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Back Pain Back - Serious Pain, help!

AnonymousUserAAnonymousUser Posts: 49,900
edited 06/11/2012 - 8:24 AM in Back Surgery and Neck Surgery
Hi Fellow Spiney's

I need ur help please, I am desperate.

I am now 5 weeks post revision and in AGONY.
I have increased all my pain meds (as much as I am allowed) and still in pain. I was like this before my surgery and I have had 4 weeks of being comfortable on my medication. ARGHHH! :''(

I feel sick, weak from the pain.

I feel so helpless. How on earth can I say I feel so rubbish when the surgeons and PT and family have all been so great and supported me hoping for an improvement.

This is one NOT FUNNY turn of events.
No I haven't done anything BLT.

My scar is lumpy, bloomin sore to touch and has white blanched areas on it. My back pain is kinda drilling, ache, relentless. I feel nauseas. I am exhaused. Pain waking me up. Painlillers may as well be thin air!

I don't even know what to do! How useless is that?
I have struggled with serious pain and now my ability to assess is all messed up too.

Suggestions and advaise gratefully awaited.
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Comments

  • Sorry to hear you are having a setback. Please do call your surgeon and get some advice. Perhaps you need to get this looked into, make sure everything is in place and such. I don't know what meds you are on but maybe you need something stronger, or a long acting narcotic. It is concerning to have this increase in pain with no precipitating factors. Could you have slept wrong? twisted in your sleep or such? Many times these setbacks are just bumps in the road and just need time to settle down. I use heat and ice, both help. I do think with your history you should speak with your surgeon though just to be safe. Hope you feel better, >:D< Cali-Sue
  • Yes as Cali-Sue says call your surgeon's office. Take care. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • I agree with the others...get in touch with your doc's office. Maybe he could get you in, look at the incision and do an exray. Hope you feel better soon.
  • so sorry >:D<

    yeah the best thing to do is call even if there is a dr on call.

    what your describing with the incision sounds iffy.
    i mean mine is bumby on the top but I have no pain on or near it. i have some tenderness but no pain or soreness.
    is it warm to the touch????

    i of course still have pain. but don't feel weak, nauseas etc.

    let us know how you make out..
    wish i had more for ya O:) >:D< >:D< >:D< >:D< >:D< >:D< >:D<
  • So sorry you're having a rough time! Are you relying too much on pain meds? They DO make you feel crappy!! If they aren't really helping, maybe they should be the last resort, instead of the first. Have you tried walking, heat/ice, meditation, distractions, like calling a friend, or going outside for some fresh air, or a hot shower? Sometimes, if you can move your focus away from the pain, it's not as unbearable. I know this is kinda long, but I have been battling pain for years, and sometimes these things can help.
  • Thank all for your replies. Sadly I do all the distarction stuff and usually keep myself well up beat mentally.

    My leg (the one where the nerve was compressed) my - ouch! :''I awoke at 4am with a drawing, throbbing from groin to knee (almost a cramp but not full on) and then my back pain..similar.
    I use heat. Ice is not good for me (causes spasm)

    I walk as much as i can (but do you walk throu the pain or nudge it?? - if i nudge it I would be pretty much housebound) if I walk I can get to end of my small road! LOL! :))( what a dilema!


    Pain meds - I use regular - I have learnt the woes of trying to catch up with severe pain and it can take days t balance. However, my doses are all carnked up to max lisensed dose in all the different drug groups. I use NSAID's, paracetamol and oxycodone. I take something pretty much every 2 hours, becuase I need to. If I don't, I'll be on the floor, crying like a baby. (no I am not depressed, just sore)


    I think I will call the docs first thing Monday Morning. My pain is up there where it shouldn't be. I always say trust your body. The pain is there for some reason...and this is where it was before. Not good.

    I don't have a fever. I do kind of expect to have some strange goings on in my legs as the nerves try and recover.

    Thanks for the support. I am not alone. >:D<

  • am i feeling your pain tongight as it was my first LONG outing today oh me oh my lions tigers and bears.
    i feel like iv been kicked by a goat or something :''(

    so yeah your not alone you know that by a long run.
    im surprised your on NSAIDS alot of drs won't allow them due to slowing down fusion so hmmmm on that one.
    but your in a different place. so things are different even the med names lol i looked up some tonight. just to clarify what someone else was telling me in a PM . im like, "huh, what" is that drug" lol :))(

    yeah give that dr a call monday and see whats going on.
    glad we can be support to ya.
    makes me feel better to know you feel LOVVEDDD!!! >:D< >:D< >:D< >:D<

  • Aww, thanks Terri! >:D<
    I take NSAIDs when i am desparate and also I have confirmed fusion. You can't undo it can you? (hope not)
    Never took them before tho. way too risky.

    I got some serious buzzing and pressure going on today...I thought that had all stopped agaes ago but it seems not. Feels like a bumble bee stuck in my back, deep.

    Groin - hip, thigh, deep ache. :''(

    Wonder what this is? Could it be scar tissue?

    I am 5 weeks? How do I stop scar tissue?

    Anyone?
    Ta.

  • Yeah, I still occasionally get that sudden stinging buzz deep down in my hip. My thoughts are that it's just the nerves that haven't decided whether or not to stay calm. It's just like a bee is having the time of his life stinging me! Give me a bee swatter, will ya?

    Hope you're feeling better today! I went to a political rally yesterday and sat in the bleachers from 5:30 to 11:00 pm. Feel like I've been hit by a Mac truck today! I kinda feel like I'm going to hurt some everyday anyway, so might as well do the things I really want to do. I'm tired of laying around all the time!
  • Hi Itsa,

    I have been thinking abut you today, wondering if you have been getting any better. If your in the UK which I think you are, why not try calling NHS Direct as they will give you advice.

