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Trip To E.R.

dharvellddharvell Posts: 98
edited 06/11/2012 - 8:22 AM in Neck Pain: Cervical
Sunday morning, I woke up, once again unable to move my arms more than an inch off the bed. My arms felt like lead weights. After about 30 minutes of excruciating pain, I regained movement, but my fingers never quite recovered, that day. When I would try to click the button of my mouse, my finger would not move, but rather my elbow would shoot out to the side. My arms and fingers would twitch the duration of the day, sometimes in burning, rapid sessions.

Toward the evening, my left eye started to close, involuntarily. I would have to open my eye, just to have the eye snap back shut.

Concerned, I contacted my doctor's after-hours line. The doctor told me to go the E.R. to get checked. All they did at the E.R. is perform a CT scan of my head, looking for signs of a stroke. Of course, the test came up negative.

The E.R. doctor gave me a perscription for 5 Flexeril pills.

Muscle relaxers for symptoms that are obviously neurological in nature???

I'm still waiting for my referal appointment at the University of Michigan... hopefully they will be able to do something that makes sense to help me get my life back. I miss being me.

OH YEAH... I forgot to mention the latest in interesting nerve miscues. Today, while attempting to press a mouse button, instead of my fingers moving, my LEG twitched to the right. Has anybody else experienced such bizarre movements and nerve miscues? This is really beginning to make me feel like I've gone insane... ~X(


  • am so sorry to read what you have been going through. I have never had any of these issues but I still had to come in here and offer my support. If there is anything that I can do for you then please just let me know. Please do keep us posted as to what is going on and what you end up finding out. Please also take care of yourself.....Miki
  • hi,
    Have you not had surgery? if not, what reason are they giving for not doing it. It sounds like you need it yesterday. I am sorry you are have to go through this. What I learned going thorugh what i did was you have to be vocal, don't just assume what the dr says is all there is. Get a 2nd,3rd or 4th, opinion. I know these are expensive but we are talking about you being able to just function. Let the dr know you are knowledgable about what is going on. Please, please, speak up for yourself.

    dixiechick >:D<
  • Thanks, I really appreciate that.

    Strange thing is, I just got out of bed and my fingers in my left hand are barely moving. I need to really be careful while typing with my left hand, just to hit the right keys. My hand just feels like a wet rag that is attached to my arm.
  • I have not had surgery, yet, because of my age. My doctors say that I am too young for the problems I am having, so I must not be having them - even though I have x-rays and MRIs showing what and where the problems are.

    My last ortho visit was the last straw, for me. I called my PCP and demanded a new referal. This is because of the way the last ortho visit was handled. The Dr came into my room, once again said, "You're too young for this. Come back in six months" and left. That was the visit. When I attempted to talk, he would interupt, then he walked out. That was it.

    My doctor is sending my to the University of Michigan. Hopefully, they will acknowledge and understand what I am going through.
  • Ask to see a Nerosurgen(sp). I think ortho, are just not very pt oriented. I couldn't ask for a better Dr than the one I had. They didn't give my a choice, they told me surgery was not an option. I was told that I would be parlaized if i didn't. I had the same disk herniated that you do. I got to the point I couldn't walk. It also affected my bladder. Have you had some kind of injury? I know most of what I have read on here these disk seem to involve the arms. My arms seem to be find it's my legs that gave me problems. Don't give up and get very vocal. How old are you if you don't mind me asking?

  • Actually, the first "specialist" I saw was a NS. He dismissed me without even looking at my x-rays and MRIs, because of my age.

    There is a misconception, here where I live, that these types of problems only strike the elderly. They refuse to believe that a person of my age (I'm 34) could possibly have the issues I have.

    I'm really looking forward to my visit to the University of Michigan. I'm seeing a NS over there... I'm hoping he takes the time to actually HELP me through this.

    The medical community over here is just unbelievably dense. My age has nothing to do with my problems. The MRIs (and the constant pain and other issues I face) should be proof enough, but somehow, it isn't.

