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Cyber Hugs: How Online Support Groups Help with Chronic Pain
If you're dealing with chronic pain, you probably already know what a devastatingly lonely experience it can be. Even with the most supportive family and friends, you still feel alone, because they don't know – they can't know – what it's like to endure chronic pain each and every day of your life. And just so sick and tired of explaining yourself and having it affect all the most important relationships in your life.
This is where online support groups come in – an online discussion forum where people with the same kinds of pain are dealing with the same things your are. These groups provide you with a circle of friendship, support and camaraderie to help you through the worst and celebrate the good times as well. These people won't tell you its all in your head, they won't keep asking if you think you feel better yet, and they won't mind when you just need to vent.
Contrary to how many people view online chronic pain support forums, the people in these groups are not whiners and attention seekers. At least on Spine-health.com's back pain forums and chat rooms – we find people are almost universally constructive, supportive and at times downright hilarious.
So what are the main benefits of an participating in an online support community?
- They validate your feelings – no, you're not crazy or imagining it!
- They give you hope even in your deepest times of need
- They spur you on to keep coping and looking for pain relief even after you're exhausted and want to give up
- They help you with daily living problems. Should I get a shower seat? How do you arrange the pillows at night to get back support? What are recipes that are easy to prepare and nutritious?
- They are available day or night. Up with intense pain at 2:00 am and feeling all alone? Log on and you'll have company – your online friends can help you get through the night.
- And sometimes best of all, you get the satisfaction of helping others. You can reach out to others when they post questions, need an emotional lift, or just need to talk.
A good pain management program and other approaches can hopefully help you from a medical perspective. And if you're really depressed, take care to get help from a professional right away. (You can use this Symptoms of Depression checklist as a guide to see if you - or someone you care about - needs help.) And by all means don't forget to take good care of your emotional, spiritual and psychological health too by finding a good support group. You may have to visit a number of discussion boards and chat rooms to find one that suits you best, but I guarantee you it will be well worth it. If you prefer to meet in person, contact your local hospital or your pain management physician and they should be able to give you a list of local chronic pain support groups in your area.
You will be amazed at how many people suffer from the same pain and related challenges as you do, and how refreshing it is to meet others in such similar situations. Cyber hugs to all!
Posted by: Stephanie American Pain Foundation Pain Resource Locator Back Pain and Chronic Pain Discussion Forum Depression GuideSearch This Blog
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SPINALCORD SURGERY
Dear Readers ,
It is unfortunate I develpoed a symtom of burning sensation and numbness in right toe which progressed up to lower back, and then it started with left toe and progressed to top. I started falling down without notice ,bladder started losing its function . Several physician consultations had not given any clue . Finally an MRI SCAN revealed growth of a tumour in spinsl cord . An emergency operation saved me , otherwise I would have lost both upper limbs too functionally . Now I donot have any power in legs . It is ok . I am using a walker and managing . But most horrifying thing is continuous buning sensation in both legs, and lower back which is frustrating to me . Neurophysicians as well as surgeons are suggesting that I have to live with the problem as tumour had damaged some nerves . Many times I have to scream with burning pain in legs ! This suffering is since 1996 . I am 64 yrs old now . I am not using medical terminology . I suggest any one if they develop symptoms of numbness , loss os sensation , burning sensation , sudden weakness in limbs , realing sensation, sudden loss of vision hearing or touch sensation must consult a neurophysician,also, in addition to general physician ! . This is my friendly advice to any one who comes across this message providentially!Please feel free to mail me on my mail id turbine.kk@gmail.com
My mother is in constant
SHARP PAIN
My Dear Amanda Sliqar,
I happened to see your message of 12/1/2007 to day . I think it is too late for me to respond . Hope by Gods Grace you have found a relief to your mother.
As Spine Health .com showng REPLY I felt writing down my idaes , please bear with me .
1)A consultation with neurophysician will give relief .
2) If not available orthopaedic surgeon can also help .
3) It is always better to get clinicaly evaluated when problem is at initial stages .
4) Once they donot offer satisfying solution alternative therapies can be looked in to .
5) It is my unfortunate experience that I did not follow advice of neurophysician and surgeon and delayed surgery ,I lost my both lower limbs, and bladder functionally . For life I am now a physically challenged person .My case can be offerd for a Phd or medical book publishing, as it can help thousands of medical students , doctors , and patients!!!
6) If You are in India and need my help please donot hesitate to contact me on mail id turbine.kk@gmail.com .Please inform me about improvemet.
regards
k.kumar
They have also gone to the
I feel your pain I had the
tamara i dont have any
I was in a car accident and
PAIN FROM LOWER BACK
Dear Tamara
You posted your message on pain on 27/7/07 , I happened to see now . Hope some good thing might have happened by Gods Grace , by now . Please see my message dated 3/5/2008 in spine-health.com. By chance if you are in India please contact me on mail id :turbine.kk@gmail.com
2) In any case if you are still in pain and unberable and if you can consult some Indian doctors , you can write to me . I can give reference based on my experience of spinalcord surgery . You can refer your case by post to these doctors along with reports and diagnosis , for an openion
With wishes and regards .Wish you speedy recovery
k.kumar
I don't know what I would do
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