For years I have been dealing with severe pain. After years of fighting I finally got a spinal fusion of the L5- S1. Everything went EXTREMELY well. I'm finally walking and my pain has been tremendously reduced. Today I just found out my surgeon diagnosed me with AS of the lumbar spine and I wasn't even informed. Now I'm sitting here trying to figure out how to feel. I've had so many symptoms that everyone assumed was not related. Swelling in my pinky, heart issues, waking up at night in severe pain and really stiff every morning as well as bowel and kidney issues. My mom has a huge hump and swelling and pain in her spine but everyone assumed it was RA.
I'm not mad at finding this out just trying to absorb this. I'm worried that I'm only going to have relief for a small window of time before I'm back to being miserable. No one can tell me how this will or will not progress. To make matters worse I found all this out by checking my info on the surgeons website then I called to confirm.
I'm really worried my wife and son are going to end up down another "rabbit hole". I don't want to drag them down again.
Ankylosing spondylitis, moderate lumbar spinal stenosis, spondylolthesis L5- S1, 5mm disc protrusions T6- 9 with minimal cord compression, cerebral palsy of the right side
PLIF fusion L5- S1 with decompression and hardware Dec 7th 2016