    I'd be willing to travel to another state to get things taken care of. I'm getting that desperate!
  • I understand the age thing. I am only 20, many people dont understand how I have so many things wrong, and some think I am lying. This is why I hate when people say "dont get old" because of their health issues. I response is how age has nothing to do with it, and if so, I am already old. Good luck and hope you find help soon. I live in Indiana, and saw a NS, who just sent me back to the specialist to try things that I already have tired. I was told by the specialist that it would be really hard for me to find a surgeon to do surgery on me at this time because of my age and to wait as long as possible. That was for my back, and am now trying to find out what is wrong with my neck. Once again good luck and hope you get answers soon.
  • I think I have the doctors where I want them. On Friday, I had severe leg tremors (in the left leg, only). Remembering that I had a point and shoot camera that can also record video next to me, I took a video of my tremors. I also compared the left leg tremors to my right leg (which did not have tremors). I now have a doctor's appointment with my PCP, tomorrow (Monday). I am going to play that video for my doctor so he can witness, first hand, what I am going through. Now, he will be FORCED to believe me that I have something going on!

    Forget the age thing... I now have PROOF!!! :)
  • Good move. Let us know what the doc says or thinks.

  • Hi

    I was reading your post and replys and was quite interested in what is going on with you. First I will say it is sad that you have to video your problems to show proof to a physician. That is pretty bad....thank god you have the camera to do it!!!

    I had a 3 level acdf in February. Although I did not have it as bad as you, I can relate to your symptoms. I had ( and again have ) cervical myelopathy. I have Lhermittes sign which for me at that time gave me horrible shocks up the back of my neck, into my shoulders and down my arms. On occasion I had them so bad that they would be followed by or preceeded by an involuntary jerk of my head forward and my arms would fly out to the side uncontrolably... I work at a Drs office at the front desk, I could put on some show on some days.....I could be running a patients credit card through the machine and all of a sudden my arms would fly out to the side....or I would go to copy an insurance card just a few steps away and loose my balance because I would get a shock up my neck or my neck would jerk forward....I had my surgery and all went well for about a month....started getting some of the symptoms again and this time I thought I was nuts.....well several months later with the symptoms back to where they were and my neck pain so severe I again have a cord compression from the neck and am in the middle of some testing and facing surgery in the next few weeks. I had to go for a 2nd opinion as my surgeon did not think that there was any way possible I could be having these again.....Well, my fusion failed and I have movement in the neck and in addition the level above and below is now also causing a problem.....could I now need a 5 level fusion??????? 8} I will have lots of things flying uncontrolably if that is what the revision turns out to be as I also just got over a 3 level lumbar decompression in April which never closed and had to have an I and D in May on......Us spineys are really lucky people arent we???? =))

    I wish you well.....please be careful of your self.

    Your "moveable" spiney friend...

  • DEE - First of all, let me wish you luck on your continued battle on all fronts (neck AND back). Sounds like quite the quirky symptom. Just lately - within the past week, or two - I have had a LOT of involuntary movement. Nothing quite as severe as you describe, but pretty interesting, nonetheless. Last week Sunday, I attempted to click my mouse. Instead of my finger clicking the mouse, my LEG flew out. It's as if the signal missed the turn to go down my arm and just continued into my leg, instead! :)

    The big problem was on Friday when I was walking to the dinner table. I got up off the couch and started to walk. When I stepped with my left leg, it was as if I had no leg, at all. I just crumpled onto the floor, right at my wife's feet. I kind of looked up at her, embarrassed! All I could think to say was, "Uh... hi!" I noticed that my left leg just felt hollow, some how. When I sat back down on the couch is when I noticed the tremors. I just couldn't believe what I was seeing (or feeling). The only thing I could think to do was just get a chuckle out of it. So, I videoed (is that a word???) it and will be sure to show the doctor. There will be no way he can deny it when seeing it.

    Best of luck with everything you face. A 5-level is just unheard of! I can't even get my doctors to consider a 2-level. They claim that it is not an approved procedure. They can only do a single level at a time. L)
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