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Its been a long time since I logged on to here, but I have once again come seeking refuge and encouragement, and hopefully some more helpful suggestions.
My names Delaney, I am a 25 year old female from Auckland, New Zealand. My story, my battle and my fight for a normal pain free life, is a long one, so I hope my fingers can type fast enough to keep with my brain, and your eyes can stay open long enough to read all of this. I have come to a point where I am feeling very low (and sorry for myself if I am honest).
So my trouble began 4 maybe 5 years ago, as the result of an extremely minor accident, I slipped two discs in my lower back (L4-L5/L5-S1) and had a 2 year battle with NZ's medical system during which, I lost multiple jobs due to being in so much pain and unable to work, missed out on over $70,000 of earnings, not to mention the constant stress and anxiety about not knowing if I would be stuck like this for the rest of my life. (another story for another time) I finally got approval for a 2 level micro discectomy, and was full of hope I was about to get my life back.
The sugary appeared to go well, I was up and walking that day after surgery, feeling pretty dopey but not too bad considering. About 2 days after my surgery, I started getting debilitating headaches when standing, excruciating nerve pain while trying to stand or sit... I knew something wasn't right. I went back to my surgeon and got an MRI - showing a large tear in my spinal cord, and was rushed in for emergency surgery to get that repaired. After recovering from these two surgeries, I was feeling pretty good, and for about a year, I felt normal, and like I had my life back. I was working full-time, loving my job, I was socialising, I had energy again, I was so happy.
Then I slipped while walking down a gravel driveway (never will I step foot on gravel again!) And slipped one disc again (L4-L5) and was back in hospital getting another micro discectomy. this surgery, thank goodness, did not result in a dural tear, and didn't require a follow up surgery again. But after this surgery, I didn't feel any reduction of pain, infact - If anything the pain was worse. I am now 4 months post surgery, and the pain has come back full throttle and worse than ever. I have done everything the Drs, surgeons, physios have said, to a T.
I have just started a new job, and now face losing that because of the amount of pain I am in. I have never been one to let the pain rule me or my life, but it has gotten so severe that it has to right now. I am in agony, almost constantly, on so many medications, I now have a heart disorder that can be brought on by major surgery or trauma, I feel like my life is spiralling because of this pain.
The only thing I really have left that I know of is a fusion, the surgeons are reluctant due to my age and the fact my discs haven't re slipped as much as last time. According to them the pain may be caused by the amount of scar tissue I now have surrounding my nerves, and they feel another surgery may make this worse.
Has anyone experienced this? what have you found that may not be that common that has helped? Should I be pushing for the fusion? at this point it seems inevitable and part of me would rather get it over and done with.
If you get this far, thanks for reading my probably medically prescribed and feeling sorry for myself ramblings.
I am slowly running out of energy, hope and strength and would really love some help, suggestions and kind words.