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for those of you with daily chronic pain..

foreverpain123foreverpain123 Alberta, CanadaPosts: 27
edited 08/06/2016 - 10:09 PM in Chronic Pain
How do you manage day to day life while being in constant pain? Do you get what you have to get done, done and suffer at the end of it or manage things when you can, if at all.

I try to avoid relying on meds to get me through the days pain free. I feel like my life responsibilities are stacking up but I'm in far to much pain to care. Tell me I'm not the only one 
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1

Comments

  • I used to fight through the pain everyday.  Now I have given in and I take pain meds.  Best decision I ever made.  I feel better, and I enjoy doing things I couldn't before.  I still have bad days but I can also do some of the things I want to do. Do I rely on pain meds to much, I don't think so.  They are a tool that have given my life back to me in some measure. 

    You just get to the point where you are tired of hurting all the time. 
    Dmo
  • In the beginning I would move constantly. That caused more pain. Then I went way over to the other side & did almost nothing,thinking it would calm it down. That was even worse. So now if I don't move I get beyond restless. My plan of action every day is to take it just that, day by day. I do things very slowly,taking many breaks in between. I make myself go for a mile walk & try to do 1 load of laundry,maybe more,and 1 load of dishes. I try to sweep, vacuum, or wash the floors as my body can tolerate it. If I feel it's too much,I remember to stop & try later. 

    I was so behind in chores too. When I finally got around to them I took 1 thing at a time & as fast/slow as I could do it. No condemnation! It feels great just doing small amounts knowing I accomplished it!
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  • foreverpain123foreverpain123 Alberta, CanadaPosts: 27
    Dmo,

    Yea I hear that. Some days I just get tired of hurting all day everyday. The pain is always there and so bad. Don't get me wrong I'll take a pain killer when it gets to be to much. Them suckers have saved me a load of agony for a period of time. Ill take what I can get. I just wish there were a more "permanent" solution to back issues not just ways to manage it
  • foreverpain123foreverpain123 Alberta, CanadaPosts: 27
    Joyful.

    Oh my I couldn't imagine walking a mile. I'd be dying in pain. Go you for being so motivated!! 

     I've learned to take it day by day some days I get lots done some days I don't do anything. Its all aboit balance as they say ;)
  • When I hear others say they don't take their pain meds until they "just have to" I hear myself. I also hear my doctor telling me that is a classic example of abusing pain meds and grounds for terminating treatment. I always thought it best to avoid opiate meds if you didn't want to become addicted. I also thought  pee test in the pain management contract was to determine if I was taking meds more often than prescribed. It never occurred to me that I would be considered a "seller" if they didn't show in my system. If that was fully explained to me, I either missed it entirely or it actually wasn't stated - just included in the paperwork. Either way, I now know if I want to maintain the ability to have medication, I can no longer make my own decision on when I do or don't want to take them. 
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  • maehaleymaehaley PennsylvaniaPosts: 322
    I do rely on my pain meds to help me get through the day. I also take things one day at a time because I never know if its going to be a good day or a bad day. I have 3 children and a full time job so you can imagine the amount of housework that comes along with that! I do what I can and if stuff does not get done then that is ok! Some days I feel accomplished if I just manage to get the laundry done! If I can do more then great, but if not I know that it is ok. Hang in there!
  • dilaurodilauro ConnecticutPosts: 13,438
    i wrote this back in 2008 and it still holds true today for so many
    a day in a life

    as you deal with chronic pain over a while, you will find ways to get by each day.  there are new trick and styles on how to do his, but it is different with each person.

    i like to ignore my situation, hate when others bring it up.   i focus on the things i still want to do.   just because i have spinal conditions it doesnt stop me from enjoying life.   i love to go to broadway plays, concerts, movie etc besides spending time with friends.

    when i do go out to those events, i make sure i rest enough before the event , then go o the event, get up at least twice and enjoy every minute of it.   though , the next day i may pay for some discomfort and pain, but its always worth it.

    with friends, when to topic comes back to me and my spinal situation, i do everything possible to turn the conversation the other way

    some asks me ron, how do you feel today? any better?

    my response

    doing ok, if we dont get any rain soon, my lawn is going to turn all brown!

    anything to get the subject away from me.
    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences 
  • foreverpain123foreverpain123 Alberta, CanadaPosts: 27

    LarryRie said:

    When I hear others say they don't take their pain meds until they "just have to" I hear myself. I also hear my doctor telling me that is a classic example of abusing pain meds and grounds for terminating treatment. I always thought it best to avoid opiate meds if you didn't want to become addicted. I also thought  pee test in the pain management contract was to determine if I was taking meds more often than prescribed. It never occurred to me that I would be considered a "seller" if they didn't show in my system. If that was fully explained to me, I either missed it entirely or it actually wasn't stated - just included in the paperwork. Either way, I now know if I want to maintain the ability to have medication, I can no longer make my own decision on when I do or don't want to take them. 


    Im in canada and it doesnt work like that here. My doctor is fully aware that I dont take my pain meds everyday and he says that its ok that I take them as needed as I won't become dependent on them and even told me that if I needed something stronger that I wouldnt become an addict so hes not worried. Im not saying that should be how it is for everyone as again this is just my experience with my own doctor. I wasnt necessarily asking about whether or not I should take my pain meds. I was wondering how everyone individually handles lifes responsibilities day by day. 
  • foreverpain123foreverpain123 Alberta, CanadaPosts: 27
    Awe maehaley I can just imagine your load!! I wish you more well wishes and pain free days then myself. I have 2 children of my own Im lucky enough to be able to stay home with them but there are days I feel bad cuz I cant take them out to a play center or something cuz if my toddler throws himself on the ground in a fit (which he usually does I cant even pick him up :(

    Thank you for the insight ron. I shall read your article later this evening
  • dilaurodilauro ConnecticutPosts: 13,438
    another coping mechanism is distractions.

    they could be good or bad distractions, just something that will take your mind off your current situation even if for just a little while.

    i've talked to counselors about this.  how can we turn on/off elements that will distract us from our current pain.
    so, instead of pain medication at that moment, something else to effectively help in a similar fashion.

    by no means am i suggesting that this could take the place of medications, it can not.   i just always look for different ways we can cope with chronic pain day to day.

    acute pain can take the place of chronic pain in a second.  

    perfect example, you are dealing with a lumbar fusion and it is hurting quite a bit.  you need to put a nail into a piece of molding ... as you are hammering, whammo, of course, you just nailed you thumb with a 3/4 force hammer slam!   in an instant your lumbar fusion pain is no where to be found!

    i do not suggest carrying a hammer around to do this whenever your pain level gets too high.   but its something to think about ...  in fact, i am going to add this to my discussion,  the blend

    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences 
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