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No diagnosis after 6.5 years of chronic, debilitating pain for this 27 y.o. male! (Part 1 of 2)

Here is a case overview of my brother, a 27 year old male with an Engineering degree and a heart of gold, located in Toronto, Ontario, Canada.

Any suggestions in terms of seeking assessments from medical specialists or seeking treatment at a specialized facility would be greatly appreciated.

(His travel is currently limited to a maximum of 45 minutes by car.)

-         27 year old male, 6'3", 163
pounds

-         Has been experiencing chronic pain
since 2011, that began as local musculoskeletal pain and progressed to
widespread and complex pain

-         October 2011 - initially sustained
an intercostal muscle strain playing basketball, went to Emergency as was
unable to get up off gym floor and had difficulty breathing; was unable to
attend classes for a week due to difficulty walking and inability to sit, fell
far behind in final year of Engineering university program

-         November 2011 - started experiencing
mild pain across entire back, neck pain and headaches that progressively
worsened

-         March 2012 - self-admitted to
Emergency with "whole body numbness"

-         March/April 2012 - wrote final
thesis, very stressful time

-         June/July 2012 - symptoms decreased
in severity while travelling to SE Asia x 5-6 weeks

-         August 2012 - began working as an
Engineer-in-Training (40 hours/week); symptoms gradually returned and worsened
until end of year; work involved extensive sitting, which aggravated pain

-         May 2013 - stopped working for 2
full months; walking 1-2 hours/day, stretching

-         July 2013 - returned to work 3
days/week, 3 hours/day

-         September 2013 - returned to work 4
days/week, 6 hours/day

-         January 2014 - discontinued going to
work due to high pain levels

-         March to June 2014 - travelled to
rural northern Thailand for 3 month meditation retreat; took 100 days of
doxycycline for malaria prophylaxis, experienced a few episodes of diarrhea and
developed a cyst behind left ear (given a course of antibiotic in Thailand for
cyst)

-         July to December 2014 - experienced
weight loss, flare ups, muscular dysfunction, anxiety (pressure from family
members to return to work)

-         June to December 2015 - appeared to
be improving and pain levels decreased

-         Late December 2015 - flare up of
pain/abdominal symptoms after 4-5 medical appointments and excessive activity
in one week; began to develop significant GI issues including belching, gas,
bloating, diarrhea, constipation

-         December 2015 to present -
increasing levels of pain, anxiety, inability to sit, insomnia, difficulty with
activities of daily living, continued loss of weight

-         November 2016 - unable to feed
himself

-         December 2016 - has not been
speaking louder than a whisper (reports that it causes him headaches,
dizziness, shortness of breath and abdominal pain)

-         January 2017 - stopped eating solid
foods, eating only pureed foods

-         Spends most of day lying supine with
1 pillow under head, 1-2 pillows under knees, constantly readjusting pillows to
try to get comfortable, gets out of bed via log rolling technique to slowly
walk every 15 to 20 minutes; reports difficulty navigating stairs

-         Constantly experiencing intense,
deep aching pain in several part of his body

-         Headaches and neck pain - reports a
pinching sensation at the back of his head and stabbing/shooting right>left
sided head pain when lying down, pain behind his eyes, very sensitive to light
and noise, ringing in ears, tender scalp, hurts to smile, laugh, chew, swallow
and drink from a straw; reports needing neck support but cannot tolerate having
weight on the back of his head

-         Abdomen - very sensitive to even
very light touch especially on right side, severe bloating, upset stomach,
constipation, belching and gas

-         Dizziness - upon standing

-         Mental health - daily anxiety
attacks/emotional breakdowns due to the intensity of the pain; increasingly
frequent suicidal ideations; reports that depression and anxiety worsen as pain
worsens

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Comments

  • SavageSavage United StatesPosts: 7,385
    edited 03/24/2017 - 1:58 PM
    Hello Lisa.diane !
    re his depression and anxiety...have you repaired these symptoms to your doctor?
    re your suicidal ideations.....please contact and speak with doctor for proper treatment.

    Suicide Hotline Numbers
    USA: 1-800-784-2433
    UK : 08457 90 90 90
    ROI: 1850 60 90 90

    Suicide Hotline Numbers for Canada (URL Link)
    http://www.suicideinfo.ca/csp/go.asfx?tabid=77 

    The above numbers do not take the place of doctor's care!
    When I was going through my dark phase....I would call the suicide hotline and dump all my thoughts and feelings and behaviors onto them.
    Sometimes I would listen to see how they would deal with me. Sometimes I would hear something helpful that I could apply to my life.
    Sometimes I would call more than once a day.
    My point being, until I had proper treatment and learned better coping skills, my calling hotline gave me ...pause. And not to act on my thoughts.

    Please click on link for helpful information!
    Sue
    Honorary Spine-Health Moderator
    -------------------------------------------------------------------------------------------------------------------------
    Please read my medical history at: Medical History

  • itsautonomicitsautonomic LouisianaPosts: 2,561
    Wow that is a lot and I think it's amazing you are reaching out for help from him.

    What is more helpful initially is what tests or diagnosis's have doctors down or speculated on.  Sadly there are many things this could be, but what's important is that he was healthy, had injury, then has not been healthy since.  

    There re are many neurological conditions that can do this to a person.  Millions missing is a tag used for CFS (chronic fatigue syndrome) and it has many of my online friends combined to beds.  They used Millions missing because they eventually go missing for life.  Sad story.  Those symptoms seems systemic, affecting all parts of the body.

    I know you are helping him, but he also needs to become his own advocate if he can.

    Looking forward to hearing back from you
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
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  • itsautonomicitsautonomic LouisianaPosts: 2,561
    Depression and anxiety worsening with pain is absolutely normal.  But it's very easy to exceed the normal levels and into a dark place. Pain needs to be controlled and mental anguish needs to be treated, but without diagnsosis the mental aspect may be easier for now
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • dilaurodilauro ConnecticutPosts: 13,416
    edited 03/24/2017 - 2:00 PM
    Please provide us with answers to New member checklist

    Sorry, I never expected a discussion Part 2.   But there you did provide the answers we always need.   It would have been best in one thread so all the information is together.  That makes it easier reading for others.
    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences 
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