Dont know how else to get help because every specialist or doctor I see is horribly mean, I dont know if I am cursed or what.
     Its gotten to the point I am afraid of doctors and go into a deep depression before and after any appointment. I just cannot believe the treatment I am getting, its unbelievable, so unnecessarily cruel, for  20 years I feel like I am banging my head against a wall.  I even brought my mom into my last appointment in attempt to stop the abuse it did not work he was dismissive mean, and interrogated me like I was lying. I feel like I am reliving my abusive relationships with the doctors WTH?

    Do I have to continue to pay money out of my pocket to get a doctor to listen? Is there specialists you can see without referrals in Canada, its a nightmare even to get a referral from a GP they dont believe me and dont care. thanks for help sorry I am frustrated:(

    Comment edited by Liz, Spine-health Moderator

  • neckhellnneckhell vancouverPosts: 10
    edited 07/14/2016 - 2:07 AM
    You can feel the injury in my neck my neck  on the top left and it  feels like it goes in a sideways "V" to the side. If I am sitting forward (for example on a couch) I have to turn my neck to the left side, forward position hurts.
     I also have to sleep sitting up with my neck turned (in this same position)to the side this because my neck cannot be elevated of any sort with a pillow, and any other sleeping position hurts. Why does this type of thing not show on a MRI I dont understand .
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  • jc24jjc24 Posts: 43
    edited 07/16/2016 - 10:42 AM
    Have you relieved your report from the DMX? What does it say? Prolotherapy may be able to help you... I'm currently under treatment myself [edit]

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  • neckhellnneckhell vancouverPosts: 10
    edited 07/16/2016 - 11:48 PM
    I will not find out the results untill beginning of August. Thanks I will check out prolotherapy. Right now I cant even function have to put A435 all over my neck all day, throwing up from pain for a week.  Its horrible dont know what to do I just wish I have pain killers and I have nothing at all because nothing works my neck hurts so bad.
    I get flare ups every few weeks that last for a couple weeks where I cant do anything at all which is what I am in now but its worse then ever something feels really wrong with it.
    I just dont think it is right I am left to deal with this agony, I should not have to be in a state that I can function 24/7 why is there no doctors to help me
  • Just keep pushing! See as many doctors as it takes to get someone to listen to you. You know your body, just because an imaging test reports nothing means NOTHING. I had a cervical MRI done a month before my scheduled ACDF. The report said nothing was wrong with me. 

    My surgeon however actually looked at the images not the report and found my herniation was worse, and I had two more bulging disks, with degenerative disk disease, cervical stenosis and facet arthropoathy.

    I hope you find an answer soon. I have been living with daily crippling migraines for 2 years. I have a surgeon, neurologist and PM doc all working to help me. I cannot imagine feeling like this for 20 years with no answers. 

    Stay strong, and do not take no for an answer. Best to you. 
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