Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!


Quick Start Forum Video Tutorial

Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

The main site has all the formal medical articles and videos for you to research on.

Rod Removal Studies 2 1/2 years post surgery

Please help with any information on rod removal testimonials and studies post rod removal.  We would greatly appreciate it! 
My daughter, age 23 had scoliosis surgery 2 years ago from T5-L3 and is experiencing much pain in her left shoulder and neck.  She has the 2nd generation titanium rods with screws.  

We have gone back to her surgeon, who is a highly rated scoliosis surgeon in Austin Texas, 3 times.  He recommended physical therapy and NSAIDS.  This has not helped.  He has her undergoing much testing for infection, ct scans, mri's, etc. to determine the problem.   He is convinced that her surgery went well, her tests look normal, and her pain will just go away on its own?  He does not recommend rod removal unless there is severe infection or rejection of the instruments.  He states that more damage than good could occur.  He is concerned about the second surgery could cause an infection, more tissue damage, more pain.
It is very confusing, scary, and frustrating for both of us. When we mention the option for rod removal,  he cites a study showing a 30% increase in the incidence of fracture if the
rods are removed, 30 percent see no reduction in pain, and 30 percent feel a little less pain.  He has not been able to privide those studies to me.
 We would like to know how  to find a surgeon who specializes in rod removal and where we can find studies showing results post rod removal.  We will do anything to make her better!  She has been through so much!

Kind Regards!



  • I had surgery at 17  and then I have the removal at 33, the doctors pretty much told me the same thing, that my scans looked great, they didn't know why I was in so much pain. I went to the scoliosis specialist who pretty much told me to change my diet and do PT, finally I found a different Dr who ended up working with the first scoliosis doctor to remove all of my rods and screws and my cousin and my family have already seen the improvement. They cut through a lot of muscles. The spasms are something else, but for me, that life I was living was unacceptable. The doctors work together and after I switched doctors ( the second specialized in nerves) and the one who actually worked with scoliosis patients didn't listen. However, he has even said that patients receive less pain symptoms after recovery. Please keep this in mind, I'm only a month in, but we know our bodies and when something is wrong. So far, even with the spasms, I'm so happy I did it, please feel to ask me if you have any questions. I did not get any metal put back in and in the future, I don't think you could pay me to. 
  • SavageSavage United StatesPosts: 7,385
    hello cayo1215 !

    are you thinking of getting a second..or even a third..opinion? there is nothing wrong with new eyes on the situation.
    and you need information to be able to make your decisions.
    maybe another doctor could explain things and give you options that are much more to your satisfaction.

    we are not permitted to name specific doctors names nor names of facilities.
    would you consider looking into a teaching hospital where there may be more "eyes" on her situation?

    please click on link for helpful information!

    Honorary Spine-Health Moderator
    Please read my medical history at: Medical History

  • advertisement
Sign In or Register to comment.