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Leg spasms no idea why its happening... need answers Please Help

Hello, so here is my story - started having lower leg spams out of the blue since 2013. Started out slowly in just my right leg then eventually in both legs. Over time it got worse. Doc thought it was diabetic nerve pains or restless leg syndrome - fast forward to this year, after breaking down in tears doc sent me to get a nerve test where it showed i had old L5 injury, started PT - pains got worse. Had an MRI and it shows the following:

Diffuse annular disc bulge with posterior facet hypertrophy causing moderate
spinal canal stenosis

L5-S1: Diffuse annular disc bulge with posterior facet hypertrophy causing
moderate central spinal canal stenosis and moderate right neuroforaminal

I've been living on muscle relaxers and pain meds for 4 months now and go through days I can barely walk. Im always tired due to no sleep and these meds, all the while the spasms just get worse and worse. 

Went to an Orthopedic surgeon with high hopes I could have a surgery and fix this -- but he said because  the pinch is on the right it would not affect both legs and therefore he doesn't think my spams are even coming from my back. 

Went to pain specialist and got a L5 epidural and had no results but the week after i got extremely inflamed and was in bed for 10 days -- due to the epidural or not I have no clue. Doc wants to try a bilateral epidural one shot on each side on MONDAY - i am unsure about this -- try it or not. 

Are these spasms nerve or muscle? are they from my lower back? it seems no matter how much I try to explain the constant spasms no one seems to understand. I can be sitting down and feel my pant moving from the spazzing - at times its like a snake is in my leg. It hurts to the bone already and it caused charley horse like cramps. At times i put pressure on the spot it spazzes but other times i cant barely touch my leg because its too sore to even touch. Its constant twitching and spazzing even with the meds. 

I'm about to chop off my legs! 

Can anyone out there relate? 



  • Bruce EitmanBruce Eitman Akron, OH, USAPosts: 1,510

    I am very sorry that you are going through this.  Many of us find that the diagnosis can be slow in coming.  It is time for you to become your own medical advocate. 

    One doctor says it isn't from your stenosis, get a second opinion.  This time, maybe a neurologist - which I don't have experience with.  My Orthopedic surgeon also was in denial about my lower body pain coming from my cervical discs, so I got a second opinion which helped me explain it to my Orthopedic surgeon (he is very good at the surgery...)

    My primary care physician referred me to a Sports Medicine Doctor, who is responsible for working at finding the cause of pain.  If it isn't your lumbar, maybe this would be a good route to diagnosis.


    Read my story at Bruce - My Story
    ACDF C4-C5-C6-C7, and getting better every day
    It has been a process of healing, learning, exercising, and resting - and figuring out when to do which.

  • Thanks Bruce.. in the process of finding other doctors.. seems like in Hawaii, they are very limited ... time to take a trip perhaps haha 

    Thanks :)
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  • SavageSavage United StatesPosts: 7,385
    hello lisahawaii !

     welcome to spine-health
    please click on link for helpful information!
    Honorary Spine-Health Moderator
    Please read my medical history at: Medical History

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