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I don't know what to do

johnserellyjohnserelly Punxsutawney, PAPosts: 2
Hello all!

I am a 35 yo male and had a spinal fusion of the L3/4 and L4/5 levels. My fusion is solid and looks great under X rays and MRI.  I have pain that will not go away around my tailbone and inner hip area. I have gone through injections, PT, acupuncture, massage, all sorts of pain medicines, and still the pain is persistent. I have been off of narcotic pain medications for over a year so that I could tell if I really was in the pain that I was experiencing.  I am definitely in pain!  I have seen a couple of different doctors from inside and outside of the VA and nobody can tell me what is going on. I originally had an injury to my L2 vertebrae in 2004 in Iraq and two years after that, I had my fusion. After the fusion was done and healed, I had virtually no pain for about a year and a half and then, BOOM! It was back with a vengeance! From what I have been reading on different web pages is I may be experiencing pain from either the sacriallic joints or the L5/S1.  I think it could be both. My L5/S1 is barely there, but nobody will touch this area for some reason. My pain goes down the right leg most of the time and sometimes it will go down the left.  The pain is constant in the buttocks and near the hip. It feels like it is burning, it doesn't throb, it is dull and achy.  I feel the most pain while standing or sitting in one place for more than 5-10 minutes. I just don't know why nobody can figure this out. I am so frustrated and mad!
I have a really hard time with the VA. Unless your MRI shows that you need surgery, they won't even see you! That's insane!  I hope that somebody can help me figure this out. It is clear that I will have to spend my own money and go find a doctor outside of the VA, since I have moved to PA from WY. Any suggestions will be greatly appreciated. Thanks!


  • Hello John
    Welcome to Spine-Health

    Sorry your dealing with that type of pain!
    Please click the welcome icon below my signature to get some more info.

    Ime sure some folks have experienced and may be able to answer some of your querys!
    William Garza
    Spine-Health Mod

    Welcome to Spine-Health

  • It might be a good idea to see a private spine specialist. Maybe you could take their findings back to the VA to sway them into doing something else for you. I'm not familiar with how they operate, but definitely feel there is big room for improvement. From what you mentioned about the L5-S1 level, it merits another look. 
    Ol' Spiney..Micro-D L4-L5, TLIF L4-S1 -post op central HNP L4-S1,stenosis, retrolisthesis, EF, facet arthropathy, lumbar& cervical DDD. FBSS- Medtronic pain pump & SCS
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