Hello...I'm new to this, but I am a 21 yr old male w/ an Upper thigh sciatic nerve malignant tumor.
my first attack was at 8 years old, but was diagnosed at 13.
and for everyone else that has to go through this excruciating pain and suffering...I feel really bad for you...no one should have to go through such things.
Also, I read some question's about what is causing the pain shooting down the back of their legs to their toes.
well, in my case, the tumor has "feelers" the Dr. called them, that grew inside my nerve and the tumor wrapped itself around the sciatic nerve. My left leg is significantly smaller than my right, and I'm not allowed to work, due to trying to get Social Security so I can get my 5th and final (hope to God) surgery.
which is making me very nervous actually...has anyone else had this same case? and if so, what route did you take?
some doctors say that, they'll cut the whole nerve out w/ the tumor and take a nerve from both my ankles and heels, and try to do a nerve graph to replace the sciatic nerve.
some doctors say that if it takes, then I'll still have dropfoot, but I'll be able to walk fine and everything.
others say that if the nerve doesn't take...it may have to be amputated...and that's the one that scares me...
so any input on this would be wonderful...and thank you for letting me know I'm not the only one going through this.