Please help with any information on rod removal testimonials and studies post rod removal. We would greatly appreciate it!
My daughter, age 23 had scoliosis surgery 2 years ago from T5-L3 and is experiencing much pain in her left shoulder and neck. She has the 2nd generation titanium rods with screws.
We have gone back to her surgeon, who is a highly rated scoliosis surgeon in Austin Texas, 3 times. He recommended physical therapy and NSAIDS. This has not helped. He has her undergoing much testing for infection, ct scans, mri's, etc. to determine the problem. He is convinced that her surgery went well, her tests look normal, and her pain will just go away on its own? He does not recommend rod removal unless there is severe infection or rejection of the instruments. He states that more damage than good could occur. He is concerned about the second surgery could cause an infection, more tissue damage, more pain.
It is very confusing, scary, and frustrating for both of us. When we mention the option for rod removal, he cites a study showing a 30% increase in the incidence of fracture if the
rods are removed, 30 percent see no reduction in pain, and 30 percent feel a little less pain. He has not been able to privide those studies to me.
We would like to know how to find a surgeon who specializes in rod removal and where we can find studies showing results post rod removal. We will do anything to make her better! She has been through so much!