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I have really intense pain in my neck and upper right shoulder that feels a bit like the muscles are in a vice, or rubbing together in a way they shouldn't. At it's very worst, I feel it right under my right collarbone, as well. It's quite confusing to everybody because I have no tingling, apparent weakness (though I find I can't hold objects up as long as I can with my left arm) or range of motion issues (except my most recent doctor thinks I minimally do, some form of shoulder impingement, but nobody else can see it.) It first occurred close to ten months ago. I ignored it for a bit, thinking it would just go away. While I have a few ideas of what may have caused it, there was no major identifiable trauma. It gets worse as each day goes on, and during/after driving (I have tried adjusting my car seat, although perhaps there is a different way I need to do so.) I'm often unable to sleep.
One evening in early August, I noticed that at its worst, I could visibly see the right shoulder lower than the other one. I went to the urgent care. I was diagnosed with Torticolis, and prescribed 500mg NSAID as needed and baclofen at night for a week. Nothing changed whatsoever (though the baclofen helped me sleep) so two weeks later, I went to a GP (a new one, as I had none of my own.) He said "no way is this Torticolis," prescribed Tramadol for pain and Cyclobenzaprime as a muscle relaxant at night, and wrote me a referral for Physical Therapy. I went to Physical Therapy for about six weeks, focusing on scapular stability and trapezius strengthening. It sometimes seemed like it was helping, but then would go right back to the intense pain.
After six weeks, my physical therapist said "Yeah, I really can't help you. Stop looking down and see an orthopedist." I bought a laptop and book stand, quit my job as a waitress, and saw an Orthopedist. He took x-rays at my insistence, and saw nothing wrong, prescribed Meloxicam as a new pain med, and recommended I get cortisol shots. I did. I asked the internist who gave them to me how long they would work before I felt pain again, he said, "oh, if you still feel pain with these, you have a serious problem." Lolol. They provided relief for no more than three days, and even then, not entirely. (They *may* have helped the shoulder pain, marginally. These days where I feel pain most is right at the side-base of my neck, if that makes sense, and in the right side of the neck.)
My psychiatrist, who I began seeing due to the severe depression I'm experiencing (due to this and other reasons) thought it might be referred pain for my liver, and called for blood tests for me, which came back normal. He prescribed me a low dose of amytriptiline at night as a muscle relaxant.
I saw one more GP. With each of these doctors, I absolutely begged for an MRI. The answers were always the same: "what do you think that will do? You have no weakness or motion loss. Even if we see something, we're just going to tell you to take antiinflammatories, do PT, and rest." The new one was rather rude -- she, as I believe many have, clearly believed I was just trying to get pain meds, but wrote me a referral for an MRI. A rather bad one, I assume, as the insurance rejected it. Around this time, I started having pain that feels like it's in or around the bones of my lower cervical spine. I intermittently have pain on the left side, but I believe that is from overcompensating with those muscles.
She referred me to a DO, who I will see on Friday. I was hopeful because his waiting list was rather long, which made me think he must be popular for some reason, but friends and family are now discouraging me, saying that DOs are rather hippy-dippy and ineffective.
(May or may not be related - I'm having jaw pain this week, though it only started after I started sleeping on a memory foam pillow.)
I don't know what to do or try next. My commute to school is somewhat long, and I cannot focus in classes the way I used to. I used to be highly active, I can not do the activities I used to. Even sitting at my desk is painful. Most of all, I feel it's negatively affecting my relationship to a high degree. My partner does not agree, but it's certainly affected our sex life in ways I am very unhappy with, and made me less able to help around the house. We are due to be married this summer and I am absolutely terrified he will resent me for having to take care of somebody so young.
I'm hoping somebody can offer words of wisdom about any part of this at all. Thanks.