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Chronic Back Pain & Fibro

I was reading some of the blogs and it's good to know that I'm not alone in what I'm going thru. Maybe this will help me cope with the pain and mentally get it off my mind. Unfortunately, back pain runs in my family on my father's side. He had so many surgeries and then couldn't have anymore, he would've ended up in a wheelchair. All my Uncles have back pain & now my cousins younger than me, are on their 2nd  or 3rd surgery, with no relief.  I went to 4 different neurosurgeons and ortho surgeon. After reading all my test results, each and everyone of them said that I would need a spinal fusion but there is no guarantee that you will be pain free or that the surgery would help. I'm currently going to pain mgmt and haven been since 2007 when I had a neck fusion. That went ok, have lost some strength in my left arm and can only turn my neck to the left half way but it beat being in pain and not being able to use my left arm at all.

I'm depressed, have anxiety and everything else that comes with having back issues along with fibro. I have had all sorts of injections, which only last a couple of weeks and am on pain meds. My doctor had left for another office, so I'm seeing someone else in the same office. My problem is that there is no fix for all the issues in my back & yet last month when I received a nerve block injection, she said our goal is to get you off all meds. How is that possible when nothing else seems to work? No pt cause it will cause more damage. I have bulging discs, herniated discs, spinal stenosis, arthritis all over my back, my last disc is almost gone, sleep deprived, can't walk or stand for long periods at a time. Got laid off in 2013 because of this and finally on disability. There's days I just want to jump off a cliff. The meds are only helping me to calm the pain so that I can at least go for a short walk. I don't think some of these doctor's know exactly the kind of pain I'm in because I don't think that they have experienced it.

Now I have to have a hysterectomy in June, it just never ends and I'm only 53. Any suggestions on what has worked for you with every day pain from lower back down to feet? Thanks I guess I needed to vent.
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Comments

  • SavageSavage United StatesPosts: 7,385
    hello tleary53 !
    welcome to spine-health
    please click on link for helpful information!
    Sue
    Honorary Spine-Health Moderator
    -------------------------------------------------------------------------------------------------------------------------
    Please read my medical history at: Medical History

  • SavageSavage United StatesPosts: 7,385
    Hello....
    I have never been a candidate for surgery, so I can't speak to that.
    But I am a fellow chronic pain sufferer. And I, too, am on Disability.

    My PCP tried to work with my pain about two years before referring me to pain management.
    And that was best thing for me! So, hopefully as you continue to work with your new PM doctor, he will get to better understand your individual  situation.

    I will continue with pain meds, and I'm monitored monthly by PM doctor.
    He has gotten me to the point I no longer need ER for my crazy making pain. That was my main goal!
    I am considered stable with the edge off of my pain.
    But I remember initially, much of the care was trial and try again for what is most effective with least or tolerable side effects.

    Often times anti depressants are used in treatment of pain, also.

    I also suffer with depression and anxiety that chronic pain grabbed hold of.
    I referred myself to psychiatric care.
    It does not need to be a forever thing, just until transition to more manageable living.
    Personally, I choose to continue seeing psychiatrist for medication management as I have never felt more emotionally and mentally able/stable in my life.

    I did talk therapy for a time. There are specialists who work with depression and chronic pain.
    When I found her, my quality of life increased quickly. I would never hesitate to resume therapy if I felt myself falling!

    Also, just a thought, that you would want your PM doctor involved with your hysterectomy...to care for the chronic pain with the acute pain of surgery.

    While you are waiting for others to respond with shared experiences, you may benefit from using the search on this site, upper right on page.
    Typing in your concerns, you may be led to current or older discussions.
    You may be led to the medical side of this site with articles and videos.

    You found a very supportive and informative site!
    Please keep us posted!
    Sue
    Honorary Spine-Health Moderator
    -------------------------------------------------------------------------------------------------------------------------
    Please read my medical history at: Medical History

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