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Seeking for Decision Making Assistance

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13

Comments

  • Bruce EitmanBruce Eitman Akron, OH, USAPosts: 1,510

    Sorry, no, you never indicated/implied otherwise.  I didn't mean anything bad by it.  Just a poorly worded way for me to tell you to keep using us/me as a sounding board.

    This discussion may help others as well as you.  It is a hard decision for many, especially if the symptoms are still tolerable.

    Bruce

    Read my story at Bruce - My Story
    ACDF C4-C5-C6-C7, and getting better every day
    It has been a process of healing, learning, exercising, and resting - and figuring out when to do which.

  • :) A reminder is always a good one! 
    Thank you @Bruce Eitman  for being here. My walk of path to recovery has been a challenging one, but knowing that this support group being here makes me feel at a bit of ease. As I said, one has to experience "this" to know what it is really like.

    oh btw, have you ever experienced or read somewhere that regarding a difficulty to walk down stairs (fear of stumbling down)?

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  • Bruce EitmanBruce Eitman Akron, OH, USAPosts: 1,510
    momo-k

    oh btw, have you ever experienced or read somewhere that regarding a difficulty to walk down stairs (fear of stumbling down)?

    Are you taking any medicines that my cause it?  I experienced that when taking Lyrica, and it took almost 2 years to get over it after I stopped taking it.

    Bruce

    Read my story at Bruce - My Story
    ACDF C4-C5-C6-C7, and getting better every day
    It has been a process of healing, learning, exercising, and resting - and figuring out when to do which.

  • momo-kmmomo-k Posts: 131
    edited 08/23/2016 - 6:42 PM
    I had an appointment today with a surgeon who performed Acromioplasty last November. He is the one who referred me to spine specialist due to my slow recovery from the surgery. I thanked him for referring me and not giving up on me. I informed him that there is a necessity for me to have coroectomy and ACDF. His reaction to this news scared me, and showed the magnitude of this spine surgery. His reaction to corpectomy was rather disturbing; maybe I am reading into it to much. :( Needless to say I am depressed.  :( I am unable to think or do anything else... :....(
  • momo-kmmomo-k Posts: 131
    edited 08/26/2016 - 5:46 PM
    update on my journey...
    I had a meeting with a second neurosurgeon. He was very nice and was more personable.

    There were some differences in their approaches on my surgery; such as discectomy v. corpectomy, cages v. something else?, and so on. His opinion on as far as having surgery was, "Depends on my symptoms, my torlance on pains, and how it's effecting my quality of life."  First doctor said a surgery is a necessity. The second doctor said he would push for a surgery harder if I had stenosis with myelopathy. Then now that I think;  Aren't pain, tingling, and dropping objects part of myelopathy symptoms?

    One doctor say symptoms could get worse over time, then other say maybe no... It starts to sound like a lotto.
    decisions decisions...




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  • RRMRRM Chennai, IndiaPosts: 20
    edited 08/30/2016 - 3:56 AM
    Dear Momo-K,

                  As far as possible try to avoid any form of invasive procedures on the Spine and keep it as the last option when every other alternative fails, because any unwholesome Invasive surgical procedures like Corpectomy & Discectomy is going to be a permanent Damage on the Spine and there is no Turning Back from them. I am 45 years and had multiple fractures on my Spine with a Cervical Fusion at C1-C4 and am Anterior Corpectomy procedure with Pedicle screws to support the Expandable Cage at T6-T7.

             I have got the Cervical Fusions and the Pedicle Screws removed in 2011 but the Expandable Cage cannot be removed since it is embedded deep inside the Spinal vertebrea and bones have grown on top of it and I see it more like a permanent damage and an artificial Disease on me. After removing the implants I have been managing myself by maintaining proper Spinal Postures & Breathing exercises that strengthen my Spinal Muscles & Nerves.

         But life is not Normal anymore with the Expandable Cage that keeps acting as a prod from within and I prefer not to take any Medications & Pain killers, and still living in the hope of getting the Expandable Cage removed some day in the future when Stem Cells and Bone Regeneration Technology develops.

        So please try all the other alternatives by consulting a Physiotherapist to help improve your Spinal Postures and strengthen your Neck & Spine muscles before taking the decision to go for an Invasive Surgical Procedure like Corpectomy or Discectomy.

    Best Wishes & Regards,
    Rajmohan

        
  • RRMRRM Chennai, IndiaPosts: 20
    edited 09/01/2016 - 5:41 AM
    And the most important Point to Remember when talking about DDD is it happens at the Neck, Mid & Lower Back regions which is most likely to be a Lifestyle Disease that can be treated with some changes to your Food Habits, Sitting Postures & some Exercises.


    A gentle reminder.
    No one here is a medical Professional and all advice from forum members comes from personal experience.

    William
    Moderator
  • RRMRRM Chennai, IndiaPosts: 20
    edited 08/30/2016 - 8:32 AM
    And one of the most Important observation that I experienced from both my Spinal Fusions at the Neck & Dorsal regions is that the very adjacent spine region directly below the Spinal Fusion ends up bearing all the Extra Overload whenever our Posture Balance is offset due to which the Nerves get pinched in those regions resulting in temporary Disorientation, Numbness & Cramps in the lower regions. And the Doctors & Scientists working on Spinal Fusion Research have to address this issue yet...
  • RRMRRM Chennai, IndiaPosts: 20
    edited 09/01/2016 - 3:05 AM
    Please Google the terms "spinal fusion adjacent segment" without the Quotes to know the long term consequences of Spinal Fusion on the Adjacent Segments.
  • Thx RRM.  I have been researching more about this. You sure have scared me even more..:/
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