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Too Many Injections

I've recently been diagnosed as possibly having Ehlers-Danlos Syndrome. They have to run more tests to make sure. My problem is that I have been getting steroid injections in my neck since January every 2 weeks. My rheumatologist said to stop immediately. I knew I was supposed to get 3 injections and that's it, but the doctor kept saying no its ok, it's the lowest dose, etc. The issue I have with this now is that I probably had EDS all along, but it progressed faster with all of the injections. What can Hakeem if you get too many injections?


  • itsautonomicitsautonomic LouisianaPosts: 2,561
    I am sorry about the diagnosis of EDS, some of my neurological friends have that and its very rough for them.  To much steroid injections can have effects on connective tissue and bones for one and I know in EDS that is something that is affected, but the best thing would be to ask your rheumatologist.  EDS is sort of rare and I am not sure the Dr. doing injections would fully understand it and be able to relate it to injections.  This is just a guess, but I know EDS often takes a long time to diagnose.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
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