What kind of relief do others get from their stimulator? Does it touch your pain? Is just a distraction? Does it feel like a waste of a surgery?
To me, all I feel is that I have a TENS unit in me. My legs tingle from it. I feel the stimulation all the way from my abdomen down to my knees depending on the settings but it seems that the dull aching pain that feels like it resides in my pelvis is untouched. I have had 2 "fine-tuning" sessions to adjust my stimulation areas but I have really no significant pain relief. Like I said, I feel no different than having a TENS unit on.
Originally I was told that it was a way to focus a treatment on my nerves so that my brain doesn't get the pain signal. To me it sounded like they were saying it was targeted therapy that should give me some relief. But I am not getting that from it.
I have nerve damage in the degree that my nerves are scarred. And from 2 separate MRI's 6 months apart, before having my Stimulator implanted, the scarring had spread or grown.
I can say that just before my surgery, I was in a desperate state with my pain. I was very down and the pain was so unrelenting. After my surgery, I didn't feel as terrible but truthfully, I didn't feel better. Just not as terrible. Its so difficult to explain. Its like comparing a broken pinky finger to a broken wrist. A broken pinky finger isn't a better pain, its just a different pain and if you rely on your hands to do everything, it doesn't make your life any easier. Does that make sense?
So I don't feel like I would be better off dead, but I don't feel like I have any chance of having a better life with my current levels of pain.