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S1 Radiculopathy Pain

petite39ppetite39 Posts: 17
I'm 1 year post op from L5/S1 discectomey and lamectomy surgery done twice within 2 months. After the second surgery and doing quite well, I went back to work. After a few weeks pain set in my right foot ever so slowly to a point that I ended up in a wheelchair for 4 weeks. Was stuck to a tens unit for over 4 months. Too many medications to name and too many Doctors to mention along with way too many tests. I've tried it all. Accupuncture didn't even help. I notice improvement only month to month and sometimes not even that. I have terrible burning pain in my right outer portion of my right foot. I'm finally at a point where I don't limp when I walk anymore. Although I can't get off the Gabepentin (Neurontin). Although I've been able to decrease the dosage. I've been misearable for a year now. My family has suffered and I've been suffering. I just don't know if I'll ever be normal again. I had to have the surgery. I literally crawled from my bedroom to the car to go to the Doctor...so it was an emergency surgery. I just wish when they say nerves heal 1 mm a month ...well turn that into what that means to me! How many MM's do I need? Why can't they say?

I'm on a trial course of Topamax now to see if it helps with the pain and on a very high dosage of predisone. After all this time no one ever prescribe predisone orally for me. I'm on day 3 of 15 and no relief. I feel sick from it too. :sick:

Has anyone ever been this long in recovery? I wouldn't mind the numbness and tight feeling in my foot if there wasn't any pain at all. I could deal with that. But this feeling of someone cutting you open with a knife is just awful.
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Comments

  • It's more like 1 mm per day. Still awful slow, I know. That probably translates into 1-2 yrs of healing.

    I have a lot of numbness and, while it seems contradictory to people who have never had it really bad, numbness actually hurts A LOT! :( I feel for you.....
  • I was vomiting over the weekend and I was wondering if anybody knows if that aggrevate the nerves in the leg/back area? My foot has been on fire since late yesterday afternoon. I was wondering if this is a setback or just a few days in passing.

  • Hello Petite 39, I hope you are feeling better? I had two level Chartie Artificial Disc surgery in 09/06 and 8 months later had to have both devices removed due to migration of both discs. I ended up with a two level 360 degree fusion with 9 screws and a laundry list of complications from the removal surgery in May 2007. I have been on countless drugs including Morphine for almost two years. Unfortunately, I am still in a lot of pain but I have forced myself to go back to work almost a year ago. I have a wife and two children 6 and 2 and they have suffered immensely. I have had frequent pain in my right leg, prior to both surgeries. Yesterday I was in the pool doing some resistant walking and last night my right foot on the inside of my foot and on the top began hurting. The pain is like a burning, throbbing pulsating pain that my Morphine does not touch. I just got back from an urgent care facility as I am now having to limb when I walk. The doctor does not think it is gout and did not find anything in the x-ray. I feel like this is probably related to my lumbar back and is just yet another complication to deal with. DR. Called in some anti-inflammatory med named Cataflam. Hope it works. Did any of your docs say that your foot pain was nerve related, and did anything finally make it better?
  • I'm not limping like I was last week. The foot has calmed down only a little since the throwing up episode last week. That must have aggrevate everything in my lower back.

    The accupuncturist/pain managament specialist I see said the pain in my foot it's related to my buttocks or back and yes it's the nerve in my leg. It's not local. I'm on Topomax now as an experiment to see if it helps with the pain. I take it along with Gabepentin (neurontin) I've found since starting it, that my foot is worse after dinner till I take it (topamax). I'm going back to the surgeon for a follow up on the Topamax drug next week and I think I'm going to push for a MRI 1 year follow up to see if they can tell me if there is any thing else wrong. I feel I should be better not worse or just not getting any better by now.

    Hope you are feeling better too.
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