On May 19th, I had my Occipital Cervical fusion with extension, from previous fusion down to T5. Recovery has been difficult at this point in the game, in comparison to my prior cervical reconstruction surgery in 2015. Granted, I expect pain, different issues with each procedure; however, this has been a little more taxing than I'd expected. In surgery, I lost a lot of blood, which required 3 transfusions, issues with anesthesia (they always need to bop me in the head with a wake up bonker..haha!) and uncontrollable pain. There are a few things that have seemed perplexing on my recovery and am wondering if others, who've had similar surgeries or even just similar issues, can help me feel a little less alone. Major mega muscle spams, starting from the left side of my neck up into my scalp, around my ear, which goes numb. Sometimes even my lips, chin,etc on the left side go numb as well during these episodes. I expect muscle spasms, but these are absolutely THE worst I have ever experienced, to where I am crying. Walking any distance brings these on with a vengeance, which I am accustomed to taking long walks, before surgery. Next, would be scalp numbness and back numbness, which also has a prickly feel at times, so I am wondering if this could be caused by some type of numbing med they may have used or possible neuralgia, from the occipital area being aggravated. I have asked my surgeon's nurse and the assisting surgeon about these issues and they have the same answer, this surgery is rare, the occipital nerve is affected, which could be causing the pain and numbness, use heat and ice for spasms, take pain, relaxer and nerve meds for pain. UUUUGH!!! If those items worked, I wouldn't be asking what else to do, right?! Sorry this is so long winded, folks! I'm just tired, feeling a little whiney and spazzing (pun intended) out,
Thanks for letting me vent!