    Sending you lots of love and hugs, you know we are all here for you.

    Love Danni x hugs x
  • I am just scared.

    So I run and hide....I was going to take myself to the ER a few months ago, I felt so bad but then talked myself out of it, like you do.

    This flare up going on 10 days now and no meds are getting the edge of it!

    ArgHHHHH! :''( :''(

    Ok, feel better for that!
  • Call when in doubt. A few days of pain are a given for this surgery you know that, this is a revision for ya. But when it last and last and its a 10 on 10 crying pain. Something is either totally inflammed or something else is going on.

    Just sending you cyber huggies to get back to yourself you were doing so good!!!

    >:D< >:D< >:D< >:D< >:D< >:D< >:D< >:D< >:D<
  • Please kepp inform us about your situation.I can understand how you feel.I had surgery almost 14 weeks ago and i have the same pain which i never had it neither before nor after surgery.My leg pain started 10 days ago it is a never stopping pain.tho i am taking my antiinflamatuars.today i am going to get my ct scan done.tomorrow i'll see my doctor.
    hope we both feel better very soon.I'll keep in touch :H :H :) :S
  • Did you call your Dr.?What did he say?I hope evrthing is ok.
    Best wishes and may prays are with you. >:D< >:D< O:)
  • Walk sorry your feeling the UGLY Pain !!! I dont want to take away from the subject but comment was made about NSAIDS and fusion. I am almost four weeks from c56,c67. fusion and have appt. with pain management doc in one week and I am fully expecting to refill meds. Maybe cut back some. My condition has gotten better especially the arm pain, however neck pain is still there... Also I believe its a major anxiety coming off my meds, 2 40mgs oxycontin,4-5 oxycodone, 4 norco daily. Any feedback would be much appreciated !
    Thank-You
    Mike
  • I like your descriptor - The Ugly Pain. :))(

    Firstly let me point out I have a pain specialist who, along with my surgeon decides the medication.
    I suggest you do the same. Well worth getting them both on my case.

    I am allowed to take NSAID's because I have confirmed fusion but let me tell you, prior to that I stayed WELL AWAY.

    I am never sure where asprin sits with these so stay away from that too.

    I take paracetamol / Acetaminophen which poteniates the effects of my other meds, keeping doses smaller.

    I know that pain will reduce your recovery. Do not fret about the meds. I really think if you are in genuine pain, you are metabolising the drug better than someone taking it needlessly. When I was in hospital as soon as my morphine dose was too high, i suffered side effects. ha ha.

    Still sore, seeing PT tomorrow so will get an assessment.
    This is my ostrich impression.

    :))(
  • I thought you weren't supposed to take Oxycodone any closer than 4 hours apart? Do you cut your doses in half or something? Or are you just taking straight up Oxycodone, (no tylenol like Percocet)?
  • WOW!

    I still buzz / ache from the examination. She said it could be the reason why I am so intolerant of doing anything, with out being floored by terrible pain.

    http://en.wikipedia.org/wiki/Lhermitte's_sign

    There it is for those who don't know. Anyway, PT thinks cord is scarred or tethered. Is going to let surgeon know.
    @)

    What ever next?

    I have to gently rock my spine to help stretch it. Boy taht hurts.

    Having looked this one up, seems like it has pinged me back to the MS again. God I hope not.
    I know a few ppl here are following that up. :SS

    Oh well, chin up IALW!
  • Are you still having issues with your incision? Has anyone looked at it yet?

    I hope today finds you feeling better...and, as the old saying goes, don't borrow trouble! Get an appt. with your doc ASAP, ok?

    Please keep us posted.
  • PT never said anything about it...not as sore as it was to touch.
    I'll get someone to give it a look.

    I hope most of my grumbles are nothing...

    Still hurt bad from this morning. :''(
  • Hello Itsa,

    How is your back pain going. I'm sorry to heard that you has bad back pain. How often you walk and excrise everyday. Do your back to serious pain while night time when you sleep. Does you get night sweats?

    If you say yes for night pain, you have to call doctor right away to avoid to get much and serious pain and also avoid from infection and cancer or depend on rib cracks. Please keep in post with us.

    John

    My father in law is doctor. My wife get back pain when she was 14 and it recovered.

    I will keep in touch with you!
  • I am sorry you are still having problems.
    Did you get to talk to your Dr yet?. Also if you can talk to him before the PT does then he will give you his own diagnosis rather then being influenced by what the PT may think.
    I agree that you should get the scar looked at as well if it is still tnder to touch.

    Sending you prayers
    Sara O:)
  • Well,that has turned out to be quite an interesting few weeks.
    My PT managed to switch on the pain but I am now aware that any kind of nerve stretch just sets me off and so more adaptions to the way I do things.
    Luckily all setteld down now to tolerable levels again.

    Saw my surgeon who seems happy enough I can move my legs!
    (Frowned when he read my operation notes!!) He agreed the best thing was not to trigger the pain! Not sure he can help me anymore and is hopeful I will turn that corner soon!

    I am managing swimming, well more floating really better than the walking. I get terrific pains down my legs when I walk (this is new for me) so I am hoping to build the muscles through swimming.

    Mentally I am good. =)) (good job!)

    Leg pains nasty but I reckon, if my spinal nerves are as inflammed and damaged, then I am to expect these pains for a while yet?
    I get a weakness too, not sure what that is all about!

    Keep smiling all!

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